It’s Rare Disease Week!
This week culminates with Rare Disease Day, on Friday 28th February, a global movement that aims to recognize the 300 million people worldwide who are living with a rare disease. We observe Rare Disease Day to champion equity in social opportunity, healthcare, and access to diagnosis and treatments for individuals living with a rare disease. This week, 600+ events will be held around the world to acknowledge, celebrate, and support those who are impacted, enabling progress and amplifying advocacy.
This year’s Rare Disease Day theme is “More than You Can Imagine”, which shines a spotlight on coming together as a community in honor of rare diseases. Because together, we can do more than you can imagine.
Watch the official RDD 2025 Video here - https://lnkd.in/dE56sfWf (1 min)
More than 10,000 rare diseases affect over 300 million people worldwide, and only 5% have an FDA-approved treatment. Not one rare disease has an available “cure”. By recognizing Rare Disease Day on February 28th, we can help raise awareness and drive support for critical research and patient advocacy.
Check out www.rarediseaseday.org for tons of resources to help you advocate for and support the rare disease community.
#rarediseaseday #raredisease #rarediseaseadvocacy?