Foundation For Sarcoidosis Research

Join the FSR-GSCA Community Group of DC at MedStar Hospital for their next monthly Sarcoidosis Education & Support Group: Empowerment through Education, Support, & Networking virtual events. NEW DATE: Monday, March 24, 2025, from 7pm EST TOPIC: New Year, New Strengths FEATURED SPEAKER: New participants will be given an opportunity to share their story. LOCATION: Zoom - an invite with the Zoom link will be emailed to you after registering through the link below. For more information and to register for this event, click the button below and select Washington DC - FSR-GSCA Community Group of DC at MedStar Hospital in the drop-down menu. Click Here to Register: https://loom.ly/-wJWpKc

NYU Sarcoidosis Symposium - March 26, 2025 ??Comprehensive one-day course designed for physicians, trainees, and patients ??Emphasizing a multidisciplinary approach to sarcoidosis, the course will equip healthcare professionals with the latest knowledge and skills required for effective diagnosis, treatment, and management ??Includes complex case discussions led by leaders in the field focused on multi-organ involvement of sarcoidosis. ??Participants will benefit from expert-led sessions covering key aspects of sarcoidosis, including pathophysiology, clinical manifestations, diagnostic challenges, and therapeutic options. ??By the end of the course, participants will have enhanced their ability to provide comprehensive care for patients with sarcoidosis, utilizing a team-based approach to improve health outcomes. Keynote speakers include world renowned experts in the field - Drs. David H. Birnie, David Prezant, Marc Judson and Wonder Drake. In-person participation is encouraged but virtual attendance is available with access to lectures for 30 days. Register here: https://lnkd.in/eue-KwAF

Our CEO Mary McGowan and Chief of Staff & Strategy Tricha Shivas recently attended ACCESS USA, Rare Disease Summit, where they shared invaluable insights on the evolving landscape of rare diseases, patient advocacy, and clinical trial equity. In a featured interview, they discussed FSR’s mission to drive patient-centered research, accelerate therapeutic development, and foster strong partnerships between advocacy organizations, biotech, and pharma to improve outcomes for those living with sarcoidosis. At the summit: COS, Tricha Shivas highlighted the importance of patient advocacy partnerships in advancing rare disease research. CEO, mary mcgowan spoke on the groundbreaking work of the Coalition for Clinical Trial Equity (CCTE) in increasing Black patient representation in clinical trials and securing FMLA protections for trial participants. As FSR celebrates 25 years of impact, we invite you to join us in shaping the future of sarcoidosis research and rare disease care. ?? Read the full interview and learn how you can get involved: https://loom.ly/idc3WBs #FSRatACCESSUSA #RareDiseaseSummit #SarcoidosisResearch #ClinicalTrials #PatientAdvocacy #StopSarcoidosis

FOUNDATION FOR SARCOIDOSIS RESEARCH GLOBAL SARCOIDOSIS CLINIC ALLIANCE FSR Sarcoidosis Community Group of Fairfax at Inova Hospital Empowerment through Education, Support, & Networking Next Virtual Meeting: March 20th, 2025 at 1:00pm EST Topic: Let’s Chat, an open forum for discussion FSR-GSCA Community Groups provide education and networking needs for patients and their loved ones. These groups serve as a gateway for patients to access critical services both within the FSR-GSCA member clinic and from FSR. Learn new information and strategies for managing sarcoidosis through topic based discussions featuring experts in the field. Find reassurance and support from peers in your community. REGISTER HERE : https://loom.ly/-wJWpKc

?? New Episode Alert! ??? Episode 134 of the Sarc Fighter Podcast features Dr. Ravi Karra of Duke University! ?? Dr. Karra is diving into his research on cardiac sarcoidosis—what causes it and how it can be treated. Foundation for Sarcoidosis Research recently awarded two grants to advance knowledge in this area, including one to Dr. Karra. Tune in to hear his latest findings and his theory on what might trigger sarcoidosis in some people. ?? Listen now: https://loom.ly/8T4RX7U #Sarcoidosis #CardiacSarcoidosis #MedicalResearch #SarcFighterPodcast #FSR

?? Save the Date: FSR’s 2025 Global Virtual Sarcoidosis Summit! ?? ??? When: June 28-29, 2025 ?? Where: Online Join us for this interactive, educational, and networking event tailored to the sarcoidosis community! ? Highlights include: ? Expert speakers from around the globe ? Comprehensive education on disease manifestations, research, and clinical trials ? Opportunities to connect and interact with fellow attendees Stay tuned—more information and registration details coming soon! #SarcoidosisSummit2025 #FSRGlobalSummit #SarcoidosisAwareness

FSR is excited to partner meaningfully with multiple clinical trials and drug developers in the sarcoidosis space. Understanding the clinical trial readiness status of our clinical partners is crucial to understanding site feasibility and appropriate collaborations. If your team would like to be a part of conversations around drug development in sarcoidosis and the selection of clinical sites for trials, please fill out this survey. https://loom.ly/UUiKvrI

March is National Nutrition Month! For those with sarcoidosis, focusing on heart and lung health is crucial. Opt for anti-inflammatory foods like fruits, veggies, and whole grains. Reduce sugar spikes and inflammation to improve quality of life. Learn more about eating for lung and heart health: https://lnkd.in/euBX5kkf

Join our FSR Sarcoidosis Support Group! Connect with others living with sarcoidosis in our peer-led support group, guided by experienced FSR Patient Volunteers. This group provide a safe space for sharing experiences, emotional support, and open discussions. Monthly Session: Third Thursday: 5:00-6:15 PM CST Next meeting is March 20th | Register now to secure your spot. Limited spaces available. https://loom.ly/pg8MT1c #SarcoidosisSupport #FSRSupportGroup #SarcoidosisAwareness

FOUNDATION FOR SARCOIDOSIS RESEARCH GLOBAL SARCOIDOSIS CLINIC ALLIANCE Sarcoidosis Community Group at HSS Empowerment through Education, Support, & Networking Date: March 18th, 2025 Time: 6:30 pm - 8:00 pm (EST) Topic: Neurosarcoidosis Speaker: Dr. Huzaefah Syed Where: Zoom- Please Register below with the HSS Community Group to receive meeting links. FSR-GSCA Community Groups offer education and networking for sarcoidosis patients and their loved ones. Access critical services, learn new management strategies from experts, and find support from peers. To register and/or learn more about other support group meetings visit: https://loom.ly/zPXJizI (You will need to select HSS in the dropdown menu to join the community group and get links to this and future meetings) #SarcoidosisSupport #FSRGSCA