Foundation For Sarcoidosis Research

???????? Happy National Doctors Day! ???????? Today, we extend our deepest gratitude to the dedicated and compassionate doctors who tirelessly serve our community, providing exceptional care and guidance to those affected by sarcoidosis. Your unwavering commitment to improving the lives of patients, advancing medical knowledge, and offering hope inspires us every day. Thank you for your expertise, your kindness, and your tireless efforts. Your work makes a profound difference in the lives of so many. Happy National Doctors Day from all of us at FSR! ???? #NationalDoctorsDay #ThankYouDoctors #SarcoidosisAwareness #FSR

Xentria recently announced the successful enrollment in the Part A therapeutic dose-ranging phase of its global XTMAB-16 study for pulmonary sarcoidosis, surpassing initial goals with 39 patients enrolled. The Foundation for Sarcoidosis Research is proud to partner with Xentria in supporting study outreach and recruitment for the XTMAB-16 study. Together with the sarcoidosis community, FSR looks forward to continuing its collaboration with Xentria and striving closer toward a new treatment for sarcoidosis. Part B of the XTMAB-16 study will begin enrolling later this Fall. Read the full press release here: https://loom.ly/ZYmOaVk

Are you signed up for the Foundation for Sarcoidosis Research (FSR) newsletter? Don’t miss out on the latest updates, events, patient resources, and breakthroughs in sarcoidosis research! ?? Sign up today and join our community dedicated to advancing awareness, support, and hope for those impacted by sarcoidosis. ??https://loom.ly/lMV1HBg Stay informed. Stay empowered. Together, we make a difference.

?? United for Progress: A New Chapter in Sarcoidosis Join us for the FSR Virtual Global Sarcoidosis Summit ?? June 28–29, 2025 Two powerful days of expert-led sessions, meaningful connections, and valuable resources to empower patients, caregivers, and clinicians. ?? Learn the latest in sarcoidosis care ?? Connect with a global community ?? Access tools to thrive and advocate ??? Early Bird Registration: $30 (until May 15) $40 after | Limited scholarships available ?? Register now and be part of the progress! ??https://loom.ly/aLYtjh0 #SarcoidosisSummit #FSR2025 #SarcoidosisAwareness #UnitedForProgress #SarcoidosisCommunity

As climate change fuels wildfires and compromises air quality, sarcoidosis patients — especially those living with compromised lung function — have to take precautions to protect their health. FSR recently spoke with Tulsa World Media Company about the Oklahoma wildfires along OU Health's Dr. Jad Kebbe to emphasize the long-term effects of inhaling wildfire smoke. OU Health is Oklahoma’s flagship academic medical center specializing in serious and complex cases and a a member of the FSR Global Sarcoidosis Clinic Alliance. ?? Here’s how you can protect your health during and after a wildfire. #StopSarcoidosis ?? https://loom.ly/i0kQFAU

???? Got questions about exercising with sarcoidosis? We've got answers! Join FSR for a Physical Therapy Q&A Session on April 22, 2025 at 5:30 pm CT / 6:30 pm ET with physical therapists Marion Paetznick, PT, DPT and Claire E. Child, DPT, MPH, CCS. ?? Learn from two leading voices in pulmonary rehab and physical therapy ?? Bring your questions – it's your chance to ask the experts! ?? Open to all abilities and fitness levels Register now and take a step toward moving safely and confidently with sarcoidosis! ?? https://loom.ly/h2ivGJc #Sarcoidosis #PhysicalTherapy #FSRStrong #ChronicIllnessSupport #PulmonaryHealth #ExerciseWithSarcoidosis

Join us as we lace up for a cause! Last year, Team Rally for Sarc ran the 2024 TCS NYC Marathon, raising $22,580+ for sarcoidosis research and support and over $40,000 in the last two years. This year, we're offering five slots for dedicated runners to join Team Rally for Sarcoidosis. Raise $4,000+ to make an impact and be part of our exclusive team! ?? Receive: Coveted slot in the 2025 TCS NYC Marathon Fundraising support and tips Virtual coaching from New York Road Runners Official Team Rally for Sarc swag Commit to raise $4,000 by November 2, 2025. Apply now!! ?? Race Details: Date: Sunday, November 2, 2025 Location: New York, NY – The course runs through the five boroughs of NYC Applications close April 15, 2025 ?? Click here to apply for Team Rally for Sarc: https://loom.ly/YVJtaVo ?? For more info, contact [email protected] or 312-341-0500. Let's make strides together! ??♀? #RallyForSarc #TCSNYCMarathon

FOUNDATION FOR SARCOIDOSIS RESEARCH GLOBAL SARCOIDOSIS CLINIC ALLIANCE FSR-GSCA Community Group of Philadelphia at Jane & Leonard Korman Respiratory Institute at Jefferson Health Empowerment through Education, Support, & Networking ?? When: 3/27/25 +Last Thursday of each month ? Time: 2:00 PM - 3:00 PM EST ?? Where: Jane & Leonard Korman Respiratory Institute at Jefferson Health ?? Zoom FSR-GSCA Community Groups are here to support sarcoidosis patients and their loved ones. ?? Access education and critical services. ?? Learn from topic-based discussions led by experts. ?? Find reassurance and support from your peers. Don't miss this opportunity to connect, learn, and grow with your community! ?? Register Here: https://loom.ly/-wJWpKc #SarcoidosisSupport #FSRGSCA #PhiladelphiaCommunity #PatientSupport

April is Sarcoidosis Awareness Month, a time to shine a spotlight on this complex disease and the 1.2 million people affected worldwide. This year, FSR is proud to embrace the theme "Facing Sarcoidosis Together," highlighting the power of community, advocacy, and support in the fight against sarcoidosis. Awareness is key to driving research, improving care, and making a difference for those living with sarcoidosis. Throughout the month, we’ll be sharing impactful stories, educational resources and webinars, and opportunities to get involved. Stay tuned for more details on how you can join us in raising awareness and standing together in the fight against sarcoidosis!

Join the FSR-GSCA Community Group of Cleveland Clinic for their next monthly Sarcoidosis Education & Support Group: Empowerment through Education, Support, & Networking virtual events. DATE: Wednesday, March 26, 2025, 6pm EST Topic: Taking an Active Role in Your Healthcare Speaker: Shana Marannano, BSN,RN,ILD Patient and Community Clinical Educator LOCATION: Zoom - an invite with the Zoom link will be emailed to you after registering through the link below. For more information and to register for this event, click the button below and select Ohio - FSR-GSCA Community Group of Cleveland Clinic, OH in the drop-down menu. Click Here to Register: https://loom.ly/-wJWpKc