EverythingALS

? We're getting close to showtime! Don’t miss this important EverythingALS webinar! ?? We’re thrilled to highlight the last of our three featured speakers: Dr. Gina Tripicchio, PhD, MSEd!? ?? Dr. Tripicchio is an Associate Professor in the Department of Social and Behavioral Sciences at Temple University, specializing in public health and nutrition. Her insights will help us better understand how nutritional guidance can support people living with ALS.? ?? This is your chance to hear directly from an expert in the field and we are encouraging everyone to bring questions!? ?? 4PM PT | 7PM ET TODAY (3/19) — It’s happening soon! Learn more and register here: https://lnkd.in/gCsi4irb #ALS #NutritionAndALS #ALSResearch #Webinar #ALSCommunity

? Our webinar is happening THIS EVENING at 4PM PT | 7PM ET!? As we get closer, we want to highlight another one of our three scheduled expert speakers: Dr. Ikjae Lee!? ?? Dr. Lee is an Assistant Professor of Neurology at Columbia University and is at the forefront of ALS research. His expertise in neurology and patient care brings valuable insights into the role of nutrition in ALS treatment.? ? Have questions? This is your opportunity to engage with an expert and learn more!? ?? Register now and join the conversation: https://lnkd.in/gCsi4irb #ALS #NutritionAndALS #ALSResearch #Webinar #ALSCommunity??

?? TONIGHT: Don’t Miss This Incredible Webinar! ??? As we count down to our EverythingALS webinar happening TODAY at 4PM PT | 7PM ET, we want to take a moment to highlight each of our three incredible speakers throughout the day today. First up is Dr. Terry Heiman-Patterson!? ?? If you didn't already know, Dr. Heiman-Patterson is a Professor of Neurology at Temple University and one of the leading experts in ALS research and care. She brings years of experience studying how nutrition may play a role in ALS treatment.? ?? This is your chance to hear from one of the top minds in ALS research and ask her questions!? ?? Don’t miss out on this exciting opportunity! Register here: https://lnkd.in/gCsi4irb #ALS #NutritionAndALS #ALSResearch #Webinar #ALSCommunity??

?? Advancing ALS Research: The EverythingALS Asymptomatic Study ??? At EverythingALS, we're committed to pushing the boundaries of ALS research. One of the most critical areas of study? Understanding asymptomatic individuals — those who carry genetic markers for ALS but have not yet shown symptoms.? Our Asymptomatic Study is designed to track early indicators of ALS through digital biomarkers, helping researchers identify patterns and potential early interventions. This research isn’t just about data—it’s about hope. The sooner we can detect ALS, the sooner we can act.? ?? Thank you to everyone participating and supporting this groundbreaking work! If you or someone you know is eligible to join the study, we’d love to hear from you. Together, we can change the future of ALS.? Find more information and sign up for the study here: https://lnkd.in/emRk6A3t #ALSResearch #AsymptomaticStudy #EndALS #AIforGood #Neuroscience #EarlyDetection??

?? Upcoming Webinar – Do Not Miss This Opportunity! ??? Join us on this Wednesday, March 19th for a very special EverythingALS webinar:? "Nutritional Considerations in ALS: Is there a role for nutritional guidance in the treatment of ALS?"? ?? March 19 at 4PM PT | 7PM ET? Nutrition plays a critical role in ALS care, but what does the latest research say? This is your chance to hear directly from leading experts and ask your questions!? ?? Featuring:?? ?? Dr. Terry Heiman-Patterson – Professor of Neurology, Temple University?? ?? Dr. Ikjae Lee – Assistant Professor of Neurology, Columbia University?? ?? Dr. Gina Tripicchio, PhD, MSEd – Associate Professor, Dept. of Social and Behavioral Sciences, Temple University? Whether you're living with ALS, caring for someone who is, or simply want to learn from top researchers in the field, this is a must-attend event.? ?? Please bring your questions — our experts are here to help!? ?? Save your spot now: https://lnkd.in/gCsi4irb? #ALS #NutritionAndALS #ALSResearch #Webinar

?? Join Us later TODAY for a Fireside Chat with Our Pathfinders ?? EverythingALS invites you to a virtual gathering where everyone is welcome! This is your opportunity to connect with caring individuals who come together to chat, listen, share and learn in a supportive and welcoming space. Whether you're navigating the ALS journey or simply want to engage with a compassionate community, this fireside chat is the perfect place to find connection and understanding. ? Don't miss this chance to be part of something meaningful! ?? When Wednesday, March 12th at 7 PM EST / 4 PM PST ?? Where: Online (virtual event) ?? Register now to reserve your spot: https://lnkd.in/gNNx_HvF #ALS #ALSSupport #ALSResearch

Empowering the ALS Community — One Connection at a Time???? We’re honored to see EverythingALS Pathfinder John Hudaecek featured on WKMG News 6 Orlando, sharing how the EverythingALS app is making a real difference for people living with ALS.? John spoke about the power of Pathfinders, our peer support feature that connects newly diagnosed ALS patients with experienced community guides:? ??? "People can look at our bios and figure out who comes the closest match—going through what they are—and ask questions. The kind of ones that are very embarrassing. The normal day-to-day things you take for granted, all of a sudden you can’t do, so it’s nice to be able to connect with someone who understands and can offer guidance.”? At EverythingALS, we believe that no one should face ALS alone. Our app is designed to provide not just resources, but real human connection — because navigating ALS is easier with support from those who truly understand.? Watch John's story and learn how Pathfinders are changing lives: https://lnkd.in/g5N8Zmex P.S. If you want to meet and connect with our Pathfinders, we're having a special webinar tomorrow night where you can learn more about the Pathfinders, ask questions and get involved. Visit our website to learn more!? #ALS #Pathfinders #ALSCommunity #Support #PatientVoices?

?? Please share and help us spread the word! It means a lot! ?? EverythingALS, in collaboration with Massachusetts General Hospital and Harvard Medical School, is launching an innovative research study with generous support from ALS Finding a Cure. We are seeking individuals who carry the ALS gene but are currently asymptomatic to participate in this important study. Learn more via the link in the comments! #ALS #ALSResearch

REMINDER: Please join us this evening at 7 PM ET / 4 PM PT for a free webinar featuring Rob Etherington, President & CEO of Clene Nanomedicine, Inc., and Dr. Marjan Sepassi, VP of Medical Affairs at Clene Nanomedicine. They'll be sharing critical insights into CNM-Au8, including: ? Survival Data – What the latest findings reveal ? NFL Biomarker – Its role in tracking disease progression ? Phase 3 Update – Where the research stands today ?? Register here: https://lnkd.in/gCsi4irb #ALSResearch?#CNMAu8?#Neurodegeneration?#ClinicalTrials?#RareDiseaseWeek?#RareDiseaseDay

??? Joe Redmond's story is reaching even more people in the fight against ALS!? Joe recently joined WWNO’s Louisiana Considered, an NPR-affiliate program, to share his experience living with ALS and why he volunteers with the EverythingALS Pathfinders program.? As a Pathfinder, Joe connects with others facing ALS, offering support, encouragement and insights from his own journey. In the interview with WNNO's Alana Schreiber, he also discussed the vital importance of ALS caregivers.? Joe’s story is a powerful reminder that no one has to navigate ALS alone. We're grateful for his advocacy and the impact he's making in the ALS community!? ?? Listen to the full interview here: https://lnkd.in/eW5H-yWk? #ALS #Pathfinders #ALSResearch #Community #Support