???? Happy Thanksgiving from EverythingALS! ????? This season, we’re filled with gratitude for our incredible community of supporters, patients, families, and researchers who make our mission possible. Together, we’re advancing the fight against ALS and bringing hope to so many lives. ??? Thank you for being part of our journey. Wishing you a joyful day filled with love, warmth, and the company of those who matter most. ??? #HappyThanksgiving #Gratitude #ALSCommunity #TogetherWeFight #EverythingALS #HopeForALS
EverythingALS
非盈利组织
Seattle，Washington 729 位关注者
Leveraging Technology For Rare Disease from Care to Cure
关于我们
EverythingALS?is a patient-focused non-profit bringing technological innovations and data science to?support?efforts, from care to cure, for people with ALS. We focus on bringing the ALS community knowledge, open data research and to accelerate treatments for ALS. EverythingALS is a brand of Peter Cohen Foundation, 501(c)(3) founded in 2020. We are an actively growing community of ALS patients and caregivers, collaborating with the leading minds at eminent research institutions, conducting IRB approved research into ALS disease progression. We have the largest study in ALS with over 1,000 participants in less than 14 months. Our study is driven by the need for citizen driven research with open innovation platform in digital biomarkers to detect early diagnosis and prognosis of ALS.
- 网站
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https://www.everythingALS.org
EverythingALS的外部链接
- 所属行业
- 非盈利组织
- 规模
- 11-50 人
- 总部
- Seattle，Washington
- 类型
- 非营利机构
- 创立
- 2020
地点
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主要
获取路线
1000 15th Ave E
US，Washington，Seattle，98112
EverythingALS员工
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Indu Navar
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Murgesh Navar
Inventor and Investor with a Focus on Empowering Humans Through AI Startups and Healthcare innovation (Enhancing Vitality, Endurance, Resilience, and…
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Stephanie Henze
Design in Medtech + Lifesciences | Clinical Research Innovation | Strategy Leader
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Natalia Luchkina
Digital Health Innovation | Neuroscience PhD | McKinsey Alum
动态
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?? November is National Family Caregivers Month — a time to honor the incredible individuals who give so much of themselves to care for their loved ones. At EverythingALS, we see firsthand the challenges and sacrifices that family caregivers of people with ALS make every day. Your dedication is nothing short of heroic, and we’re here to support you.? To spotlight the importance of caregiving and palliative care in the ALS community, we’re excited to share a video from last February featuring Dr. Kate Brizzi, a member of the faculty at Massachusetts General Hospital in the Department of Neurology and the Department of Medicine, Division of Palliative Care. Dr. Brizzi’s passion lies at the intersection of neurology and palliative care, with a special focus on educating the next generation of providers and improving communication tools for care teams.? Together, we can continue to uplift and empower the ALS caregiving community. ??? Watch Dr. Brizzi's presentation here: https://lnkd.in/gXY4isAS #NationalFamilyCaregiversMonth #ALS #Caregiving #PalliativeCare?
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Our story continues to resonate! Please check out this interview with our founder and CEO, Indu Navar, in the Oceanside Perspective newsletter. In the interview, Indu talks about her journey as a healthcare innovator driven by personal loss, how her experience as an entrepreneur has been shaped by adversity and how perseverance leads to success. Find the full interview details here: https://lnkd.in/dvByE-4R
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Quick reminder: please join EverythingALS for an Expert Talk webinar later today! We’re thrilled to invite you to today's upcoming webinar: "Shifting the PARADIGM: PrimeC, an Oral Candidate for ALS" ?? When: Wednesday at 7 PM EST/4 PM PST This session will feature Dr. Shiran Zimri, Ph.D., VP of Research and Development at NeuroSense Therapeutics, and Dr. Ferenc Tracik, MD, Chief Medical Officer at NeuroSense Therapeutics. Together, they’ll explore the latest findings from the Phase 2b trial, showcasing PrimeC's safety, efficacy, and target engagement biomarkers. Don't miss this opportunity to gain valuable insights from these leading experts and learn about innovative advancements in ALS treatment. Register today: https://lnkd.in/gCsi4irb #ALSResearch #NeuroScience #PrimeC #EverythingALS #Webinar #ALSCommunity #ClinicalTrials #ALS
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Did you miss our Expert Talk with Dr. Merit Cudkowicz, MD earlier this month? In this very informative webinar, Dr. Cudkowicz shared the latest on ALS gene therapies, small molecules, neural repair, and more. It’s a must-see if you are interested in the latest advances in ALS research and the drug development pipeline for 2025. We invite you to view the full webinar on our YouTube channel: https://lnkd.in/eyKVNTx9 In the meantime, here’s a short clip of Dr. Cudkowicz discussing the use of AI to expedite ALS drug development. #als #alsresearch #genetherapy #webinar #medresearch
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Happy Monday!??? Got plans for this week? Please join EverythingALS for an Expert Talk this Wednesday!? We’re thrilled to invite you to our upcoming webinar:? "Shifting the PARADIGM: PrimeC, an Oral Candidate for ALS"? ?? When: Wednesday at 7 PM EST/4 PM PST? This session will feature Dr. Shiran Zimri, Ph.D., VP of Research and Development at NeuroSense Therapeutics, and Dr. Ferenc Tracik, MD, Chief Medical Officer at NeuroSense Therapeutics. Together, they’ll explore the latest findings from the Phase 2b trial, showcasing PrimeC's safety, efficacy, and target engagement biomarkers.? Don't miss this opportunity to gain valuable insights from these leading experts and learn about innovative advancements in ALS treatment.? Register today: https://lnkd.in/gCsi4irb? Let’s advance ALS research and make an impact together!? #ALSResearch #NeuroScience #PrimeC #EverythingALS #Webinar #ALSCommunity #ClinicalTrials
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Neurotech Day is almost here! Join us tomorrow (Friday) November 15, 2024 at 10 am Eastern, for this free virtual event that's 100% via Zoom to allow anyone from anywhere in the world to attend at no cost and without the impact of travel. We will be focusing on sharing with you the effects and outcomes of the transformative power of collaboration between tech companies, pharmaceutical giants, and academic institutions. Explore how AI and neurotechnology are driving innovation and accelerating the development of new treatments and technologies for ALS. Check out the agenda below and then register here: https://lnkd.in/gi2yUywH #als #cureals #virtualevent #ALSONE #Unity
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Please join us THIS EVENING at 7 PM EST for a special virtual Fireside Chat! We're excited to feature EverythingALS Spiritual Guide McFinn Lovere and Dr. Murray Abramson, MD, MPH, an internal medicine and infectious diseases expert with more than 25 years of clinical trial and drug development experience. Register now to secure your spot: https://lnkd.in/gNNx_HvF #Healthcare #ClinicalTrials #FiresideChat #ALS #CureALS
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The wait is almost over! In just a few days, EverythingALS will be joining a powerful lineup at ALS ONE’s 7th Annual ALS Research Symposium! From November 13-15, you’ll have the chance to experience this free, virtual event that’s sparking transformative discussions in ALS research. - Dates: November 13-15, 2024 - Location: 100% virtual - Cost: FREE Remember to tune in on Friday especially — Day 3 (Friday, 11/15) of this year's symposium is Neurotech Day, which will feature a deep dive conversation into how groundbreaking collaborations between tech companies, pharmaceutical innovators, and academia are harnessing AI and neurotechnology to accelerate the development of new treatments for ALS. On that day, our CEO and founder, Indu Navar, will join forces with Dr. Leigh Hochberg of the Center for Neurotech & Neuro-Recovery at MGH, along with industry leaders from Compass AI, Critical Path Institute (C-Path), Massachusetts General Hospital, Massachusetts Institute of Technology, Passio AI, Regeneron, Microsoft, Modality, Temple University, and more. Together, they'll discuss the transformative impact of collaboration on ALS research and the breakthroughs emerging from the synergy between technology and medical research. Join us as we explore the future of ALS treatment and the hope these innovations bring to the ALS community! Registration is free but required. Find out more here: https://lnkd.in/gi2yUywH #ALSResearch #Neurotech #AIforALS #EverythingALS #ALSCommunity #Innovation #Collaboration
NOV 13-15th: Join us for our 7th Annual ALS Research Symposium! Come gather with us from afar (held via Zoom so that anyone can attend easily from anywhere in the world), for our highly anticipated 3-day annual conference & listen in on presentations & talks from many of the world’s most prominent leaders in ALS research. On DAY 1 (11/13), 12 renowned ALS keynote speakers will give talks on important ALS topics including: The current clinical trials landscape, Innovation in trial design, New approaches to understanding sporadic ALS, miRNA’s, Somatic mosaicism, IPSCs modeling, the ALS exposome, subclassification, using neurofilament in clinical trials, ALS risk factors, outcome measures, ALL ALS, & more, from these esteemed researchers: Sabrina Paganoni, MD, PhD, Jeremy Shefner, MD, PhD, FAAN, Melanie Quintana, PhD, James Berry, MD, MPH, Jaime Raymond, MPH, Stephanie Melillo Fradette, PharmD, Ammar Al-Chalabi, PhD, Eran Hornstein, PhD, Justin Ichida, PhD, Eva Feldman, MD, PhD, Zinan Zhou, PhD, Dame Pamela Shaw, MD, FAAN, along w/moderators, Dr.’s Sabrina Paganoni and Robert Brown. On DAY 2 (11/14), presentations will be given from 19 members of the ALS pharma industry about current trials for which they are currently working or have recently completed towards effective treatments for ALS. We’ll hear from Acelot, Aclipse Therapeutics, Amylyx Pharmaceuticals, Arbor Technologies, Axoltis Pharma, Eikonizo Therapeutics, Kadimastem Ltd., Leal Therapeutics, Mitochon Pharmaceuticals, Inc., Modality.AI, Neurizon, NeuroSense Therapeutics, OrphAI Therapeutics, PLL Therapeutics, Prilenia, Spinogenix, Inc., Transposon Therapeutics, Inc., uniQure, Zydus Group Lifesciences. Day 2 will be moderated by James Berry, MD, MPH, and Fernando Vieira, MD. On DAY 3 (11/15), Indu Navar & EverythingALS, along with Leigh Hochberg, MD, PhD from The Ctr for Neurotech & Neuro-Recovery at MGH will converse with industry leaders from renowned companies including Compass AI, Critical Path Institute (C-Path), MGH, MIT, Passio AI, Regeneron, Microsoft, Modality, Temple University, and more.?The focus will be on sharing the effects & outcomes of the transformative power of collaboration between tech companies, pharmaceutical giants, and academic institutions. Explore how AI & neurotechnology are driving innovation & accelerating the development of new treatments and technologies for ALS. With immense gratitude to our Symposium Sponsors: Mitsubishi Tanabe Pharma America, Amylyx Pharmaceuticals, Biogen, Sanofi, Spinogenix, Inc., and QurAlis. This conference would not be possible without your generosity! All are welcome & reg is free but required at https://lnkd.in/gi2yUywH . #ALS #ALSResearchSymposium #ALSconference #ALSGlobalSymposium #ALSVirtualSymposium #AllAreWelcome #ALSONEResearchSymposium #RegisterForFree
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?? Staggering but true: By 2030, 135 million people will be living with a neurodegenerative disease like ALS. This is why our work is more crucial than ever. With your support, we're working tirelessly to find a cure and make life-changing advances for patients and their families. Join us in our mission to end ALS—every view, share, and contribution brings us one step closer to a world without ALS. Together, let's make a difference! #EndALS #ALSResearch #FindACure #NeurodegenerativeDiseases #ALSAwareness #JoinTheFight #HopeForACure #TogetherForACure #SupportALS