EKPF - European Kidney Patients' Federation

Have you seen our updated Manifesto yet? ?? It’s packed with all of our key priorities, from advocating for better kidney care to promoting research and innovation, and addressing the diverse needs of kidney patients across Europe. ?? Our updated Manifesto reflects the ongoing work we’re doing to ensure that the voice of kidney patients is heard and that we continue pushing for meaningful change in healthcare policies. ??? It was ratified by our members during our latest Assembly held in October in Berlin. ??? Check it out now and stay informed on what we’re working towards: https://lnkd.in/dVig3YY8 #EKPF #KidneyCare #PatientAdvocacy #Innovation #Manifesto #HealthPolicy #RareKidneyDiseases #Research

?? Kidney disease affects more than patients — it impacts families, communities, and healthcare systems. But your signature can help drive global change. By signing the ISN's petition, you'll be helping push world leaders to prioritize kidney health and improve care for millions. It only takes a moment, but the ripple effects will last a lifetime.??? https://ow.ly/WVjc50TfoZO International Society of Nephrology #KidneyHealthMatters

The EKPF Annual Summit was incredible! ?? It gave us a unique chance to connect, exchange ideas, and share best practices, while learning from each other's experiences. ?? The event was full of inspiration and valuable insights, motivating us to keep growing and improving. Thanks to everyone for your energy and participation!

? New in 2024: the Global Patient Survey on #kidneycancer will explore new topics including time to diagnosis, treatment adherence to oral therapies, kidney function and patient preferences. Share your insights today. https://bit.ly/ikcc2024GPS International Kidney Cancer Coalition (IKCC)

?? Today in Berlin EKPF is celebrating our General Assembly. ?? Member countries are gathering to talk about the latest activities and developments and future plan and projects for the Federation. Thank you all for coming! ??

?? The EKPF Annual Summit has just kicked off in Berlin! ?? Thank you to everyone for joining us – excited to dive into an agenda ahead. Let’s make this summit incredible! ??

Now open ? Ekpf and International Kidney Cancer Coalition (IKCC) have launched the 2024 Global Patient Survey on Kidney Cancer and Growths! Calling all #kidneycancer patients, carers and survivors to share their experiences and insights in this 15-minute online survey. ? https://bit.ly/ikcc2024GPS

??The Annual Summit 2024 is almost here! This October?17th, ??we will meet in Berlin for the EKPF Annual Summit 2024, an event where entities from various countries will gather together. There will be interesting and insightful talks for the entire kidney community. It's a great opportunity to share ideas, learn, and connect with the current situation of Kidney patients. ?? You can check the program on the EKPF website: https://ekpf.eu/

On Wednesday, EKPF participated in the Conference d.Holiday 2024 in Athens, organized by Diaverum. The event provided an excellent platform to discuss patient travel and the unique challenges faced by kidney patients when planning trips. We had the opportunity to listen to inspiring patient stories from Jan ?wi?tczak and Antonis Chatzisavvas, who shared their personal experiences navigating travel while on dialysis and the solutions they suggest. After the conference, we visited the Diaverum Medifil Peristeri dialysis clinic. Great connections and learning! Always great to catch up with old friends and to meet new ones! It was a fantastic day of learning, sharing, and building new partnerships for the future of kidney patient care.

Chronic kidney disease (CKD) affects 1 in 10 people worldwide, and yet, despite its increasing impact, remains underrecognized. ? Advocating for transformative health policies for CKD, such as screening in high-risk populations, is more important than ever. ? Don’t miss out on an expert discussion on 25 September, which will address the growing burden of cardiovascular, renal and metabolic diseases, including CKD, and the importance of driving global recognition around the interconnected nature of these conditions. ? The Devex event will be delivered in partnership with the?Global Patient Alliance for Kidney Health?International Society of Nephrology, and sponsored by?AstraZeneca?and?Boehringer Ingelheim ? Register to attend in-person in New York City or online to be a part of making the change #ForKidneyHealth:? https://lnkd.in/gKtf5_yH ? #DevexEvent #UNGA79?