EUPATI

?1 month countdown to EUPATI Essentials M2 training ? Have you registered yet? ??? 23 April (14:00 - 18:00 CEST) online ?? https://bit.ly/4gW2UQL What is EUPATI Essentials M2 training about? This training focuses on the specifics of working and communicating with patients from diverse cultures ?? Are you interested in collaborating with patients across various cultures? Would you like to learn more about cultural diversity in patient engagement? Then our EUPATI Essentials M2 is for you ?? ?? Special offer for multiple trainings & groups ?? ? 10% discount for 2 patient engagement trainings ? 15% discount for 3 patient engagement trainings ? 10 & 15% discounts when you learn with your colleague Take a look out all EUPATI Learning Lab trainings ?? https://bit.ly/3seCBCi #EUPATI #Essentials #M2 #NewModule #PatientEngagement #RegisterToday #1MonthToGo

?? Our Annual Report is now on our website ?? Take a look at our progress & impact in 2024 ?? Highlights include ?? ?? Our Toolbox reached 7.9 million users in 14 languages - with new content on medical devices & digital health ?? A new EU HTA regulation course was launched & work on cell & gene therapies and drug repurposing progressed ?? More than 500 new learners joined the EUPATI Open Classroom ???? 85 new EUPATI Fellows graduated - representing 32 countries ?? EUPATIConnect gained more visibility through new video materials ?? Governance changes strengthened links between Partners, EUPATI National Platforms (ENPs), the Board of Trustees & EUPATI Fellows ?? Our AGM held in person Brussels was a key moment in showcasing our leadership in patient engagement & education We would like to thank all our sustaining partners for their shared commitment to patient education & engagement ?? ?? ?? Check out our full report ?? https://bit.ly/4izaLWc #EUPATI #AnnualReport #OpenClassroom #PETP #EUPATIConnect #HTA4Patients #ENPs #Fellows #PatientEducation #PatientEngagement

Held our first ENP catch up meeting of this year ?? Our EUPATI National Partners (ENPs) provide patient education & engagement on a local level ?? We meet to discuss EUPATI updates, project news & opportunities as well as ENP-related issues ?? Did you know some ENPs also offer local training programmes with national perspectives?! Check them all out ?? https://bit.ly/4bEypOp Want to engage locally? Interested in promoting patient education & engagement nationally? Connect with your local ENP today ?? More information ?? https://bit.ly/3t2aSok #EUPATI #NationalPlatforms #ENPs #PatientEducation #PatientEngagement #LocalLevel #ConnectToday

?? We are thrilled to announce our very exciting news ?? Together with CANTRAIN | Clinical Trials Training Programs and Multi-Regional Clinical Trials Center of Brigham and Women's Hospital and Harvard (MRCT Center) we have launched a new international initiative & joint task force for clinical trials competency ?? ?? The initiative, entitled “????-???????????????? ???????????????? ???????????????? ???????????????????????? ???? ?????????????? ?????????????????? ?????????????? ?????????????? ???????????????????? ????????????????????,” aims to enhance patient engagement-related competencies to support clinical research ?? How will we do this? ? By strengthening the skills and knowledge of both patient partners & clinical research professionals Our goal? We wish to foster more meaningful collaboration in clinical trials ?? Read more information on this initiative ?? https://bit.ly/4bKnUJy Watch this space ?? #ClinicalTrials #PatientEngagement #PatientPartner #PatientPartnership

Delighted & proud that we have EUPATI Fellows Mitchell Silva, PhD & Christian Pfeuffer speaking at key sessions today at DIA2025 in Basel ?? Are you there? Check out sessions on ?? ?? Outlook and Opportunities for Translating Regulatory Approval into Access Decisions - happening now ?? Optimising the Value of Patient Experience Data (PED) - 17:00 - 18:30 CEST Let's continue to drive real change for patients ?? #DIAEurope #DIA2025 #PatientEducation #PatientRepresentation #HealthcareInnovation #EUPATI

SIMPATHIC is now described in the scientific literature! ? The article gives a?comprehensive overview?of the large unmet medical needs of rare disease patients and SIMPATHIC’s ultimate goal to accelerate drug repurposing for rare diseases. https://lnkd.in/ews4QuuD Many thanks to all authors of this milestone manuscript!

?? HTA4Patients Project News ?? We are delighted to share that we are running a series of online Health Technology Assessment Regulation (HTAR) training sessions in May ?? Training sessions are free, open to all & accessible in 4 languages ?? Mark your calendars in May and register today! ??? 07 May (18:00 CEST) - HTAR Training in Portuguese in collaboration with ENP Portugal. Register now ?? https://bit.ly/41L9ynq ??13 May (15:00 CEST) - HTAR Training in Czech in collaboration with ENP Czechia. Register now ?? https://bit.ly/4hBisd4 ??21 May (15:00 CEST) - HTAR Training in French. Register now ?? https://bit.ly/3XRp6EX ??26 May (10:00 CEST) HTAR Training in English in collaboration with DiCE. Register now ?? https://bit.ly/422E1yA We have also opened our HTA Ambassadors Applications ?? We are looking for 25 HTA Ambassadors who can deliver trainings on the topic of the HTAR and HTA more generally. Would you like to bring your HTA knowledge to the next level and help educate others? How to apply? ? You must be located in the EU ? You are interested in providing trainings to groups of patients/ patient organisations ? Complete this short form ?? https://bit.ly/3DHEpcx Applications will remain open until 13 April. Keep updated via project page for more information ?? https://bit.ly/3Q5K8Nf #HTA4Patients #EUPATI #HealthTechnologyAssessment #Training #Education #HealthcareInnovation #EU4Health #EUHTAR #HTA #StartLearningToday #HealthUnion #EU4Health #HaDEA? #PatientEmpowerment #HealthPolicy

The EUPATI Toolbox is an online library of the A-Z of #MedicinesResearch & development (R&D) and #PatientEngagement. It's a free resource & available in 14 languages. There's a new article on #RealWorldData (RWD) & Real-World Evidence (RWE). The article is accessible to everyone curious about the terms and concepts of medical research. ?? Check out the toolbox with the new article here: https://toolbox.eupati.eu/ #EUPATI

Meet David Kelly ???? A EUPATI Fellow from Cohort 7 based in Ireland ?? The medical system has been part of David's life since he was 4 years of age. More recently other family factors has impacted his interest in the side-effects & benefits of medication ?? Listen to David's take on the EUPATI Patient Expert Training Programme & his personal highlights ? ?? Learn more about the Patient Expert Training Programme: https://lnkd.in/dXeHp8s #EUPATI Global Heart Hub #IAmEUPATIFellow #Cohort7 #PETP #Patient #PatientEducation #PatientEngagement

?? The global patient engagement community is coming together! From June 10-12, 2025, in Baveno, Italy, the Patient Engagement Open Forum (PEOF) will go beyond a conference—it's a dynamic working space where real action takes shape. What’s brewing for this year’s agenda? ? ?? Shape the future of Patient Experience Data (PED) with European Medicines Agency & global regulators. ?? Upskill with EUPATI & European Patients' Forum on AI, RWE, and inclusive engagement. ?? Advance PE in clinical trials through global collaboration & IHI projects. ?? Align patient engagement with long-term financial sustainability. ?? Celebrate changemakers at the Made With Patients Awards. PEOF 2025 is about breaking barriers, challenging the status quo, and co-creating lasting solutions with 200+ changemakers, driving patient engagement forward. ?? Stay tuned for more information about the event & agenda - subscribe to get updates: https://lnkd.in/e6YaRaD2 #PEOF2025 #PatientEngagement #HealthcareInnovation #CoCreation