EUPATI

We are immensely proud to showcase EUPATI and some of the great members of our network, with this video filmed during our Annual General Meeting?earlier in September. ?? ?? This is just a snippet of who we are as a community of stakeholders, but it is energising and reassuring to see so many people from various disciplines, countries, disease areas, come together to make the patient voice heard. Together, we are building tomorrow’s healthcare system ensuring that patient involvement is a key prerogative.? This video, is a thank you to all those who’ve been a part of this journey with us ?? ? A special thank you to our interviewees: Alice Larotonda, Ph.D., Rebecca Mbewe, Petra ADáMKOVá, ?Ivo Schauwecker, Marzena Nelken, Bego?a Nafría Escalera, Daniel De Schryver, and Matthias Gottwald. #EUPATI #EUPATIAGM2024 #Partnerships #Collaboration #PatientInvolvement #HealthcareInnovation

?? EUPATI is teaching relevant stakeholders to collaborate with patients across cultures ??? ? On December 11, EUPATI will host Module 2 of our Essentials Training, part of our training portfolio targeting Industry and Academia professionals. ? ? Stakeholders sometimes lack the know-how to properly and efficiently engage patients in the appropriate phases of the medecines lifecycle. With this hands-on session, members gain the following knowledge:? ? - A stronger understanding of how culture shapes communication and healthcare interactions.? - Insights into the current cultural challenges in clinical trials and patient engagement.? - Practical strategies for fostering inclusive and meaningful collaborations with patients.? - Best practices and examples to improve your engagement across diverse settings.? ? ? Why does this matter? ? ? In today’s globalised world, understanding cultural diversity is essential for building stronger partnerships with patients and advancing healthcare outcomes. For example, religious beliefs can impact a individuals treatment choice, ethnicity can play a part in one’s response to a treatment and lack of literacy can restrain someone from participating in a clinical trial.? ?? Join us on December 11 from 14:00 to 18:00 CET for this interactive online training and gain practical tools, real-world insights, and valuable skills to make your patient engagement a prerogative in your workplace.? ? ?? Register here: https://bit.ly/4fYRcov #PatientInvolvement #HealthcareInnovation #EUPATIESSENTIALS #AdvancedTraining #Academia #Pharma #PatientEngagement?

Congratulations to EUPATI Switzerland for hosting yet another successful Swiss Patient Forum! This event aims to identify the basic support needs of patient representatives and to develop central messages and demands that come from these. The morning workshop and the panel discussions brought together many valuable insights and ideas, which were then presented by the President of EUPATI Switzerland, Ivo Schauwecker. We are proud to see so many great local initiatives working towards empowering patients to be valued stakeholders ?? ?? ??

It was a pleasure to attend this year’s ISPOR—The Professional Society for Health Economics and Outcomes Research conference in sunny Barcelona, earlier this week ?? During the event, EUPATI hosted a session on ‘Empowering Patients to Be Effective Stakeholders and Partners in the EU Health Technology Assessment Process.’ ?? The session was moderated by our Executive Director Maria Dutarte and joined by presenters Finn McCartney, Project Coordinator for the HTA4Patients project, Lotte Klim, EUPATI Fellow and Valentina Strammiello, Director of Strategic Initiatives at European Patients' Forum. It was also great to reconnect with the rest of the EUPATI family: Petra ADáMKOVá, Angie B., Mitchell Silva, PhD and Marzena Nelken ! ?? Our session dived into how patients can prepare for the EU HTA process which will start in 2025, presented the training materials that can be accessed from EUPATI and the EUCAPA project, and the challenges and learnings on creating educational materials on the HTA Regulation. We are excited to provide trainings for patient communities on HTA and the HTAR in the coming months, equipping them with the knowledge and skills to be effective stakeholders in this process! You can find a summary of our session from Becraris publishing here: https://lnkd.in/eC2m96bi If you are interested in accessing free educational materials on the HTAR, start learning here: https://lnkd.in/dZdRyp8V #HTA4Patients #EUPATI #HealthTechnologyAssessment #Training #Education #HealthcareInnovation #EU4Health #EUHTAR #HTA #StartLearningToday #HealthUnion #EU4Health #HaDEA? #PatientEmpowerment #HealthPolicy? #ISPOREurope

?? Lesson 2 on the EU HTA Regulation: Who is involved in the EU HTA and what are their activities? ?? How does EU collaboration shape Health Technology Assessment? This lesson reveals:? ? The Coordination Group’s role in driving Joint Clinical Assessments and Scientific Consultations? ? How Member States and subgroups work together? ? The Stakeholder Network’s role in ensuring inclusivity and transparency ?? Dive deeper in Lesson 2 on EUPATI Open Classroom: https://lnkd.in/dwe8jfqH Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or European Health and Digital Executive Agency (HADEA). Neither the European Union nor the granting authority can be held responsible for them.? #HTA4Patients #EUPATI #HealthTechnologyAssessment #Training #Education #HealthcareInnovation #EU4Health #EUHTAR #HTA #StartLearningToday #HealthUnion #EU4Health #HaDEA? #PatientEmpowermen #HealthPolicy?

?? Patient Involvement on a Global Scale ?? During the EUPATI Annual General Meeting in September, Claudia Egher (Utrecht University) shed light on the disparities in global patient engagement:? ?This process mostly thrives in developed countries, but lags in countries facing historical inequalities, regulatory gaps and accessibility challenges. ?In her presentation, Claudia highlighted various possible solutions that should be implemented: ? ? ? Culturally adapted engagement to boost participation.? ? Multilingual, accessible education for patients worldwide.? ? Building long-term relationships to foster trust.? ? Flexible, stage-specific training for diverse patient needs.? ? Policy advocacy for equitable access in underserved regions.? ? Early integration of patient perspectives in drug development for greater relevance.? ? ?? A global shift is needed to ensure patient voices are heard everywhere. Let’s work together to close the gap!? ? #PatientEngagement #HealthEquity #EUPATIAGM2024 #EUPATI #HealthInnovation #DEI? ?

Yesterday, EUPATI hosted an in-person Fundamentals training in Berlin, with 13 enthusiastic participants diving into the foundations of patient engagement. ???? Industry and academia representatives joined us to explore valuable insights, practical tools, and advanced techniques, all designed to elevate their approach to patient involvement in medecines research and development. ?? ? Thank you to all participants and to our trainers for making it a vibrant and productive session! ?? ? Stay tuned for more opportunities to enhance your patient engagement expertise. ??? ?? ? Anja Hoffmann, Ph.D. Beate Rohde ? #Berlin #PatientEngagement #EUPATI #OnlineTraining #HealthcareInnovation #CareerDevelopment #FundamentalsTraining ??

Another EUPATI Fundamentals training on patient engagement in the books ????

EUPATI ?is inspired to join the Innovative Health Initiative (IHI) Brokerage event today in Brussels,? bringing together a large audience of both public and private partners, brainstorming innovative ideas for the European health research ecosystem. Our goal: to address the unmet needs of patients.??? ? We are happy to see a broad interest amongst partners ready to better involve patients in their projects. These meetings highlight the constant need for training and informing patients, not only in drug development but now also in the areas of digital health, medical devices, AI and use of Real World Data and Real World Evidence.? ? These discussions underscore the impact and importance of our work within patient education in this ever-evolving healthcare R&D landscape. Together, we are stronger!??? #EUPATI ##IHITransformingHealth #HealthResearch #HorizonEU #Event #PatientInvolvement #HealthcareInnovation

?? New on EUPATI Open Classroom! Dive into the basics of EU Health Technology Assessment (HTA) and the upcoming Regulation ?? This overview explains how the EU is making healthcare assessments more consistent across countries. With new rules, called the HTA Regulation, EU members are working together to create shared standards for evaluating new health treatments, like medicines or medical devices. Through two main processes, Joint Scientific Consultations (advice for health developers) and Joint Clinical Assessments (comparing treatments), the EU aims to improve healthcare by streamlining resources and reducing duplicative efforts. ???? Whether you’re new to HTA or want a clearer understanding, check out Lesson 1 for an easy breakdown! Start your free lesson here: https://lnkd.in/e3vMwRRd Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or European Health and Digital Executive Agency (HADEA). Neither the European Union nor the granting authority can be held responsible for them. #HTA4Patients #EUPATI #HealthTechnologyAssessment #Training #Education #HealthcareInnovation #EU4Health #EUHTAR #HTA #StartLearningToday #HealthUnion #EU4Health #HaDEA? #PatientEmpowerment