Etheros HealthData Foundation

?? Did you know that 30% of all existing data is health-related? Unfortunately, most health data is siloed, unstructured and not shared beyond its primary use. This makes the healthcare system less efficient, accessible, equitable and affordable than it otherwise would be. Etheros HealthData Foundation and Crypto Valley Association believe that a better healthcare system is one where individuals own, share and benefit from their own health data. In other words, we believe in #decentralizedhealthdata management.? ?? We are pleased to present you the 2024 edition of the report "Decentralized Health Data Management: an overview of solutions empowering individuals to own, share and benefit from their health data". Co-authors Carmen Cucul, Hui Huang, Lu Zheng, PhD, MBA and Thomas Egelhof delve into what makes a good decentralized health data management system, who are the pioneers in this space, what are the opportunities for the future and how can all healthcare ecosystem stakeholders contribute?! ?? Download the report here: https://rb.gy/5k32dj We are grateful for all the insights shared by entrepreneurs and leaders in decentralized health data management space: Chrissa McFarlane (Founder & CEO of Patientory, Inc. ), Ahmed Abdulla Al-Maqtari (CEO of DigiPharm) and Annie Axelle B (Head of Partnerships at AfyaRekod). Keep up the hard work and the collaboration spirit: we will meet again! ?? We are also thankful to our peer reviewers and content contributors who made our report much more precise, clear and diverse (opinionwise): Michele Soavi, Casper Paardekooper, Fiona Thwaites, Robert Turrall, Yafei Liu, Liam Bloom, Christian Kokoros, Richard Zhong. ?? Download the report here: https://rb.gy/5k32dj ?? Follow us: Etheros HealthData Foundation and Crypto Valley Association ?? Get in touch: [email protected] and [email protected] #cryptovalleyassociation #etheroshealthdatafoundation #decentralizedhealthdata Hartmann Wellhoefer, MD, Nicole Norris, Alice Dietrich, Tiffany Patrick, MPH, MBA Rene Chen

?? Congratulations to the European Commission and the Polish presidency of the Council of the European Union on the adoption of the European Health Data Space (#EHDS) regulation – a major milestone for #HealthInnovation in #Europe! ?? Our thanks also to the previous Presidencies, the European Parliament, and stakeholders who contributed to making this achievement possible. Collaboration remains key—especially for the successful implementation of the EHDS. At #EUCOPE, we are ready to work with the digital health community to ensure the EHDS delivers on its promise. It was inspiring to hear about the transformative opportunities the EHDS will unlock: ? For #patients – Faster diagnoses and new treatment options ? For #research – Access to better data to drive innovation ? For #Europe – A chance to lead globally and strengthen competitiveness We were particularly encouraged by the focus on #RareDiseases across speeches and panels. ?? A warm thank you to all the key speakers who shared their insights, including #OlivérVárhelyi , Katarzyna Kacperczyk, and Lorena Boix Alonso ?— your perspectives are valuable as we move toward implementation. And to everyone who connected with EUCOPE’s Leander Vranken and Matthias Heck, thank you. ?? If you are interested in joining our work—such as our involvement in the EHDS Steering Group—reach out to Leander Vranken. #EHDS #EUHealth #HealthData #Collaboration #EUCOPE #HealthUnion #DigitalHealth

The digital age offers unprecedented opportunities to transform healthcare, especially for those with rare diseases. But how do we ensure innovation goes hand-in-hand with patient empowerment and ethical considerations? ?????????????? ???????????????????? ???????????????????? (#??????) is excited to share a vital new resource: "???????????????????? ??????????????, ????????????????????, ?????? ?????????????? ?????????????????????? ?????????????? ?????????????? ???????????????????? ????????????????????." This comprehensive guide, co-authored by our own Antonio Pesqueira with valuable contributions from Carmen Cucul, addresses the crucial balance between #technological #advancement and #safeguarding #patient #privacy. The book explores many academic areas such as:? ? ??? Robust privacy frameworks for sensitive #medical #data.? ? ?? Leveraging #AI, #blockchain, and #digital #twins for #personalized #healthcare.? ? ?? The ethical implications of #emerging #technologies in #medicine.? ? ?? Real-world applications in #public #health and #diagnosis #systems.? ? ?? The empowerment of patients through #decentralized #technologies. This reading is essential for medical professionals, researchers, policymakers, and anyone passionate about leveraging technology to improve patient outcomes, especially those affected by rare diseases. Discover how we can build a more #equitable and #innovative #healthcare future. ?? Explore the book here:?https://lnkd.in/d54fNHs2 #EHF #Etheros #HealthData #RareDiseases #DigitalHealth #AIinHealthcare #Blockchain #DigitalTwins #EthicalAI #AI #PatientEmpowerment #HealthcareInnovation #MedicalResearch

?????????????? ?????? ???? ???????????????????? ??????????????????????????: ???????? ?????????? ?????? ???????????? ???? ?????????????? ???????????? ??????????????????! Are you a healthcare professional working in business operations, IT, entrepreneurship, digital health product development, leadership, or regulatory compliance? ???????? ???????????????? ?????? ???????????????????? ???? ????! ?? ???? ???????? ???????? ?????????????????? Our team is developing cutting-edge online courses focused on data models of the future, privacy-enhancing technologies, and human-centered design, specifically tailored for the healthcare industry. Before finalizing our curriculum, we want to ensure it truly addresses the real-world challenges and learning needs of professionals like you. ?? H???? ?????? ?????? ???????? We are seeking 45-minute conversations with healthcare experts based in the EU across the industry spectrum to understand: ? Your expectations for professional development in digital health ? Learning formats that work best for your busy schedule ? Content priorities that would deliver the most value ? What previous learning experiences have (or haven't) worked for you ?? ???? ?????????????????????? ???????????????? Just bring your honest perspectives about past learning experiences and what you'd like to see in future educational offerings. Your input will directly influence how we design these courses to make them as valuable and accessible as possible. ?? ???????????????????? ???? ????????????????????????? If you can spare 45 minutes between 17-31 March 2025 to share your insights, please: ? Comment below or ? Email us at [email protected] Every voice helps ensure we're creating educational resources that truly serve the healthcare community's needs. ????????????????, ???? ?????? ?????????? ???????????? ?????????????? ???????????? ?????????????????? ???????? ???????????? ???????????????????? ???????????????????? ???????????? ?????? ???????????????????? ??????????????????. #DigitalHealth #HealthcareEducation #ProfessionalDevelopment #HealthTech #MedicalInnovation Carmen Cucul, Fernanda Flores

At Etheros HealthData Foundation, we believe in empowering the next generation to take ownership of their health data, supported by evidence-based strategies and innovative solutions. Today, we're proud to share our first article authored by one of our Young Ambassadors Christian Kokoros, exploring the critical issue of rising colorectal cancer rates among young adults and the urgent need for better health data ownership. This piece not only highlights concerning trends in early-onset colorectal cancer but also demonstrates why we're investing in young voices through our Young Ambassador Program. As healthcare evolves, the perspectives of younger generations on health data sovereignty become increasingly vital. We invite you to read this insightful analysis and join the conversation about the future of personal health data management. This is the first in a series of thought leadership pieces from our Young Ambassadors, who are helping shape the future of healthcare data ownership. #HealthDataOwnership #ColorectalCancer #YoungAdultHealth #DecentralizedHealthData #PatientEmpowerment #YoungAmbassadors #FutureOfHealthcare Lu Zheng, PhD, MBA Hui Huang Carmen Cucul Christian Kokoros

??Welcoming the Year of the Snake! Season's Greetings from Etheros Healthdata Foundation As we embrace 2025's Lunar New Year, we celebrate the Snake's embodiment of wisdom, adaptability, and precision - qualities that resonate deeply with our mission in healthcare data transformation. May this new year bring wisdom to your decisions, success in your endeavors, and good health to you and your loved ones. 恭喜發財 (Gong Xi Fa Cai) 新年快乐 (Xin Nian Kuai Le) #LunarNewYear #YearOfTheSnake #Healthcare #DigitalHealth #PatientEmpowerment #DecentralizedHealthDataManagement Hui Huang Lu Zheng, PhD, MBA Nicole Norris Rene Chen Alice Dietrich Hartmann Wellhoefer, MD Tiffany Patrick, MPH, MBA Christian Kokoros Richard Zhong Cheng Yang Carmen Cucul Iris Himmelhan Natalia Sofia Matej Otruba Antonio Pesqueira Leilei Tang, PhD Robert Turrall Dennis Benjamin Huber

#healthcare is undeniably one of the pillars of #sustainability - the “S” under #ESG. #Decentralized #healthdata management is a step further in making healthcare more equitable, inclusive, personalized and efficient in the long run. Thank you Crypto Valley Association, Women in Web3 Switzerland (WiW3CH) and DLT Talents Alumni for orgazinging this wonderful event and for including healthcare in your agenda

#decentralized #healthdatamanagement on the agenda of Davos Decentralized. In Zurich, tomorrow. Video recordings will be available post-event for those unable to attend

No two snowflakes are alike ... just like your #healthdata. Cherish it, protect it and make the best use of it. Embrace #decentralization. Etheros HealthData Foundation is wishing you happy winter celebrations and a unique 2025 ... just like you.

??Exciting News from Etheros HealthData Foundation! We are thrilled to announce our strategic partnership with the Nordic Blockchain Association (NBA)! This collaboration unites the NBA's leadership in blockchain innovation with Etheros Health Foundation's mission to transform health data ownership and accessibility for individuals worldwide.? Together, we aim to:?? ? Leverage blockchain technology to empower individuals to own, manage, and benefit from their health data?? ? Drive innovation at the intersection of health and blockchain ecosystems?? ? Promote transparency, security, and accessibility in health data management? At Etheros Health Foundation, we are committed to building a future where health data empowers individuals, and this partnership with the Nordic Blockchain Association is a major step toward that goal. ?? Stay tuned as we collaborate to pioneer new solutions and redefine the future of health, technology, and data empowerment.? #EtherosFoundation #NordicBlockchainAssociation #HealthInnovation #BlockchainTechnology