Ern-Skin

?? ED webinar coming soon! ?? 25th March 2025, 1:00 pm – 2:00 pm CET About:?Pathogenic mechanisms of EDA deficiency Speakers:? - Dr. Kang Yu, from Shanghai Ninth People’s Hospital. Shanghai Jiao Tong University School of Medicine. Shanghai, China. - Prof. Yiqun Wu, from Shanghai Ninth People’s Hospital. Shanghai Jiao Tong University School of Medicine. Shanghai, China. Chaired by Prof. Holm Schneider from University Hospital Erlangen. Children’s and Adolescent Clinic Loschgestr. Erlangen, Germany. Organized by the thematic group on Ectodermal Dysplasias including Incontinentia Pigmenti and p63-associated disorders (ED). ?? Register here: https://lnkd.in/dsF8txF #ernskin #webinar #dermatology #Rare #Skin #Diseases

?? ?? Today is Rare Disease Day! ?? ?? Together, we stand with the 300 million people worldwide living with rare diseases. In uniting on this day we can raise awareness, advocate for change, and promote a more equitable future! Let’s use this moment to recognise and highlight the voices and stories of the rare disease community. Share your story. Share your advocacy. Share your voice. Learn more: https://lnkd.in/gk6hbAF #RareDiseaseDay #LightUpForRare Rare Disease Day

???????? Attention European doctors! You can access #raredisease expertise via #EuropeanReferenceNetworks. Specialists across the EU offer virtual consultations for complex cases. Connect with an expert today! ?? Learn more: https://lnkd.in/eHgKFgJm #EUfunded #HealthUnion #EU4Health #RareDiseaseDay JARDIN Joint Action Rare Disease Day European Health and Digital Executive Agency (HaDEA)

?? New booklet: European Reference Networks – A Success Story for Patients living with a Rare Disease We’re excited to share the release of the European Reference Networks (ERNs) booklet, highlighting how ERNs are transforming healthcare for people living with rare diseases across Europe. This booklet is a valuable resource for healthcare professionals, policymakers, patient advocates, and anyone interested in improving rare disease care. Read it here: https://lnkd.in/dVpxeZbK #RareDiseases #EuropeanReferenceNetworks #ERNs #PatientCare #rRareDiseaseDay Rare Disease Day European Health and Digital Executive Agency (HaDEA)

European Reference Networks (ERNs): Where RARE Patients & RARE Experts Connect for REAL Outcomes! ERNs bring together medical specialists across Europe to improve diagnosis, treatment, and care for rare disease patients. With 24 networks, each focusing on a specific medical field, ERNs are transforming healthcare through expertise and collaboration. ?? Discover more about ERNs here: https://lnkd.in/e9m72geE And here: https://jardin-ern.eu #ERNs #RareDiseases #EuropeanReferenceNetworks #Healthcare #PatientCare JARDIN Joint Action #EUCommission?#EUHaDEA

?? Ahead of #RareDiseaseDay, the European Commission has released two new factsheets! Learn how the EU is supporting patients, families, and healthcare professionals through its work on Rare Diseases and the European Reference Networks (ERNs). ?? Factsheet 1: EU delivering on rare diseases for patients and families ?? Factsheet 2: How the European Commission works on Rare Diseases and the European Reference Networks (ERNs) ?? Check them out and spread the word! ?? https://lnkd.in/eTHNby8i #RareDiseases #HealthEU #ERNs EU Health and Food Safety

SAVE THE DATE: AIBD + ToxiTEN e-training for residents on: “Mucous Membrane Pemphigoid (MMP), Pemphigus and drug induced reaction diseases” ?? 10th July from 4PM to 5:30 PM (CET / Paris time) Proposed program: 4 clinical cases illustrating the diagnosis and treatment - Barbara Horwath (Gr?ningen, Netherland): MMP - Pascal Joly (Rouen, France): Pemphigus - Saskia Oro (Créteil, France) and Marie Tauber (Lyon, France): 2 cases of drug induced reactions #etraining #elearning #dermatology #rareskin #toxiten #autoimmune

?? AIBD webinar coming soon! ?? 25th February 2025, 1:00 pm – 2:00 pm CET About: Animal models for AIBDs of the dermoepidermal junction Speaker: Prof. Dr. Enno Schmidt, MD Lübeck Institute of Experimental Dermatology (LIED), University of Lübeck, Lübeck, Germany Chaired by Prof. Dr. med. Matthias Goebeler, Director of the Clinic and Polyclinic for Dermatology, Venereology and Allergology, University Hospital Würzburg Organized by thematic group on AutoImmune Bullous Diseases (AIBD). ?? Register here: https://lnkd.in/dsF8txF #ernskin #webinar #dermatology #Rare #Skin #Diseases # autoimmune #bullous

Rare Disease Awareness Month! ?? Did you know that there are more than 6000 identified rare diseases? #RareDiseaseDay #ernskin #rareskin #dermatology

Myth vs. Fact: Rare Skin Diseases ?? Myth: Skin diseases are only cosmetic and don’t affect overall health. ? Fact: Many rare skin diseases cause severe pain, infections, and even life-threatening complications. They affect more than just the skin, they impact quality of life, mobility, and mental health. Let’s break the stigma and show support for those living with rare dermatological conditions. ?? Have you heard of a rare skin disease before? #RareDiseaseDay?#ernskin?#rareskin?#dermatology #skincare