Last week, our President & CEO, Larry Rubin celebrated his 1 year workaversary! Thank you Larry for everything you have done for the EFEPA!
Epilepsy Foundation Eastern Pennsylvania
非盈利组织
Philadelphia，Pennsylvania 689 位关注者
Serving Eastern PA as educators, advocates, and allies in the fight to end epilepsy.
关于我们
For 50 years, the Epilepsy Foundation Eastern PA (EFEPA) has provided support services, education, and advocacy for 15,000 people annually with epilepsy/seizure disorder and their families. The EFEPA is a non-profit 501 (c) (3) voluntary health agency whose mission it is to stop seizures and SUDEP (Sudden Unexplained Death in Epilepsy), find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies. Our primary areas of service include Philadelphia, Allentown, Wilkes-Barre, Scranton, and Lancaster. The combined population of our territory is over 6 million. The Center for Disease Control states that at least 1.65% of the population has epilepsy/seizure disorders. Thus, in the 18 counties we serve, 110,000 people have epilepsy. However, many more are significantly impacted by epilepsy in their daily lives when you include family members, caregivers, and friends in the total. All of the Counties we serve: Berks, Bucks, Carbon, Chester, Delaware, Lackawanna, Lancaster, Lehigh, Luzerne, Monroe, Montgomery, Northampton, Philadelphia, Pike, Schuylkill, Susquehanna, Wayne and Wyoming. Key programs include but are not limited to Community Education & Outreach, Epilepsy Educational Conferences & Workshops, Seizure Trainings and Recognition Programs, Legal & Medical Referrals, Children & Family Services, Adult Resource Services, Young Adult Initiative and Camp Achieve.
- 网站
-
https://www.efepa.org
Epilepsy Foundation Eastern Pennsylvania的外部链接
- 所属行业
- 非盈利组织
- 规模
- 11-50 人
- 总部
- Philadelphia，Pennsylvania
- 类型
- 非营利机构
- 创立
- 1972
- 领域
- Direct Client Services、Educational Programs for Schools, First Responders、Advocacy、Outreach、Support Groups、Seizure First Aid、Transition Planning、Socialization & Retreat Programs和Mental Health Services
地点
Epilepsy Foundation Eastern Pennsylvania员工
-
Dave Raible
Vice President, Development at Epilepsy Foundation of Eastern Pennsylvania
-
Lawrence E. Fried
Key opinion leader in pediatric epilepsy academic medicine who is passionate about embracing pharmaceutical innovation and digital technology to…
-
Denise Taylor
Managing Director, Volunteer Leader, Mentor
-
Seamus Hanrahan
Senior Accountant at Citco Fund Services
动态
-
Our friends at the Washington University are working on an IRB-approved survey study investigating patients with epilepsy/caregivers' understanding of the term consciousness vs. awareness. This project derives from ongoing updates to the International League Against Epilepsy (ILAE) terminology. If you would like to participate in the survey, visit: https://lnkd.in/gfu3CU89
-
-
Mark your calendars for this year’s Virtual Pediatric conference on April 2nd! Join us as our speakers discuss an array of topics surrounding pediatric epilepsy. Register at: https://lnkd.in/ePHjGg6q
-
-
Join us for the next virtual Seizure Recognition & First Aid Training for First Responders on Tuesday, March 25th, from 5:30-7pm. This training will teach emergency personnel how to recognize the signs and symptoms of various seizure types, administer proper first aid, and much more. Register at: https://lnkd.in/eAsk74qs
-
-
This year’s Women’s Conference website is officially LIVE! Visit https://lnkd.in/epViQD7A to learn about this year’s topics, get to know the presenters, and sign up to join us on May 4th! See you there!
-
-
TONIGHT! Don’t forget to join us this evening at 6 pm for this year’s Adult Epilepsy Conference! Join this year’s presenters to learn about navigating social security disability, neuromodulation in epilepsy, and so much more. Register now at: https://lnkd.in/e4XcZZGs
-
-
REMINDER! Don’t forget to join us next Monday, March 10th at 6 pm for this year’s Adult Epilepsy Conference! Topics include: navigating social security disability, neuromodulation in epilepsy, and so much more. Register at: https://lnkd.in/e4XcZZGs
-
-
Last week, the Michael P. Loughlin Epilepsy Community & Resource Center celebrated its one-year anniversary! Just a year ago, the MPL Center opened in Kingston, PA to bring resources and community support to epilepsy warriors local to the Northeast region. To learn more about the MPL Center, visit www.efepa.org/mpl-center/
-
-
Today is Rare Disease Day! Launched by EURORDIS in 2008, Rare Disease Day is the official international awareness-raising campaign for the 300 million people worldwide living with a rare disease. To learn more about the campaign’s efforts, visit www.rarediseaseday.org.
-
-
-
-
-
+4
-