At this year's Teens Speak Up! & Public Policy Institute in Washington DC, Camp Achieve was proudly represented by 3 teens who shared their story with congress, and advocated for epilepsy rights. Kayla (MD), Marissa (NJ), and Piper (PA) made Camp Achieve proud as they met with their state's House of Representatives and Senate offices to advocate for epilepsy initiatives like CDC Programs, a congressional Epilepsy Caucus, and a National Plan for Epilepsy. Wanna learn more? Join Kayla, Marissa, and Piper at Camp Achieve this summer - registration is open now at https://lnkd.in/eZXuVGqf
Epilepsy Foundation Eastern Pennsylvania
非盈利组织
Philadelphia，Pennsylvania 691 位关注者
Serving Eastern PA as educators, advocates, and allies in the fight to end epilepsy.
关于我们
For 50 years, the Epilepsy Foundation Eastern PA (EFEPA) has provided support services, education, and advocacy for 15,000 people annually with epilepsy/seizure disorder and their families. The EFEPA is a non-profit 501 (c) (3) voluntary health agency whose mission it is to stop seizures and SUDEP (Sudden Unexplained Death in Epilepsy), find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.
Our primary areas of service include Philadelphia, Allentown, Wilkes-Barre, Scranton, and Lancaster. The combined population of our territory is over 6 million. The Center for Disease Control states that at least 1.65% of the population has epilepsy/seizure disorders. Thus, in the 18 counties we serve, 110,000 people have epilepsy. However, many more are significantly impacted by epilepsy in their daily lives when you include family members, caregivers, and friends in the total.
All of the Counties we serve: Berks, Bucks, Carbon, Chester, Delaware, Lackawanna, Lancaster, Lehigh, Luzerne, Monroe, Montgomery, Northampton, Philadelphia, Pike, Schuylkill, Susquehanna, Wayne and Wyoming.
Key programs include but are not limited to Community Education & Outreach, Epilepsy Educational Conferences & Workshops, Seizure Trainings and Recognition Programs, Legal & Medical Referrals, Children & Family Services, Adult Resource Services, Young Adult Initiative and Camp Achieve.
- 网站
-
https://www.efepa.org
Epilepsy Foundation Eastern Pennsylvania的外部链接
- 所属行业
- 非盈利组织
- 规模
- 11-50 人
- 总部
- Philadelphia，Pennsylvania
- 类型
- 非营利机构
- 创立
- 1972
- 领域
- Direct Client Services、Educational Programs for Schools, First Responders、Advocacy、Outreach、Support Groups、Seizure First Aid、Transition Planning、Socialization & Retreat Programs和Mental Health Services
地点
Epilepsy Foundation Eastern Pennsylvania员工
-
Dave Raible
Vice President, Development at Epilepsy Foundation of Eastern Pennsylvania
-
Lawrence E. Fried
Key opinion leader in pediatric epilepsy academic medicine who is passionate about embracing pharmaceutical innovation and digital technology to…
-
Denise Taylor
Managing Director, Volunteer Leader, Mentor
-
Seamus Hanrahan
Senior Accountant at Citco Fund Services
动态
-
If you’re local to the Philadelphia area and want to show off your Purple for Purple Day this Wednesday, join EFEPA staff for a Purple Day Picnic in Washington Square park! Grab your lunch at 12 pm and hang with us under the sun while we spread awareness for epilepsy and boast our favorite shade of purple!
-
-
Join us in the Northeast for a night of fun! The MPL Center (845 Wyoming Ave in Kingston, PA) will host a game night on Saturday, March 29th for pizza, games, and a movie! RSVP to Rena Loughlin at [email protected] or 215-779-8828.
-
-
#Throwback to the Mardi Gras Gala! We had an absolute BLAST at Drexelbrook on February 21st. Thanks to our attendees and supporters, we were able to raise over $170,000! Thank YOU for all your help! Check out the photos from the Gala at: https://lnkd.in/gnj8d_XU
-
-
-
-
-
+1
-
-
Have you heard of Brain & Life Magazine? Brain & Life is published six times per year, and features stories of people living with epilepsy, brain wellness, and much more. To receive a free magazine, visit: https://lnkd.in/gsKuuRP6
-
-
Our friends at the Washington University are working on an IRB-approved survey study investigating patients with epilepsy/caregivers' understanding of the term consciousness vs. awareness. This project derives from ongoing updates to the International League Against Epilepsy (ILAE) terminology. If you would like to participate in the survey, visit: https://lnkd.in/gfu3CU89
-
-
Mark your calendars for this year’s Virtual Pediatric conference on April 2nd! Join us as our speakers discuss an array of topics surrounding pediatric epilepsy. Register at: https://lnkd.in/ePHjGg6q
-
-
Join us for the next virtual Seizure Recognition & First Aid Training for First Responders on Tuesday, March 25th, from 5:30-7pm. This training will teach emergency personnel how to recognize the signs and symptoms of various seizure types, administer proper first aid, and much more. Register at: https://lnkd.in/eAsk74qs
-
-
This year’s Women’s Conference website is officially LIVE! Visit https://lnkd.in/epViQD7A to learn about this year’s topics, get to know the presenters, and sign up to join us on May 4th! See you there!
-