Double U Triple A

A Night of Art Celebrating the Body's Resilience in the Face of Autoimmune Disease This art show is different from most. Our vision is to create an impactful evening of fine dining, art, and entertainment. Hosted by @autoimmune.alliance, we will be cohosting with a collection of artists' work in New York! Master Chef Jose Martinez (@ketocookingwithlove) will present a meticulously crafted four-course meal. Pair your dinner with our signature cocktails, wine tasting, or non-alcoholic options, accompanied by an open bar. There will be live performance while an exclusive art viewing showcases Satirev artists, curated by Chelsea and Ashlee, alongside invited artists presented by the Autoimmune Aliments Alliance. Performances will include but are not limited to poetry, article readings, opera, and an art gallery with the auction of selected works. Confirmed Artists: Mike Baker- @endodad Cameron Hardesty- @hardestyaesthetic Chelsea Hardesty- @gettingthebetterofendo Jessie Jing- @jingely Lea Ervin- @grungetta82 Verity Kerr-Morrall- @vkerr_m Ashlee Britt- @contendwithendo Clare Ellen Gregory- @_.clareellen Aimee Gill- @a.day.with.aimee Emma Gill- n/a Kristen Carlson- @kristen.carlson Alice Brunello Luise- @alicebrunelloluise_ph Amy Louise Lollback- @barbedwiredesigns More to be confirmed - if you are interested in showcasing with @satirev_projects, please email them and submit your work on their website! They accept submissions FOR FREE. Get your tickets on event brite here ?????????? https://lnkd.in/e8JRRtUR Can't make it, but want to donate to the event? You can do so here! ?????????? https://gofund.me/22a3de32 #newyork #celebrate #autoimmune #strength #art #gallery #exhibition #endometriosis #therapy #dinner #education #2025

Take a look at our news website, www.theinvisiblevoice.net. We thought it was insane that there weren't any news sites focused exclusively on the problems faced by people with chronic illnesses, especially invisible illnesses like autoimmune diseases. The Invisible Voice is a place for us to share how popular issues like healthcare policies, reproductive policies, etc have an impact on our lives. And it's also a place for us to share our stories and let the world know who we are and what we think. Follow us on Twitter @InvisiblVoice and stay tuned for our Threads and BlueSky accounts.

Thanksgiving should be a time of gratitude, love, and connection—but for those living with chronic illnesses, it can also bring major challenges that make it extremely difficult for those with chronic illnesses to have fun. However, a little thoughtfulness can make the celebration enjoyable and inclusive for everyone. Here are some tips to ensure a safe and fun Turkey Day: ?? Food Matters: Accommodate dietary needs with allergen-friendly dishes and clear labels. ?? Create Rest Zones: Offer a quiet space for guests who may need to recharge. ?? Plan Low-Energy Activities: Choose inclusive games or relaxing traditions like sharing memories. ? Flexible Timing: Host at a time that suits energy levels and respect when guests need to leave early. ?? Prioritize Hygiene: Keep the gathering germ-free to protect immunocompromised guests. ?? Offer Mocktails: Include non-alcoholic options for guests avoiding alcohol. A little kindness goes a long way in making everyone feel welcome. Let’s celebrate togetherness this Thanksgiving! Follow @doubleutriplea on Instagram to learn how you can help people with autoimmune diseases live happy and healthy lives at school, in the workplace, and at the doctor's office.

Autoimmune diseases come in many forms, with some so rare that they affect only a handful of people in the entire country. These conditions often go unnoticed because their symptoms are invisible or misunderstood, making early diagnosis and treatment incredibly important. For those living with rare autoimmune diseases, life can be a constant battle with their own immune system, but awareness and support can make all the difference. Here are a few of the rarest autoimmune diseases and what you should know about them: 1. Stiff-Person Syndrome (SPS) – Causes severe muscle stiffness and spasms, often leading to disability. Early diagnosis and treatment are crucial to improve quality of life and reduce long-term disability. 2. Paraneoplastic Pemphigus – A skin condition linked to cancer, causing painful blisters and sores. Treatment usually focuses on managing the underlying cancer. 3. Goodpasture Syndrome – Attacks the kidneys and lungs, leading to severe organ damage. Without prompt treatment, it can cause life-threatening kidney failure and lung hemorrhages. 4. Relapsing Polychondritis (RP) – Inflammation of cartilage, affecting joints, ears, and respiratory system. Symptoms can vary, and the disease often relapses, making it challenging to diagnose and manage. 5. Autoimmune Hepatitis Type 2 – An autoimmune attack on the liver, potentially leading to cirrhosis. This rare form primarily affects young women. 6. Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) – Weakness and sensory loss from nerve damage. While treatments can help manage symptoms but some experience permanent nerve damage. 7. Hemophagocytic Lymphohistiocytosis – An overactive immune system causing widespread inflammation. Early detection and aggressive treatment are necessary to prevent organ failure and life-threatening complications. 8. Wegener's Granulomatosis – Affects blood vessels, causing inflammation in the kidneys, lungs, and respiratory system. Follow @doubleutriplea on Instagram to learn how you can help people with autoimmune diseases live happy and healthy lives at school, in the workplace, and at the doctor's office.

For our first episode of Spoonie Stories, meet Chandra Heard, also known on Instagram as @wolfyspoon90. For over 34 years, she has been battling lupus — an illness known for its unpredictability and danger if left untreated. From a young age, she has faced medical gaslighting, misunderstanding, and stigma. But through it all, she learned how to fight back against the despair and find a way to view herself in a new light. Now, she helps lead the Gamma Pi Rho Lupus Society, a sorority for women suffering from lupus. Hear part of her story today, and her inspiring message for those who might be diagnosed tomorrow. Follow @doubleutriplea on Instagram to learn how you can help people with autoimmune diseases live happy and healthy lives at school, in the workplace, and at the doctor's office.

Kim Kardashian has been candid about her journey with autoimmune diseases. She’s shared how her symptoms began with debilitating hand pain, which left her unable to perform even basic tasks like holding a toothbrush or picking up her phone. After initially fearing lupus or rheumatoid arthritis, she was diagnosed with psoriatic arthritis—a condition that can cause chronic pain and stiffness. Through her platform, Kim not only advocates for better understanding of these invisible diseases but also emphasizes the importance of self-care and proper medical treatment. She has adopted a plant-based diet and experimented with natural remedies, showcasing how lifestyle adjustments can play a role in managing symptoms. Follow @doubleutriplea on Instagram to learn how you can help people with autoimmune diseases live happy and healthy lives at school, in the workplace, and at the doctor's office.

At Double U Triple A, we believe in bold action and dedicated advocacy to improve the lives of those living with autoimmune diseases. Over the past year, we’ve made incredible strides in raising awareness, empowering communities, and driving policy change. Here’s a snapshot of what we’ve accomplished together: ? Legislative Action in Maryland: We introduced the Employee Autoimmune Disorder Protection Act (HB1084), a groundbreaking bill to protect autoimmune workers from workplace discrimination. This is a monumental step toward equitable rights in the workplace! ? Massive Social Media Reach: Through strategic campaigns and authentic storytelling, we’ve reached over 50,000 people on social media platforms. These connections amplify our message and bring autoimmune issues to the forefront of public discourse. ? Advocacy on the Ground: Our team has grown to include 60+ dedicated volunteers who serve as passionate advocates across communities. Their work is the backbone of our movement, spreading awareness and driving impactful change. ? Championing School Safety in NYC: In New York City, we proudly launched the New York State School Safety Act, advocating for safer school environments for students living with autoimmune diseases. ? Established a 501(c)(3) Nonprofit: We founded The Autoimmune Alliance, a nonprofit organization that raises awareness about autoimmune diseases while providing essential support groups for students navigating life with these challenges. We couldn’t have done this without the support of our community, volunteers, and allies. Together, we’re creating a world where autoimmune individuals can thrive without barriers. Thank you for standing with us—this is just the beginning! Follow @doubleutriplea on Instagram to learn how you can help people with autoimmune diseases live happy and healthy lives at school, in the workplace, and at the doctor's office.

Living with an autoimmune condition in the workplace can bring unique challenges, but there are ways to protect yourself and stay empowered. It’s crucial to understand your rights and be strategic about when and how you disclose your condition, especially if accommodations aren’t immediately needed. Remember, your health and stability come first. 1. Unless you need a special accommodation to do your job, keep your disability secret. Your boss and colleagues are likely to treat you differently, and you'll be first on the chopping block when layoffs occur. 2. Documentation is your best ally. Keep detailed, dated records of any accommodation requests and responses from your employer. This paper trail ensures you’re covered and provides essential proof if issues arise down the line. 3. Take time to learn your state’s specific laws around workplace accommodations, and consider consulting an attorney before making formal requests. Being informed not only empowers you but can make a world of difference if you face resistance. 4. BEFORE you make the request or even inform your job of the disability you should have already consulted a lawyer and received their advice. If anything fishy happens after that you will have even better documentation. In addition, you should also have the doctor's note before you make the request. Have you faced challenges in the workplace as an autoimmune worker? Share your story below! Follow @doubleutriplea to learn how you can help people with autoimmune diseases live happy and healthy lives at school, in the workplace, and at the doctor's office.

Protecting autoimmune college students is a must. Right now, over 30% of autoimmune college students drop out of school. Most of them drop out NOT because of their illness, but because their college refuses to give them the accommodations they need to thrive. At the top of the list is remote learning. For students with multiple sclerosis, for example, walking can be extremely difficult. In many cases, walking to and from class is impossible. Sign our petition at the link in our bio to make sure Congress knows that disabled students and workers deserve the same success and support as everyone else! Follow @doubleutriple to learn how you can help people with autoimmune diseases live happy and healthy lives at school, in the workplace, and at the doctor's office.

The Autoimmune Alliance, our 501(c)3 wing working with autoimmune children, has finally joined Twitter! Hop onto our account to keep up with all of our work at colleges and high schools nationwide. Follow us @autoimmune2024, and follow @doubleutriplea to learn how you can help people with autoimmune diseases live happy and healthy lives at school, in the workplace, and at the doctor's office.