CurePSP

CurePSP

非盈利组织

New York,New York 1,479 位关注者

To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.

关于我们

CurePSP is the leading non-profit organization dedicated to the awareness, care and cure for 3 neurodegenerative diseases: progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). As a catalyst for new treatments and a cure, we establish important partnerships and fund critical research. Through our advocacy and support efforts, we enhance education, care delivery, and quality of life for people living with PSP, CBD and MSA and their families. Science, community, and hope are at the heart of CurePSP’s mission and all of our services. CurePSP is a registered 501(C)(3) charity within the United States. EID: 52-1704978. Our work is possible thanks to the generous donations and support of those in our community and beyond.

网站
https://psp.org/
所属行业
非盈利组织
规模
11-50 人
总部
New York,New York
类型
非营利机构
创立
1990

地点

  • 主要

    325 Hudson Street

    4th FL

    US,New York,New York,10013

    获取路线

CurePSP员工

动态

  • 查看CurePSP的公司主页,图片

    1,479 位关注者

    Kristophe Diaz, Jennifer Brummet and Larry Golbe attended the 2024 Tau Consortium Investigators Meeting hosted by The Rainwater Charitable Foundation. The TCIM brought together leading experts and partner organizations to discuss key topics relevant to primary tauopathies, including updates on the drug discovery pipeline, clinical trials and the latest research on primary tauopathies. The event provided an invaluable opportunity to exchange information with prominent figures in the field. #CurePSP #BecauseHopeMatters #Research #PSP #MSA #CBD

    查看The Rainwater Charitable Foundation的公司主页,图片

    1,602 位关注者

    Last month, we had the pleasure of hosting our #TauConsortium investigators meeting (TCIM). The event kicked off with a patient-focused spotlight on ReDLat Dementia, a multi-partner initiative expanding dementia research in Latin America, and included an awe-inspiring session narrated by documentary photographer Alex Kornhuber showcasing the lived experiences of dementia patients and their families.? Science can be competitive and isolating, but our TCIM is a powerful reminder that collaboration is essential to advance research into primary tauopathies.? ? Read more about this year’s program: https://lnkd.in/etaG-QBw

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  • 查看CurePSP的公司主页,图片

    1,479 位关注者

    ?? Reminder: Don’t miss the second expert-led webinar as part of #Neuro2024! This session will offer a comprehensive look into PSP and CBS, delivering valuable insights from a leading expert in the field. ??? Friday, October 11th, 11AM Dr. Larry Golbe will explore the epidemiology and treatment of PSP and CBS. *Please note that this webinar is technical and intended for a specialized audience. Register here: https://lnkd.in/gsdTQzVP #CurePSP #Research #Toronto #Neuro #Researcher #ResearchCommunity #AcademicCommunity

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  • 查看CurePSP的公司主页,图片

    1,479 位关注者

    Healthcare professionals, don’t miss out! Join CurePSP and the Parkinson's Foundation for an Advanced Team Training on October 25-26, 2024, in Minneapolis, MN! This in-person, accredited course will focus on interprofessional care for people with atypical Parkinsonism such as PSP, CBD and MSA. Improve your skills in team collaboration, assessments and learn treatment strategies. *Advanced Team Training is for clinicians who have attended a Parkinson’s Foundation Team Training in the past. If you have not attended in the past, a general Team Training will be held the three days prior to the Advanced Team Training at the same location in Minneapolis. Learn more and register today: Parkinson.org/TeamTraining #CurePSP #AtypicalParkinsonism #HealthcareProfessionals #NeurodegenerativeDisease #MovementDisorders

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  • 查看CurePSP的公司主页,图片

    1,479 位关注者

    Mark your calendars for October 8, 2024, and join us for an informative webinar featuring Anne-Marie Wills, MD, MPH, and Sonja Scholz, MD, PhD, as they delve into the latest breakthroughs in understanding PSP, CBD and MSA. Discover how genetic innovations are opening new insights into these neurodegenerative diseases and how the new CurePSP Genetics Program is uncovering the genetic factors behind PSP, CBD and MSA. ?? Submit your questions via registration or email at [email protected]. Register today: https://lnkd.in/eU_jGpCz #CurePSP #PSP #CBD #MSA #GeneticResearch #Webinar

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  • 查看CurePSP的公司主页,图片

    1,479 位关注者

    Join #TeamCurePSP at the 2025 Big Sur International Marathon! ?? Experience one of the most breathtaking marathon courses in the world while raising awareness. Whether you're a seasoned runner or just starting out, this is your chance to make a real impact. Every step you take helps raise vital awareness and support for those affected by PSP, CBD and MSA. ?? Deadline: Sunday, October 13, 2024 Apply today! https://lnkd.in/eqsHpV3W #CurePSP #BecauseHopeMatters #RunThisCoast #BigMarathon #NonProfit #RunForACause #RunStrong #RunningCommunity

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  • 查看CurePSP的公司主页,图片

    1,479 位关注者

    We’re just weeks away from #Neuro2024! Join us virtually from October 24-25 to be part of the global conversation on the latest breakthroughs in PSP and CBD research. ?? This is an invaluable opportunity to hear from leading experts and stay informed about cutting-edge developments in the field. Don’t miss out—register today and secure your virtual seat! https://lnkd.in/ePGxJqm6 #CurePSP #Research #Toronto #Neuro #Researcher #ResearchCommunity #AcademicCommunity

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  • 查看CurePSP的公司主页,图片

    1,479 位关注者

    The causes of PSP remain one of the biggest mysteries of the disease. Dr. Jessica Rexach and her team at UCLA have been scouring sequencing data from over 10,000 individuals searching for clues in the DNA that could explain how changes in the immune system might influence why some individuals develop the disease. Dr. Rexach spoke to CurePSP about the crucial role that the immune system seems to play in disease progression, the intriguing similarities and differences between PSP and Alzheimer's, and what can be learned from the success of immune system therapeutics in cancer and autoimmune disease. Listen to the full episode of The Collective Mind here: https://lnkd.in/eVck4X8S #CurePSP #BecauseHopeMatters #Podcast #TheCollectiveMind #PSP #MSA #CBD

  • CurePSP转发了

    查看The Rainwater Charitable Foundation的公司主页,图片

    1,602 位关注者

    We’re always searching for ways to help advance neurodegenerative research, such as CurePSP’s Pathway and Pipeline Grant Program. This program encourages researchers’ pursuit of new ideas that will help further our understanding of primary tauopathies by supporting the production of pilot studies that can eventually qualify for larger grants. It’s our hope that our contribution will help investigators explore their potentially groundbreaking ideas.? ? Learn more and apply for the program before October 3: https://lnkd.in/ebzrc7_Z

    • A calendar icon appears above the text: Applications for CurePSP's Pathway and Pipeline Grant Program are due October 3
  • 查看CurePSP的公司主页,图片

    1,479 位关注者

    ?? Final Reminder for Submissions! This Thursday marks the deadline for submitting proposals for CurePSP's Pathway and Pipeline Grant Program. Researchers in the field of neurodegeneration are encouraged to take advantage of this opportunity to secure funding for their innovative projects. Whether your focus is on the fundamental neurobiology of PSP and CBD or the development of new therapeutics and biomarkers, this is a chance not to be missed! Deadline: Thursday, October 3, 2024 at 5 pm ET. https://lnkd.in/eU8xbtAf #CurePSP #BecauseHopeMatters #ResearchGrant #Research #PSP #CBD #CurePSPGrants

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  • 查看CurePSP的公司主页,图片

    1,479 位关注者

    We invite medical and research professionals to join us for two expert-led pre-event webinars as part of #Neuro2024. ??? Friday, October 4th, 11AM Dr. Tony Lang will present on the history, clinical features, and pathology of PSP and CBD. ??? Friday, October 11th, 11AM Dr. Larry Golbe will explore the epidemiology and treatment of PSP and CBS. *This event is technical and intended for a medical and research audience. Register here: https://lnkd.in/gsdTQzVP #CurePSP #Research #Toronto #Neuro #Researcher #ResearchCommunity #AcademicCommunity

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