At CureNFwithJack, our vision is to create a world where neurofibromatosis no longer exists. Through research, awareness, and unwavering support, we aim to bring hope to every individual and family impacted by NF. Together, we can turn this vision into reality. #CureNFwithJack #NFawareness #HopeForACure #EndNF
CureNFwithJack
资金募集机构
Milton,Georgia 354 位关注者
To find an effective treatment or cure for NF through the funding of research
关于我们
NF research and awareness is the primary reason we started CureNFwithJack. It is our intent to cure NF and associated disorders through raising awareness and dollars. We host three annual golf tournaments and other events nationwide as well as support other initiatives including Cupids Undie Run and local NF walks.
- 网站
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CureNFwithJack.org
CureNFwithJack的外部链接
- 所属行业
- 资金募集机构
- 规模
- 11-50 人
- 总部
- Milton,Georgia
- 类型
- 非营利机构
- 创立
- 2011
地点
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主要
730 Autumn Close
US,Georgia,Milton,30004
CureNFwithJack员工
动态
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?? Spread a little luck and a lot of love for NF patients and their families. We’re making progress with A Lucky Leap to End NF—but we’re not done yet! A gift from you and a friend can help fund a biomarker project that will revolutionize NF1 care. Donate & tag a friend to join the mission! Together, we can make early detection easier, treatments better, and hope stronger. https://lnkd.in/egGC4ueu #CureNFwithJack #EndNF #NF1
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Happy Women's History Month! All month long, we’re celebrating the incredible women who have shaped the future of science and medicine—starting with some of the incredible women who work with CureNFwithJack. Their dedication, passion, and hard work are driving change and bringing hope to NF families everywhere. ? Swipe to see these amazing women! ? #WomensHistoryMonth #EndNF #CureNFwithJack
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Happy Birthday to two very special people—Grace (Jack’s sister) & Mary Anne (Jack’s Grandmother)! Grace and Mary Anne are the sweetest birthday buddies, sharing not just a special day but a lifetime of love. Wishing them both a day filled with joy, laughter, and all the love they bring to the world! #BirthdayBuddies #CureNFwithJack #FamilyLove
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+1
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??With a little luck (and a lot of science), we’re taking a Lucky Leap to End NF! To celebrate Jack’s 20th year, CureNFwithJack is funding a biomarker project with the Children’s Tumor Foundation. ?? Donate $20, $120, $220, $520, $1,020, or any amount to support this life-changing research. ?? Share to spread the word! Let’s honor Jack’s birthday and take this Lucky Leap together! Click the link to donate today! https://lnkd.in/egGC4ueu #EndNF #CureNFwithJack #NF1
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1 in 10 Americans is living with a rare disease, yet too many face their journey without answers or support. Rare Disease Day is a global call to change that. Today, we stand with the 300 million people worldwide affected by rare diseases—raising awareness, advocating for research, and building a future where no one feels alone. ?? #RareDiseaseDay #EndNF #RareButStrong
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Be sure to checkout Mike Flynn’s heartfelt story about his daughter Izzy and their journey with neurofibromatosis. His strength, love, and determination to raise awareness for NF is truly inspiring. Head to our blog at https://lnkd.in/eJacdWGM to read more and join the fight for a cure! #CureNFwithJack #EndNF #NFawareness
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Neurofibromatosis (NF) is classified as a rare disease, yet it’s one of the most common neurogenetic disorders—more common than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntington’s Disease combined. ?? While NF affects 1 in 2,500 people, funding for research and treatment remains scarce. This Rare Disease Month, let’s change that. Donate, share, and advocate to help find a cure for NF and all rare diseases! #EndNF #RareDiseaseDay #RareButNotAlone
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Happy Birthday, Luke! ???? Wishing you a day filled with joy, love, and all the good vibes. Here’s to another year of amazing adventures and making unforgettable memories! ?? #HappyBirthday
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Did you know February is Rare Disease Month because it’s the rarest month of the year? With only 28 days (or 29 in a leap year), it symbolizes the uniqueness of rare diseases and the millions of people worldwide who face them. ?? Neurofibromatosis (NF) is one of thousands of rare genetic conditions. NF has no cure, and research is severely underfunded despite its impact. Join us in raising awareness and advocating for NF and all rare diseases this month! #RareDiseaseDay #RareButNotAlone #EndNF
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