CureNFwithJack

At CureNFwithJack, our vision is to create a world where neurofibromatosis no longer exists. Through research, awareness, and unwavering support, we aim to bring hope to every individual and family impacted by NF. Together, we can turn this vision into reality. #CureNFwithJack #NFawareness #HopeForACure #EndNF

?? Spread a little luck and a lot of love for NF patients and their families. We’re making progress with A Lucky Leap to End NF—but we’re not done yet! A gift from you and a friend can help fund a biomarker project that will revolutionize NF1 care. Donate & tag a friend to join the mission! Together, we can make early detection easier, treatments better, and hope stronger. https://lnkd.in/egGC4ueu #CureNFwithJack #EndNF #NF1

Happy Women's History Month! All month long, we’re celebrating the incredible women who have shaped the future of science and medicine—starting with some of the incredible women who work with CureNFwithJack. Their dedication, passion, and hard work are driving change and bringing hope to NF families everywhere. ? Swipe to see these amazing women! ? #WomensHistoryMonth #EndNF #CureNFwithJack

Happy Birthday to two very special people—Grace (Jack’s sister) & Mary Anne (Jack’s Grandmother)! Grace and Mary Anne are the sweetest birthday buddies, sharing not just a special day but a lifetime of love. Wishing them both a day filled with joy, laughter, and all the love they bring to the world! #BirthdayBuddies #CureNFwithJack #FamilyLove

??With a little luck (and a lot of science), we’re taking a Lucky Leap to End NF! To celebrate Jack’s 20th year, CureNFwithJack is funding a biomarker project with the Children’s Tumor Foundation. ?? Donate $20, $120, $220, $520, $1,020, or any amount to support this life-changing research. ?? Share to spread the word! Let’s honor Jack’s birthday and take this Lucky Leap together! Click the link to donate today! https://lnkd.in/egGC4ueu #EndNF #CureNFwithJack #NF1

1 in 10 Americans is living with a rare disease, yet too many face their journey without answers or support. Rare Disease Day is a global call to change that. Today, we stand with the 300 million people worldwide affected by rare diseases—raising awareness, advocating for research, and building a future where no one feels alone. ?? #RareDiseaseDay #EndNF #RareButStrong

Be sure to checkout Mike Flynn’s heartfelt story about his daughter Izzy and their journey with neurofibromatosis. His strength, love, and determination to raise awareness for NF is truly inspiring. Head to our blog at https://lnkd.in/eJacdWGM to read more and join the fight for a cure! #CureNFwithJack #EndNF #NFawareness

Neurofibromatosis (NF) is classified as a rare disease, yet it’s one of the most common neurogenetic disorders—more common than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntington’s Disease combined. ?? While NF affects 1 in 2,500 people, funding for research and treatment remains scarce. This Rare Disease Month, let’s change that. Donate, share, and advocate to help find a cure for NF and all rare diseases! #EndNF #RareDiseaseDay #RareButNotAlone

Happy Birthday, Luke! ???? Wishing you a day filled with joy, love, and all the good vibes. Here’s to another year of amazing adventures and making unforgettable memories! ?? #HappyBirthday

Did you know February is Rare Disease Month because it’s the rarest month of the year? With only 28 days (or 29 in a leap year), it symbolizes the uniqueness of rare diseases and the millions of people worldwide who face them. ?? Neurofibromatosis (NF) is one of thousands of rare genetic conditions. NF has no cure, and research is severely underfunded despite its impact. Join us in raising awareness and advocating for NF and all rare diseases this month! #RareDiseaseDay #RareButNotAlone #EndNF