CureARS

We appeared on this morning’s Living Oklahoma show, speaking on the importance of raising awareness for rare disorders like mitochondrial disease for funding and research and shared details about this weekend’s Unique Jeans event. Thank you for having us on the show! https://lnkd.in/gekCU-nf Hope to see you at the event. There is still time to grab tickets or contribute. ?? Contribute to Unique Jeans + CureARS project: https://lnkd.in/gSUbv3Xc ??? If you still need tickets, grab them here: https://lnkd.in/gX-Ac47a #aars2 #mito #facesofrare #showyourstripes #oklahomarare #mitochondrialdisease #curears #nord #RareDiseaseDay

?? Join Us for the CHOC & CureARS Symposium – February 7th! We’re just days away from the mtARS Symposium on Friday, February 7th, from 10 AM - 5 PM EST, and we couldn’t be more excited to highlight three of our incredible speakers! ?? Dr. Amy Goldstein – Clinical Director of Mitochondrial Medicine at Children’s Hospital of Philadelphia ?? Dr. Rita Horvath – Director of Research at the University of Cambridge ?? Dr. Ethan Perlstein – CEO/Founder of Perlara and Curetopia This symposium brings together leading experts, researchers, and patient advocates to advance our understanding of mtARS-related mitochondrial diseases and pave the way for future treatments. Don’t miss this opportunity to learn, connect, and be part of the movement driving change! ?? Register now: https://lnkd.in/eUXkJC3s CHOC Children's Children's Hospital of Philadelphia Perlara PBC Curetopia University of Cambridge Let’s make a difference—together! ?? #CureARS #MitochondrialDisease #RareDisease #ars2science2025

REMINDER: CureARS Scientific Symposium ?? Join us on February 7, 2025, for a virtual event bringing together researchers, clinicians, and advocates to advance understanding and treatment of mitochondrial aminoacyl-tRNA synthetase (mtARS) disorders. Location: Zoom Registration Link: https://lnkd.in/euiHsbHE CHOC Children's #ars2science2025 #mitochondrialdisease #researchingrarefundingacure

Exciting news in the rare disease world! Our friend, scientist extraordinaire Ethan Perlstein, has launched a new company called Curetopia. Their first mission? Finding a treatment for my daughter, Aubrie's AARS2 gene mutation. Ethan's already achieved success with a drug repurposing project for FARS2 and NARS1 (other ARS genes), and his passion extends to the entire ARS gene family. Want to learn more? Ethan will be presenting at our upcoming symposium in February! ? Don't miss this chance to hear about Curetopia's groundbreaking work. Register for the symposium here: https://lnkd.in/eYmXJRvv Learn more about Curetopia: https://lnkd.in/eGtBBaPk

?? We’re excited to share that the United Mitochondrial Disease Foundation (UMDF) has launched a new page dedicated to the mitochondria tRNA synthetase (mtARS) genes! ?? This resource provides valuable insights into these essential genes and how they play a role in mitochondrial function and related diseases. At CureARS, we’re committed to advancing research and raising awareness for the 19 mtARS genes. This new page is a great step in spreading knowledge and support for families and researchers alike. Check it out to learn more about the science behind mtARS genes and the work being done in the mitochondrial disease community! https://lnkd.in/epquJmVi #MitochondrialDisease #tRNASynthetase #mtARS #CureARS #UMDF

CureARS is honored to be selected as a recipient of the Chan Zuckerberg Initiative Rare As One grant! Thank you to the CZI team for believing in our mission—this is just the beginning! https://lnkd.in/e_3RC6dC #RareAsOne #CureARS #mtARS #RareDisease #mitochondrialdisease

Thank you Arielle Jerrels! ??

Cumberland City Hall in Maryland is lit up for World Mitochondrial Disease Week! #lightupformito #worldmitoweek2024

Bridgewater Municipal Building in NJ is GREEN tonight to raise awareness for World Mitochondrial Disease Week! ??????#lightupformito #worldmitoweek2024