Cerebral Palsy Alliance Research Foundation

Our partners at Cerebral Palsy Research Network (CPRN) recently hosted “MyCP Webinar: Shaping Health in Cerebral Palsy Together”, discussing: ?? “Patient-centered” healthcare & research ?? Learning health networks ?? The concept of co-production ?? Partner engagement in CPRN ?? Why does this matter? Co-production ensures that research reflects real-life priorities, leading to more meaningful outcomes for people with CP and their families. It may seem like an ambitious goal, but it’s a necessary step toward real change — and YOU can be part of it. ?? Watch the full discussion below #CerebralPalsy #CPResearch #CoProduction #CPCommunity #Inclusion #CPRN #CPARF #Accessibility

?? March is Cerebral Palsy Awareness Month! ?? Cerebral palsy (CP) is the most common lifelong physical disability, affecting over 18 million people worldwide. This month, we’re amplifying voices, driving progress, and taking action to support groundbreaking research and life-changing technology for people with CP. Will you join us in making a difference? ?? Learn 5 easy ways to get involved this month: https://lnkd.in/eEaUiN_s #CPAwarenessMonth #CerebralPalsy #AccessibilityForAll #InclusionMatters #ResearchMatters #CPARF

Catch the replay of last night’s insightful town hall from our partners at Cerebral Palsy Research Network (CPRN)! The ethics of using AI for medical breakthroughs was discussed, focusing on cerebral palsy, data ownership, and informed consent. ??Watch to hear diverse perspectives on the evolving role of AI in healthcare: https://lnkd.in/ePPCtXMz #CerebralPalsy #AIinMedicine #EthicsInAI #DataOwnership

?? Attention Gamers with Disabilities in Nevada! ?? Our friends at the Nevada Assistive Technology Resource Center (NATRC) at the University of Nevada, Reno are launching a brand-new user group focused on adaptive technology in gaming. They’re looking for Nevada-based participants to join up to twice-monthly meet-ups and help get the conversation rolling! Expect to explore adaptive tech through demos, discussions, and sharing what works best for you—whether you're experienced or just curious! Contact: ?? Evan Smith (Peer Group Organizer) – [email protected] ?? Scott Youngs (NATRC Director) – [email protected] #AccessibleGaming #GameOn #CPARF #NevadaGamingCommunity

?? Give a Valentine’s Day gift that changes lives! ?? This year, skip the usual flowers and chocolates—send a sweet & meaningful e-card that spreads love while supporting ground-breaking research and innovative technology for people with cerebral palsy and other disabilities! Your love can power breakthroughs. Your gift can change what’s possible. Purchase today and schedule it to arrive just in time to surprise someone special! ?? Choose Your E-Card Now: https://lnkd.in/egQhfg7G #ValentinesDay #GalentinesDay #GiveBack #SupportResearch #CerebralPalsy #GiveWithLove

Our friends at Cerebral Palsy Research Network (CPRN) are bringing back their Annual CP Awareness Photo Contest, and we’re excited to help spread the word! This is your chance to share meaningful moments from your life, showcase the voices and experiences within the CP community, and raise awareness through powerful imagery. Submit your photo by March 10, 2025 for a chance to win great prizes and be featured in CPRN’s communications and resources. ?? Enter now: https://lnkd.in/dtPC4qMZ #CerebralPalsy #CPAwareness #PhotoContest #CPCommunity #Inclusion #DisabilityRepresentation

Investing in medical research is investing in people’s futures. The world wasn’t built for disabled people, but every study brings us closer to the inclusive world we envision. Research is our way forward. It drives: ? Better treatments that improve lives ? Assistive technologies that foster independence ? Groundbreaking discoveries that challenge outdated limitations But research doesn't fund itself. It needs consistent support to thrive — and to deliver the breakthroughs that matter most. Here are three steps you can take: 1?? Contact your elected officials and demand funding for vital research continues. 2?? Ask your friends and family to do the same. 3?? Support our work by becoming a monthly donor. As a Changemaker, you'll have a say in future research projects we directly fund. ??cparf.org/changemakers Together, we can fuel progress and show the world that investing in people is always the right choice. #FundTheFuture #MedicalResearchMatters #Changemakers #DisabilityRights #CPARF

Ready to cross the finish line of the world's largest marathon? Applications are now OPEN to join CPARF’s Athletes for Accessibility team in the 2025 TCS New York City Marathon! ????♀???♂??? This is your chance to: ? Experience the thrill of running through all five NYC boroughs ? Make every mile count by raising funds for groundbreaking research and life-changing technology for people with CP and other disabilities. Spots are limited, so don’t wait! Join us to make a difference and be part of something extraordinary. ?? APPLY NOW: cparf.org/nyc-marathon #AthletesForAccessibility #NYCMarathon #RunForACause #GoTheDistance

We Hear You, Inc was a standout participant in our 2024 tech accelerator, Remarkable US! Their innovative solutions are paving the way to a more accessible world for people with CP and other disabilities. Accessibility truly begins with advancements like these. Thank you for helping create a future where inclusion and accessibility are the norm, not the exception! ?? #WeHearYouOpensDoors #AccessibilityForAll #CPARF #InnovationInAction

Join CPARF's Changemakers and help drive groundbreaking research and transformative innovations. As a monthly supporter, you’ll have the chance to vote on a research project and help shape the future of research that matters the most to you. We can imagine a better future for children and adults with disabilities. Let’s create it together! Become a Changemaker today: cparf.org/changemakers #MakeADifference #SupportResearch #InclusionMatters #AssistiveTech #TogetherWeCan