November 21 is World Pancreatic Cancer Day! Today, we recognize and celebrate patients and caregivers fighting #pancreaticcancer. To learn more about this disease and the role clinical research can play as a treatment option, Read Allison Kuban's story as a clinical trial participant here: https://hubs.li/Q02XPJbD0
CISCRP
研究服务
Boston，MA - Massachusetts 5,138 位关注者
A nonprofit dedicated to informing the public about clinical research and developing health literacy resources.
关于我们
CISCRP is a first-of-its-kind 501(c)3 nonprofit organization dedicated to educating and informing the public about clinical research participation and the role that each party plays as a participant in the process. CISCRP’s portfolio of services aim to understand and meet the health literacy needs of patients, participants, and clinical research professionals. CISCRP’s services support patient engagement and clinical trial education for study volunteers, clinical research stakeholders, and sponsor organizations. As an independent, neutral, nonprofit organization dedicated to community outreach and education, CISCRP is uniquely positioned to assist with a variety of services including developing plain language educational materials for patients, organizing, hosting, and facilitating patient advisory boards, conducting research to better understand public perceptions about research, increasing awareness through grassroots community events, and offering a free service for finding clinical trials. CISCRP’s staff and Board of Advisors have highly diverse backgrounds - from the clinical research, healthcare, and advocacy communities. CISCRP’s funding comes from a wide variety of sources including individual donors, government and research institutions, foundations, and corporations.
- 网站
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https://www.ciscrp.org
CISCRP的外部链接
- 所属行业
- 研究服务
- 规模
- 11-50 人
- 总部
- Boston，MA - Massachusetts
- 类型
- 非营利机构
- 创立
- 2004
- 领域
- Clinical Research Education、Communicating Clinical Trial Results、Patient Advocacy、Public Health、Awareness Building和Health Literacy
地点
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主要
获取路线
One Liberty Square
Suite 1100
US，MA - Massachusetts，Boston，02109
CISCRP员工
动态
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To enhance the participant experience in clinical research, our team has the expertise to create plain language documents that make each step of the clinical trial process accessible and easy-to-understand. Learn more at: https://hubs.li/Q02YXCHg0
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CISCRP has a library of medical hero stories where individuals share their experience as a rare disease advocate and their critical involvement in clinical research. Partner with us to share the importance of including individuals with rare diseases in clinical trials. Learn more about partnering with us: https://lnkd.in/e7Ptf-8
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The CISCRP team was in Las Vegas, NV on Friday, November 15 to exhibit and host a panel discussion during the 2024 Impact Summit as part of our Journey to Better Health - AWARE for All program. A special thank you to those who visited our table and attended our panel discussion. To learn more about our events, visit https://hubs.ly/Q02YXtCv0
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November is Pulmonary Hypertension Awareness Month! Read Brittany Foster, SHRM-CP's #medicalhero story to learn more about this condition and the importance of advocating for yourself in your healthcare journey. View here: https://hubs.li/Q02XPx0_0
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Partner with CISCRP to bring educational resources about the need for more diverse representation in clinical research directly to underrepresented communities. Join our media campaign: https://lnkd.in/e7Ptf-8
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The CISCRP team will be in Las Vegas, NV tomorrow for the Impact Summit. Stop by our exhibit table to learn more about our services and don’t miss our panel discussion about the importance of clinical research. Learn more: https://bit.ly/4ey5rQZ
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We develop award-winning content specifically for communities underrepresented in clinical research. We extensively user-test our materials to ensure the materials are easy-to-understand and culturally appropriate. Learn more about utilizing our content for your research site: https://lnkd.in/gPN4hjng
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What is a plain language protocol synopsis and why is it important? CISCRP Medical Writer Zack Fey spoke on best practices for developing plain language protocol synopses at the American Medical Writers Association (AMWA) conference in October 2023. Learn how CISCRP’s expert #medicalwriting team can help create effective plain language communications here: https://lnkd.in/esp7CUq and AMWA members can view the full summary of Zack’s presentation in the AMWA Journal here: https://lnkd.in/eavAZYzw
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November is National Diabetes Awareness Month. According to the CDC'S most recent data, 38.4 million people—or 11.6% of the U.S. population—have diabetes. Learn more about #diabetes and the role clinical research can play as a treatment option by visiting our Medical Hero library. View stories here: https://hubs.li/Q02XPM2d0
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