CHES Foundation, Inc.

We're celebrating #RareDiseaseDay! Our Friday Digital Digest, edition #93 is live! With a wide variety of topics and articles featuring: ?? Factor Product Recall for Altuviiio ?? Post-Partum Hemorrhages ?? Gene Therapy Discontinuation for Hem B Our next Young Adults Coalition meeting will be March 11th for all women 18+ Register with us using this link: https://bit.ly/41f3YcK #CHESFoundation #hemophiliaA #hemophiliaB #nonprofit #hemophilia #bleedingdisorders #glanzmannthrombasthenia #hemophiliacommunity #WWBD #UltraRareBleedingDisorders #plateletdisorders #vWD #HemophiliaAwareness #healthcare

We’re a proud supporter of the 2025 Rare Disease Summit to promote good health and advocacy in the Rare Bleeding Disorders community. Executive Director, Janet Brewer and our Advocacy and Outreach Director Heather Case will be available at the CHES Foundation table Tuesday, February 25th from 10a-3p, ET. https://lnkd.in/ezPDp_95 #CHESFoundation #hemophiliaA #hemophiliaB #nonprofit #plateletdisorders #hemophiliacommunity #WWBD #glanzmannthrombasthenia #hemophilia #vWD #healthcare #UltraRareBleedingDisorders #HemophiliaAwareness #bleedingdisorders

Happy Valentine's Day from CHES Foundation! Our My Bloody Valentine was a huge success last night, which is why we're going to do more of these not just for the Young Adult Coalition but for all women and those who identify as a female. Sign up for the next one here: https://bit.ly/4aAAr1A Check out an article co-written by Dr. Jill Johnsen and the importance of care with HMB and an update for the Glanzmann's Thrombasthenia community and the first prophylactic treatment currently in Phase 2! #CHESFoundation #hemophiliaA #hemophiliaB #nonprofit #hemophilia #bleedingdisorders #glanzmannthrombasthenia #hemophiliacommunity #WWBD #UltraRareBleedingDisorders #plateletdisorders #vWD #HemophiliaAwareness #healthcare?

We’re so proud to provide this conference for those affected by an Inhibitor to the forefront of the Hemophilia community. Without HEMA Biologics, this would not be possible! Sign up today to join us in April! https://lnkd.in/e2-7Evhf

This weeks bleeding disorder news features TWO important CHES events! Join Heather and Shanthi for My Bloody Valentine - an empowering event for women, girls, nonbinary, and those who identify as female: https://bit.ly/4aAAr1A InhibitCon is open! Head on over to the https://lnkd.in/e2-7Evhf homepage to sign up for April's event! In a pivotal article, G. Shellye Horowitz reviews new data about the REAL numbers of the estimated number of women who are undiagnosed. #hemophilia #hemophiliaA #hemophiliaB #WWBD #bleedingdisorders #hemophiliacommunity #nonprofit #CHESFoundation #UltraRareBleedingDisorders #plateletdisorders #glanzmannthrombasthenia #rarebleedingdisorders #hemophiliawithinhibitors

???? Join CHES for My Bloody Valentine, an empowering event for women, girls, nonbinary, and those who identify as female! Let's come together for meaningful conversations surrounding life with a bleeding disorder, education about women who bleed, and a fun remote coloring activity. ??? Connect, learn, and celebrate community in a safe and supportive space. Don't miss out—let's make it an event to remember! ?? Sign Up Here for this Pivotal Meeting ?? https://bit.ly/4aAAr1A February 13th at 8pm, EST #hemophiliacommunity #bleedingdisorders #CHESFoundation #nonprofit #hemophiliaA #hemophiliaB #WWBD #vWD #plateletdisorders #rarebleedingdisorders #glanzmannthrombasthenia #hemophilia #HemophiliaAwareness #UltraRareBleedingDisorders

InhibitCon is happening again! Twice this year! Aprils event registration is now open, head on over to the InhibitCon homepage on our website to sign up for the trip to Charlotte. We've expanded our attendance capabilities too! We're so excited to provide east and west coast options this year. Making it possible is HEMA Biologics, who have been an avid supporter of our programs through out the years and CONTINUE to step up in big ways for this community! Learn more about who can attend and sign-up: https://lnkd.in/e2-7Evhf #nonprofit #CHESFoundation #hemophiliaA #hemophiliaB #HemophiliaCommunity #hemophiliacommunity #bleedingdisorders #hemophiliawithinhibitors

The Voices of GT is a short survey investigating symptoms and quality of life over the course of one year for people with Glanzmann Thrombasthenia. By answering these questions today, you can help researchers identify tomorrow's treatment options. Participate in the survey here ?? https://lnkd.in/eQ54tTVZ In return for completing the survey, participants receive a $25 Amazon Gift Card. We will also share the insights gathered back with you, so that together we can build a clearer picture of what life looks like with GT. Provided by Hemab Therapeutics and Sano Genetics #plateletdisorders #ultrararebleedingdisorders #bleedingdisorders #healthcare #glanzmannthrombasthenia

Alhemo is the newest release for those with inhibitors both A and B! Check out other updates for FXIII, FXI and Bernard Soulier as well as the award for OSHU's award to work on more data for heavy menstrual bleeding. Happy New Year to all! We're starting with some great news for the community! Read more news from this year and Digital Digest posts at: https://lnkd.in/epuuwkzq #CHESFoundation #nonprofit #hemophilia #bleedingdisorders #hemophiliacommunity #NPO #healthcare #HemophiliaAwareness #ultrararebleedingdisorders #plateletdisorders #WWBD #vWD