ChadTough Defeat DIPG Foundation

Please join us in wishing Tammi Carr a happy birthday! We can't thank Tammi enough for all she has done to continue Chad's legacy and give hope to future families faced with this disease. She has helped shift the landscape of DIPG research and support, transforming what was once a silent and underfunded disease into a cause that is gaining attention, funding, and hope for the future. Tammi, your strength and passion inspire all of us. Thank you for turning your grief into action and for never giving up on the fight for a cure. Make a gift in honor of Tammi's birthday at chadtough.org/donate. #ChadTough #DefeatDIPG #GivingTuesday

Happy Thanksgiving! This season of gratitude, we are especially thankful for you — our incredible community of supporters. Thank you for helping us become the biggest funder of DIPG research! We wish you and your family a day filled with love, laughter, and gratitude. ?? ??

“I wish my sweet girl didn't have to go through this tough season, but I'm grateful for our good days together; they outnumber the bad days, so I'll focus on those. Please pray for her little body's continued healing.” — Leah Brown, Hazel’s mom Hazel is a bright and joyful soul, finding magic in life’s simplest pleasures. Her laughter is contagious, and nothing lights up her face quite like a scoop of ice cream. But in July 2023, the laughter dimmed as her parents received devastating news — Hazel had an inoperable brain tumor. Now, the Brown family clings to faith over fear as they navigate each challenging day. This year, they welcomed Hazel’s baby brother, a beacon of hope amid their journey. Every other week, they make the trip from Ohio to Seattle Children’s Hospital where Hazel is enrolled in a promising CAR-T cell clinical trial. They are holding onto the possibility of brighter days ahead. Clinical trials have been developing rapidly over the last several years, due in part by funding from organizations such as ChadTough Defeat DIPG. This #GivingTuesday, YOU have an opportunity to help us fund even more groundbreaking research from around the globe. And thanks to our generous donors, your dollars donated will be MATCHED between now and December 3, DOUBLING YOUR IMPACT on this horrible disease. You can read more about Hazel or make a donation to fund research on our website here:https://lnkd.in/gk_2debx #ChadTough #DefeatDIPG

"My Sweet Boy, It’s been nine years since I last held your hand, heard your laugh, and saw your beautiful smile. Time has not dulled the ache of missing you, especially on days like today. But even through the sadness, I feel your presence in the winks you send and the love you left behind. One thing that brings me joy, even on the hardest days, is this foundation. You, along with so many other angels, are changing the world of DIPG. We have raised millions of dollars in research while attracting more brilliant minds than ever to finally focus on finding answers — you made that possible. What an incredible legacy! It gives me peace to know that you continue to inspire change, paving the way toward a cure and cheering us on from above. With all my love, forever and always, Mommy" In honor of Chad’s angelversary, Tammi launched a Facebook fundraiser. Through December 3, donations will be doubled thanks to our generous Giving Tuesday matching donors. As you reflect on your blessings this Thanksgiving, we hope you’ll consider making a gift. Every dollar takes us closer to the cure these kids so desperately need: https://lnkd.in/gbjqtt9t You can also make a gift on our website: chadtough.org/donate #ChadTough #DefeatDIPG #GivingTuesday

“I hope my sweet son never knows how afraid I am. How scared I am to lose him. To exist in a world where he’s not in it. A world like that should never have to exist and it’s hard to accept I’ve already had so many last times with my son. My heart outside my chest will beat for the last time in just a few months, I’ve been told." — Allison Camp Crew Camp was a lively and fearless 6-year-old from Seneca, SC when he was diagnosed with DIPG on September 11, 2023. After months of treatment at St. Jude Children’s Research Hospital, Crew is now home on hospice care, embracing every moment with his family. Known for his big heart and protective nature, Crew is his family’s guardian, especially to his big sister, Natalie. He finds joy in Minecraft, Roblox, and outdoor adventures on his ATV, always with his loyal dog Gwen by his side. Crew’s story is a powerful reminder to cherish every moment. As his mom, Allison, says, “Hug your children. Hug them tight. Never think this can’t happen to you, or a child you love.” DIPG is a devastating disease, but together, we can create hope. This #GivingTuesday we hope you remember kids like Crew who are relying on research to give them hope for a brighter future. Gifts made now through December 3, via Facebook or Instagram, and at chadtough.org/donate, will be matched! #ChadTough #DefeatDIPG #GivingTuesday

As the parent of my only 9-yo child, Elita, who tragically lost her battle to DIPG, a rare and devastating brain tumor, I promised Elita to take action and support the ongoing fight to find a cure. This Thanksgiving, as we give thanks for our blessings, let’s extend our generosity where it’s needed most—toward curing DIPG. Right now, through Giving Tuesday (December 3), EVERY DONATION is DOUBLED, amplifying your impact!! I fight to honor Elita’s life and the promise I made to her. I fight because no child diagnosed with DIPG has survived to share their story. I fight because no parent should ever hear, “I don’t want to die,” and feel helpless to save their child. I fight because, despite the obstacles, researchers believe a cure is possible—and so do I. I fight because our children’s lives matter, and we’re united in this mission for them. Let’s stand together to spread awareness and support DIPG research. Our children’s lives and legacies depend on it. https://lnkd.in/eWygR7Vn With love, Dafina ChadTough Defeat DIPG Foundation

Starting today, your gift will make an even bigger impact in the fight against DIPG. Thanks to our generous matching donors, gifts made today through Giving Tuesday will be doubled — doubling the hope, doubling the research, and doubling the support for families battling this devastating disease. In addition to funding groundbreaking research, your support funds our My DIPG Navigator program, which provides personalized guidance, resources, and support to families navigating a DIPG diagnosis. Our founders, the Carrs and Mosiers, desperately wished they had this program available to them when Chad and Michael were fighting DIPG. DIPG steals too much from too many. Together, we can change that by advancing groundbreaking research and providing lifelines of support to those who need it most. Please join us in the fight against DIPG and give the gift of hope during this giving season. Make a gift here: chadtough.org/donate ?? ?? A huge thank you to our matching donors! The Aaron Family ? Whitney & BJ Bealor ? Kristen & Jim Boccher ? CJ Carr ? The Ferrantino Foundation ? The Alvin L. Glick Foundation ? Maggie Marcantonio ? The Hamp & Mirafzali Families ? The William and Mildred Kaplan Foundation ? Sanger Family Foundation ? Love for Linley ? Magic for Maddie ? The Mosier Family ? Debbie & Gary Priestap ? Jennifer L. Saulino ? Matthew & Mona Simoncini ? SoSo Strong Pediatric Brain Tumor Foundation ? Laurie & Tim Wadhams ? The Family of Vivian Rose Weaver ? In Honor of Owen #ChadTough #DefeatDIPG #GivingTuesday

An inspiring read filled with hope. Thank you, Dr. Monje, for all you pour into finding a cure. We are so very proud to fund your important work! "Of the 11 participants who received CAR-T cells in the trial, nine showed benefits. Nine had functional improvement in the disabilities caused by their disease. Four had the volume of their tumors reduced by more than half. And one of those four participants had a complete response, meaning his tumor disappeared from brain scans. Although it is too soon to say whether he is cured, he is healthy four years after diagnosis." https://lnkd.in/gC22ZFN8

A huge thank you to Blue Cross Blue Shield of Michigan, our presenting sponsor for our upcoming Sparkle & Shop for a Cure Ladies Luncheon. We're so grateful for their continued support of our mission. Learn more about Blue Cross Blue Shield of Michigan here: https://www.bcbsm.com/ #ChadTough #DefeatDIPG #DefeatDMG

Sophia Ann Myers, also known as "SoSo", was wise and witty beyond her years. She loved to dance, sing, tumble, and tell jokes. She placed first with her team at a dance competition not long before she was diagnosed with DIPG. Although this type of cancer is considered "rare" she was the third child in her town to be diagnosed. After an eight-month battle with the disease, Sophia passed away in October 2017. This week on November 13, she would have turned 15 years old. Upon the loss of Sophia, her parents started the SoSo Strong Pediatric Brain Tumor Foundation to help find a cure for DIPG and other pediatric brain tumors. We are thrilled to have them as a ChadTough Defeat DIPG Research and Navigator Partner as we work towards our shared mission. Learn more about SoSo Strong Pediatric Brain Tumor Foundation here: https://lnkd.in/eWtN7K8C Learn more about ChadTough Defeat DIPG partnership opportunities at https://lnkd.in/gzrR395T #SoSoStrong #ChadTough #DefeatDIPG