CFF Metro D.C. Chapter

Calling all young professionals ?? In honor of Women's History Month, join us on Monday, March 24th at 8 PM ET/ 5PM PST for the first session of our 2025 professional development series. This impactful discussion will focus on the remarkable journeys of women who have faced and overcome significant adversities, both professionally and personally. Moderated by Leila White, National Tomorrow's Leaders Committee Member and Enterprise Account Director at SiriusXM, hear from our esteemed panelists: Stefanie Deuber, Manager at Palisades Tahoe; Lyndsey Bauers, VP of Product at Dropbox; and Ashley Cole, MS, Founder and Owner of Business Success Services. They will share their inspiring stories of resilience, strength, and success in the face of challenges. Discover valuable insights and strategies for navigating your own path to achievement. This 45-minute discussion, open to all Tomorrow's Leaders, will be followed by a Q&A session, giving you the opportunity to connect with our panelists and gain further wisdom. Don't miss this chance to be inspired and empowered! Register here: https://lnkd.in/d4zQzbBp

We are excited to announce a new race for the 2025 Breathe Team Lineup - the 50th Annual Marine Corps Marathon! ?? This iconic event, held on October 26, 2025, in Washington D.C., is one of the most prestigious marathons in the world, and we can’t wait to be a part of it. We are offering 25 guaranteed bibs for runners who want to join us on this incredible journey! Whether you’re an experienced marathoner or a first-time participant, the Marine Corps Marathon is an unforgettable experience in the nation's capital, and we’d love for you to be part of our team. ?? Why run with Breathe Team? - Guaranteed entry into the race (no lottery!) - A chance to run for a cause and support the incredible work of our organization - Team camaraderie and support leading up to and during race day Don’t miss out on this exciting opportunity. Spots are limited – reserve your bib today and run with us for an unforgettable experience! #MarineCorpsMarathon #BreatheTeam #RunForACause #MCM2025 #BreatheTeam #MarathonTraining #RunnersOfLinkedIn #Teamwork #Inspiration

In honor of Women's History Month, join us on March 24th at 8 PM ET/ 5PM PST for the first session of our 2025 professional development series. This impactful discussion will focus on the remarkable journeys of women who have faced and overcome significant adversities, both professionally and personally. Hosted by National Tomorrow's Leaders Committee Member, Leila White, this session features panelists sharing their personal stories of resilience and success in the face of adversity. You'll gain valuable insights and practical strategies for navigating your own challenges. There's also a Q&A to directly connect with the panelists. Register today: https://lnkd.in/d4zQzbBp

Tomorrow's Leaders Week is here! Join fellow young professionals for a virtual coffee chat Wednesday, February 12, at 12 p.m. and 3 p.m. ET to learn about Tomorrow’s Leaders. Tune in to grow your network and get an inside look at what the program offers. Tomorrow’s Leaders is a dynamic community of young professionals driven to transform the lives of everyone living with cystic fibrosis. As a member, you will expand your network and develop valuable professional skills — all while playing a pivotal role in our mission to cure CF! Reserve your spot now: https://lnkd.in/dY5xgpcX

Registration is open for BreatheCon! Our very own Katie Fielding has helped shape the event as a speaker, providing an opportunity for adults with cystic fibrosis to get to know and have fun with other adults living with CF through sharing the stories, perspectives, and experiences that make this community stronger than ever. Whether you’ve attended in the past, or you’re a first-time registrant, we invite you to join Katie at BreatheCon February 7-8! No matter if you were diagnosed with CF at birth or just recently received a diagnosis, there’s a spot for you to find community, learn from others, and feel like you truly belong. Register online: https://lnkd.in/g6e7_8-T

Kick off the new year with the CF Foundation! You’re invited to join us virtually January 22 at 8 p.m. ET/5 p.m. PT for our National Annual Meeting with?CF Foundation President and CEO, Michael Boyle, MD, and our Executive Vice President and Chief Operating and Financial Officer, Irena Barisic.? ? After brief opening remarks, we’re answering your questions about what’s ahead for 2025! Register now to secure your spot for this energizing community conversation: https://lnkd.in/eTJNebXw??

We are #hiring - a great and rare opportunity to join our team and walk the path to a cure for everyone with cystic fibrosis. Make a difference - we are one team with one dream - making CF stand for cure found. https://lnkd.in/eXH9n2Fb

The FDA approved the expansion of Trikafta to additional people with cystic fibrosis ages 2 and older who have certain rare mutations. Although this approval affects a very small number of people, it is another important step in making sure that everyone with CF has a treatment for the underlying cause of their disease. We know that between 10–15% of people with CF are not eligible for or cannot tolerate modulators. We are committed to ensuring everyone will have a treatment for the underlying cause of their cystic fibrosis, and ultimately, a cure. Read more at: https://lnkd.in/g-mzb7qp

A new, once-a-day CFTR modulator has been approved for people with cystic fibrosis by the?FDA. The new modulator, Alyftrek, is approved for people with CF ages 6 and older who have a mutation that is eligible for Trikafta, or one of 31 rare mutations that had not been approved previously for a modulator. Alyftrek offers another option for people with CF, including those who cannot tolerate Trikafta. In addition, Alyftrek only needs to be taken once daily — potentially making the dosing regimen easier for people with CF.

It’s #GivingTuesday, and today you can help supercharge our mission and bring us closer to new breakthroughs for people with cystic fibrosis. Give now and have your gift matched, dollar-for-dollar, up to $250,000, thanks to Nancy and Lou Stremick, whose granddaughter, Ella, has CF. While innovative treatments have helped some people with CF, no two journeys are the same. While Ella is currently doing okay and was able to start college this year — Amanda, another adult with CF, is looking forward to pursuing her dreams, including writing a book, and doesn’t want the risk of lung transplant rejection to get in the way. “Living with someone else’s lungs inside me is the most surreal, humbling gift I’ve ever received,” said Amanda. “Even so, transplant is not a cure.” Progress for some isn’t enough. Every day, people with CF and their families are waiting for a breakthrough. Your gift can help support the needs of the CF community in the future. Give today: https://lnkd.in/dVxiFJie