Vision Impairment ?? People with cerebral palsy can have two different sources of vision impairments: 1. How the eyes work. (i.e., needing glasses or correcting strabismus) 2. Disturbances in the brain's visual pathways. The brain-based visual issues relate to how the brain makes sense of the incoming visual information.?????????????????????????????????????? Find out more about the different eye care professionals who treat vision disorders on our website: https://lnkd.in/etCZRWuT ID: A green graphic with copy regarding vision impairment. It also shows a picture of a young boy on a horse and the CPRN graphic.
Cerebral Palsy Research Network (CPRN)
研究服务
Greenville，South Carolina 596 位关注者
Engaging the cerebral palsy community in research that matters
关于我们
The CP Research Network is the largest and most comprehensive collaboration of hospitals and community members working together to improve health outcomes for people with CP. We host the largest community and clinical registries in the US to gather robust and comprehensive data for research. We focus our research and consumer educational content on the health and wellness outcomes that people with cerebral palsy value most. We include the entire community in the research process, the development of education materials and the implementation of current clinical care pathways.
- 网站
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https://cprn.org
Cerebral Palsy Research Network (CPRN)的外部链接
- 所属行业
- 研究服务
- 规模
- 2-10 人
- 总部
- Greenville，South Carolina
- 类型
- 非营利机构
- 创立
- 2015
- 领域
- clinical research、cerebral palsy、quality improvement、cp registry、cp community registry、patient-centered research、cpr和cpr
地点
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主要
获取路线
PO Box 8347
US，South Carolina，Greenville，29604
Cerebral Palsy Research Network (CPRN)员工
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Paul Gross
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John L Smith
Principal and Managing Partner | MBA
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Anne M. Rader, MPA
Empowering Transformative Healthcare Solutions for Underserved Populations Through Strategy, Planning, & Policy Leadership | Population Health…
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David Browdy
Vice President and Chief Financial Officer at Fred Hutch
动态
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??New Research Milestone! The Cerebral Palsy Research Network is proud to share a new study highlighting critical healthcare priorities for adults with CP — including preventive care, bone health, and kidney health. This groundbreaking research emphasizes the need for better clinical training, personalized screening protocols, and addressing the unique health challenges adults with CP face as they age. ??? Top Priority: Preventive care to detect chronic conditions early ??? Precision medicine to tailor care based on individual risk factors ??? Confronting ableism in healthcare Together, we're charting a new course for better health outcomes across the lifespan. Read more on our blog:?https://lnkd.in/eEKCzY6y
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Quality Improvement (QI) -- First We Learn & Then We Share Quality improvement (QI) is a kind of data science that allows us to understand how healthcare processes are working throughout the network and where they can be improved to support the best health outcomes for people with CP. How does QI work?... QI data is shared among our network participants to adjust and improve how they deliver healthcare to people with CP, and the process keeps repeating. ID: #FactFriday slide with a green light bulb icon and the Cerebral Palsy Research Network logo. The slide discusses Quality Improvement.
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AACPDM Presents Helpful Resources About Cerebral Palsy The American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) is the professional society for cerebral palsy. This group, formed in 1947, was established to bring together professionals for the purpose of educating them about cerebral palsy. AACPDM offers professional and community resources through their website. Here are two examples: 1. Care pathway summaries for healthcare providers: https://lnkd.in/ezmrMKAa 2. Provider directory by location and specialty: https://lnkd.in/eJxkdEzS *Directory is a self-selected list of member providers and not a list that is endorsed by AACPDM or the CP Research Network ID: A pink background with the words Tip Tuesday and the words AACPDM Presents Helpful Resources About Cerebral Palsy on it, as well as a CPRN logo.
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The CP Research Network is seeking a $25,000 sponsorship to support the printing and distribution of the first Adult CP Toolkit, launching early this summer! Partner with us to empower the adult CP community! For more information, contact Michele at [email protected]. ID: A green background with a picture of our adult CP Toolkits, and the CPRN logo.
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Celebrating Amy Bailes, PT, PhD! Congratulations to Amy Bailes, PT, PhD, CP Research Network’s Quality Improvement Director, for receiving the Stephen Haley Research Award at the APTA Combined Sections Meeting! This prestigious award honors her outstanding contributions to physical therapy research, particularly in the care of children with cerebral palsy. Dr. Bailes' dedication to advancing pediatric rehabilitation continues to make a lasting impact on the field. Please join us in celebrating this well-deserved recognition! ID: Pictures of Dr. Amy Bailes and Kelly at the APTA Combined Sections Meeting.
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?? ICYMI! ?? Catch the replay of last night's webinar! ???? Dr. Zach Vesoulis, neonatologist at Washington University in St. Louis, dives into the future of AI in cerebral palsy care. Plus, don’t miss an engaging town hall with CPRN Co-founder & CEO, Paul Gross!
MyCP Webinar: Ethics of Artificial Intelligence and Cerebral Palsy Research
https://www.youtube.com/
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Cerebral Palsy Research Network (CPRN)转发了
I enjoy reporting on examples of learning health system development such as the Cerebral Palsy Research Network (CPRN) led by Paul Gross. Check it out....
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?? Join the Conversation! ???? On Monday, February 24th at 8 PM EST, the Cerebral Palsy Research Network is hosting a Town Hall on the ethics of using AI to drive new discoveries and predictions in cerebral palsy. We'll discuss: ?? The role of AI in medicine ?? Data ownership ? Informed consent practices Your voice matters—let’s explore these important topics together! ?? ?? Register now: https://lnkd.in/e6d-n3j ID: Headshots of Paul Gross, CP Research Network CEO and Dr. Zach Vesoulis. The copy is promoting an upcoming webinar and the graphic uses green, gray, and white tones.
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