?? Join us for the Just Us: Father & Survivor Retreat—a special weekend designed for fathers and their children who have overcome pediatric brain or spinal cord tumors. This retreat offers a unique opportunity to connect with others who truly understand your journey, share experiences, and create lasting memories together. ? When: May 30 – June 1, 2025 Where: Happiness Is Camping, Hardwick, NJ Throughout the weekend, you’ll engage in a variety of activities such as rock climbing, zip-lining, archery, and campfire gatherings—all aimed at strengthening bonds and fostering a supportive community. ?? For more details and to register, please visit cbtf.org/justusretreat or contact Beth at [email protected]. A special thanks to The Eva and Howard Nacht Foundation for making this vital programming possible! #JustUsRetreat #CBTFCommunity #PediatricBrainTumor #SupportForDads
Children's Brain Tumor Foundation
非盈利组织
New York,NY 1,951 位关注者
Improving the treatment, quality of life, and long term outlook for families impacted by a brain or spinal cord tumor.
关于我们
The mission of Children’s Brain Tumor Foundation is improving the treatment, quality of life and long-term outlook for children and families affected by a brain or spinal cord tumor. Founded 31 years ago, CBTF connects survivors, parents, and siblings through creative, evidence-based programs designed and directed by our own professional staff. CBTF works with over 230 children's’ hospitals to provide support and programs to families at the time of diagnosis, after treatment, and to bereaved families.? The Children’s Brain Tumor Foundation is committed to finding a cure for childhood brain tumors. CBTF has awarded over 75 research grants totaling $10.5 million to leading doctors and researchers at top institutions throughout the United States. This funding underwrites research into the causes of, and effective treatments for, childhood brain and spinal cord tumors. CBTF has also provided over $650,000 for professional training and clinical fellowships in the field of pediatric neurologist-oncology with a goal to increase the number of experienced professionals equipped with state of the art information and specific knowledge in the field of pediatric brain and spinal cord tumors. CBTF believes that no family should have to go through a brain or spinal cord diagnosis alone. From support groups, retreats, social activities, and resource guides, CBTF is here to offer support through every step of the journey.?
- 网站
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https://www.cbtf.org
Children's Brain Tumor Foundation的外部链接
- 所属行业
- 非盈利组织
- 规模
- 2-10 人
- 总部
- New York,NY
- 类型
- 非营利机构
- 创立
- 1988
- 领域
- nonprofit、family relationships、social work、programming、brain tumor、brain cancer、pediatric brain tumor、oncology和pediatric brain cancer
地点
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主要
1460 Broadway
US,NY,New York,10036
Children's Brain Tumor Foundation员工
动态
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?? Atlanta families—You’re invited to the CBTF Family Dinner on Monday, April 7 from 6–8 PM at Mellow Mushroom in Dunwoody. This is a welcoming space to connect with other families in the brain tumor community, share conversation, and enjoy dinner together. ?? ?? 5575 Chamblee Dunwoody Rd, Atlanta, GA 30338 ?? Monday, April 7, 2025 | 6:00–8:00 PM ET We’d love to see you there—please RSVP to let us know you’ll be joining us: tinyurl.com/cbtf4725 #CBTFCommunity #FamilySupport #PediatricBrainTumor #AtlantaEvents
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?? Heartbreaking news — our hearts are with Mia Love’s family. Her passing is yet another painful reminder of why prioritizing funding for critical research is so urgently needed. This devastating disease affects us all. https://lnkd.in/ePnmZKwe
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?? What’s Heads Up? It’s more than camp. It’s a signal of strength, awareness, and resilience. Heads Up is our regional conference for teen brain tumor survivors, with opportunities for young adults to give back as volunteers. Taking place in Washington (July 6–9), Georgia (July 13–18), and Michigan (August 18–23), each program is a chance to build community, make memories, and feel understood. After facing a brain tumor, holding your head up takes on a whole new meaning—and Heads Up is all about celebrating that strength together. ?? Camp vibes. ?? Real talk. ?? Lifelong connections. ?? Sign up or learn more at cbtf.org/headsup #HeadsUp2025 #BrainTumorSurvivor #TeenSupport #YoungAdultVolunteers #CBTF #YouAreNotAlone
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?? Promising advancements in pediatric cancer treatment! ?? A recent study from Baylor College of Medicine in Houston reports that a woman treated with CAR T-cell therapy for neuroblastoma as a child has been in remission for over 18 years—the longest known survival after such therapy for an active cancer. This breakthrough underscores the potential of CAR T-cell therapy in achieving long-term remission, offering hope to many battling similar conditions. ?? " In addition to Gavin, 20 children and young adults with DIPG got CAR-T therapy every two to four weeks. The median survival was about 20 months — nearly double the expected prognosis" #PediatricCancer #Immunotherapy #CARTCellTherapy #CancerResearch #BaylorCollegeOfMedicine https://lnkd.in/gniCWRiU
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After overcoming countless medical challenges with incredible strength and resilience, James Torres is returning to work at Trader Joe's —and we couldn’t be more proud. His journey has been nothing short of a miracle, and today, we celebrate his determination, courage, and unwavering spirit. Join us in honoring this incredible milestone and cheering James on as he takes this next step forward! ????
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Every child deserves the right to care, comfort, and safety - especially when dealing with a brain tumor. Sending our thoughts and prayers to this young warrior and her family ????? https://lnkd.in/e5MU-5pu
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?? Happy St. Patrick’s Day from all of us at the Children’s Brain Tumor Foundation! ??? May your day be filled with joy, laughter, and magic! ? #HappyStPatricksDay #CBTFamily #HopeAndStrength
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?? Memoir Writing Workshop for Teen & Young Adult Survivors & Siblings continues tomorrow! Discover the joyful potential of writing memoirs in a supportive space designed to help you tell the stories that need to be told. Through writing prompts, weekly assignments, and sharing your work, you’ll build camaraderie, develop your craft, and maybe even have a few laughs along the way. All you need is the courage to write your truth. ?? Next session: Tomorrow, March 18th @ 7PM ET / 4PM PT (Final session: March 25th) Led by CBTF father, Ed Gold, and his daughter, Zoe, this workshop offers a space where writing heals. ? Register now: tinyurl.com/cbtf3425 #MemoirWriting #Storytelling #WritingHeals
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???? Childhood brain tumors have lasting effects that go beyond the initial diagnosis and treatment. As survivors grow, they may encounter new challenges that impact their physical, emotional, and cognitive well-being. These challenges can include learning difficulties, shifts in social relationships, and long-term health concerns. Yet, many survivors also discover incredible strength and resilience as they navigate these hurdles. Support systems—such as therapy, peer groups, and specialized medical care—are essential in helping them adapt and thrive. With the right tools and resources, survivors can find new ways to succeed in school, work, and daily life. For parents, understanding that the journey doesn’t end with treatment can make a world of difference. Staying informed about potential late effects, seeking ongoing medical care, and fostering open communication about feelings and challenges can provide vital support. Every survivor’s path is unique, and recognizing their individual strengths can lead to an empowering journey of growth and self-discovery. The road ahead may have obstacles, but it is also filled with opportunities—for survivors to continue proving their resilience and for families to witness their transformation into strong, capable individuals. You are not alone. The Children’s Brain Tumor Foundation is here for you every step of the way. Visit www.cbtf.org for resources, support, and more information. ???? #BrainTumorAwareness #ChildhoodCancerSurvivor #LifelongImpact #SupportAndStrength #CBTF
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