Glenn and Emna from World Federation of Hemophilia / Fédération mondiale de l'hémophilie join us to share all about their WFH 2025 Comprehensive Care Summit on the latest BloodStream. Listen, Rate, Review, and Subscribe where you get your podcasts! https://lnkd.in/eQKP4F9f Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. It’s a Whole New World brought to you by CSL #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #advocacy #vwd #genetherapy
BloodStream Media
媒体制作
Los Angeles,CA 608 位关注者
Bringing education and inspiration to those living with rare and chronic diseases. ??
关于我们
- 网站
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www.bloodstreammedia.com
BloodStream Media的外部链接
- 所属行业
- 媒体制作
- 规模
- 11-50 人
- 总部
- Los Angeles,CA
动态
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Hanna Beary is our new host for the Gene therapy segment and she's with Dr. Mark Kay and genetic counselor, Kaylee Dollerschell. Don’t miss it! Listen, Rate, Review, and Subscribe where you get your podcasts! https://lnkd.in/eQKP4F9f Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. It’s a Whole New World brought to you by CSL #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #advocacy #vwd #genetherapy
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Women with bleeding disorders consistently navigate the duality of advocating for equity for women and girls and for legislation that uplifts and supports people with bleeding disorders. ?? So #BleedingDisordersAwarenessMonth and #WomensHistoryMonth will be packed with special episodes, interviews and highlights amplifying the voices of incredible women in the bleeding disorders community. Stick around for more here on BloodStream! ? #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #advocacy #womenwithhemophilia #womenwithbleedingdisorders #womenbleedtoo
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We celebrate Rare Disease Day because we love our Rares! ???? Also, folks from World Federation of Hemophilia / Fédération mondiale de l'hémophilie join us to share their comprehensive summit and the gene therapy segment is back with a new host and Dr. Mark Kay and genetic counselor, Kaylee Dollerschell. Don’t miss it! Listen, Rate, Review, and Subscribe where you get your podcasts! https://lnkd.in/eQKP4F9f Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. It’s a Whole New World brought to you by CSL #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #advocacy #vwd #genetherapy
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Rare Disease Day ???????? Listen, Rate, Review, and Subscribe where you get your podcasts! https://lnkd.in/eQKP4F9f Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. It’s a Whole New World brought to you by CSL #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #advocacy #vwd #genetherapy #rarediseaseday #rarediseaseday2025
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Rare Disease Day is tomorrow, and so is the new BloodStream! ???? Listen, Rate, Review, and Subscribe where you get your podcasts! https://lnkd.in/eQKP4F9f Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. It’s a Whole New World brought to you by CSL Behring. #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #advocacy #vwd #genetherapy
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En este episodio, tenemos el honor de conversar con Andrea Villegas, directora ejecutiva de la Fundación GENES, una organización que cofundó junto a la Dra. Mislen Bauer, impulsada por el diagnóstico de su hijo Emilio. Durante los últimos nueve a?os, Andrea ha dedicado su vida a apoyar a ni?os y jóvenes con condiciones genéticas. Nos comparte cómo esta fundación está haciendo una diferencia significativa en el sur de la Florida, especialmente dentro de nuestra comunidad hispana. Acompá?anos a descubrir esta historia verdaderamente inspiradora. Escucha y suscríbete!?? https://lnkd.in/gHWyMisv Deborah Requesens | Victoria Arteaga Hashtags: #masqueraras #enfermedadesraras #pacientesraros #espanol #podcast #raredisease
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??? Exciting news Thal Pals! In our latest episode, join patient advocate NinaMaria and Dr. Kevin Kuo, as they host special guests, Dr. Priya Chandrakumaran and Dr. Hayoung Roh, two passionate hematology residents from the Universities of Ottawa and Toronto. They delve into their motivations for choosing hematology, the challenges they've faced, and their hopes for the future of treating red blood cell disorders like thalassemia. Through engaging patient stories and shared experiences, this episode shines a light on the importance of holistic care and the deep connections between doctors and patients. Tune in to hear how these remarkable doctors are shaping the future of hematology! ??? #ThalPals Don't miss out on this informative and engaging discussion! Share with your friends, family, and anyone you think will benefit from this valuable information. #Thalassemia #HealthCheck #PatientAdvocacy #Healthcare Listen, rate, review, and subscribe wherever you get your podcasts! Or by clicking here: https://lnkd.in/g2AuENeb Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates and voices from the thalassemia community. Thal Pals is sponsored by Agios Pharmaceuticals Visit Agios.com to learn more. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment re-lated questions. #RedBloodCellDisorder #HereditaryDisease
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?? Tune in to our latest episode of Cheat Codes - Timmerman Hike! Listen to the inspiring journey of sickle cell warriors and advocates climbing Kilimanjaro. #CheatCodesPodcast #SickleCellAwareness #HealthcareHero Listen, rate, review, and subscribe wherever you get your podcasts! Or by clicking here: https://lnkd.in/dsk6QgEP Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael Callaghan, MD (Dr. C). Cheat Codes is sponsored by Agios Pharmaceuticals Visit Agios.com to learn more.
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Miller values health data security - that’s why she created the secure cycle tracking app “SARA”. In this episode of FLOW, Miller Morris discusses the importance of privacy, data protection, and the need for a healthcare overhaul. Miller addresses global health systems, gender equity and how Comma aims to create a more informed and empowered community for menstruating individuals. Get inspired by Miller’s vision of user-centered, tech-driven solutions in the period care space - on this month’s FLOW. Available now: https://lnkd.in/gREHM97T Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. Jessica Richmond | Sarah Watson, LPC, CST, Sex Educator, Speaker #howsyourflow #periodpodcast #periodtalk #periodstories #extremeperiods #menstrualhealth #advocacy #podcast
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