Bionews, Inc.

Throughout March, Multiple Sclerosis News Today is recognizing MS Awareness Month by sharing powerful stories from those living with or caring for someone with multiple sclerosis. Our MS Community Spotlight amplifies real voices, highlighting the unique journeys, challenges, and triumphs within the MS community. While each experience is different, there is a common thread of determination, strength and resilience. Bionews, Inc. understands that awareness goes beyond education—it’s about creating a trusted space where those living with MS can build connections, spark meaningful conversations, and foster a sense of hope. To read more incredible stories head over to the MS Community Spotlight on Multiple Sclerosis News Today ?>> https://lnkd.in/gGQtycXv #Bionews #MS #MultipleSclerosisAwareness #PatientVoice #DigitalHealth #Spotlight #Community

Catch up with Ethan tomorrow at Informa Connect Rare Disease Summit where he will be moderating a discussion with Chris Peetz, CEO of Mirum Pharmaceuticals, Inc. The conversation will be about Peetz’s journey as a founder and CEO and lessons he has learned bringing innovative drugs to market and his thoughts on the future of treatments for rare diseases. If you are a partner, client, or just want to learn more about what Bionews, Inc. has to offer, reach out to Ethan on LinkedIn or visit him in person at 1:30 on March 18 at the summit! Last-minute tickets still on your mind? Purchase yours now using the code ‘25BIONEWS10’ at checkout for a 10% VIP discount! >>https://bit.ly/4kliUP5 #Bionews #RareDiseaseSummit #InformaConnect #Partnership #Conference #RareDisease #Presenter

Patients crave news and relatable experiences. Through Bionews, Inc.'s authentic and consistent content, we build trust and become a reliable source of information. But more importantly, we foster genuine connections among patients, families, and caregivers. #Bionews #RareDisease #PatientPerspective #RareDiseaseNews #ThePatientVoice

If you haven’t purchased your tickets to the Informa Connect Rare Disease Summit March 18th-20th, you’re definitely missing out! Our Vice President of Business Development, Ethan Ash, will be moderating an intimate conversation with Chris Peetz, the CEO of Mirum Pharmaceuticals, Inc. Pharmaceuticals. The session will feature an intimate conversation to discover the challenges and rewards of leading a company focused on bringing innovative treatments to the rare market. From Peetz’s entrepreneurial journey to his experiences as an executive in the pharmaceutical industry, he will share his inspiring pursuit of innovation as well as his valuable perspective on the future of rare disease. This is your last chance to enjoy a 10% VIP discount on us when you use the code ‘25BIONEWS10’ at checkout. Book your tickets today. >>https://bit.ly/4kliUP5 #Bionews #RareDiseaseSummit #InformaConnect #Partnership #Conference #RareDisease #Presenter

At Bionews, Inc., we believe that true progress in the rare disease space starts with listening. That's why we are committed to engaging with the rare disease community at conferences, where voices from patients, caregivers, and advocates come together to share stories, insights, and innovations. Through our active participation in key conferences like Myasthenia Gravis Foundation of America, Inc. & Muscular Dystrophy Association, and presenting or moderating at the World Orphan Drug Congress USA (WODC) and Rare Disease Summit Informa Connect, we aim to better understand the lived experiences of individuals affected by rare diseases. These events are an opportunity to learn from those who are directly impacted, and collaborate with thought leaders, patient advocates and Industry leaders to push forward meaningful change. Are you planning on attending any of these events? Let us know! #Bionews #RareDisease #Conferences #DigitalHealth #PatientVoice #Presenter #Partnership

March 18 is fast approaching! There’s still time to make your plans to join us at the Informa Connect Rare Disease Summit where Ethan Ash will be moderating a fireside chat with Chris Peetz, the CEO of Mirum Pharmaceuticals, Inc. Join us for a deep dive into the complexities and triumphs of steering a company dedicated to pioneering treatments for rare diseases. In this engaging session, Chris Peetz will recount his entrepreneurial path and his rich experiences as a pharmaceutical executive. He'll offer insights into his inspiring quest for innovation and share his unique views on what lies ahead in the realm of rare disease treatment. Enjoy a 10% VIP discount on us when you use the code ‘25BIONEWS10’ at checkout. Book your tickets today. >>https://bit.ly/4kliUP5 #Bionews #RareDiseaseSummit #InformaConnect #Partnership #Conference #RareDisease #Presenter

It’s MS Awareness Month and the premiere episode of “Get Tough on Multiple Sclerosis” is LIVE! Join two doctors —one of whom has MS—in a series of powerful conversations as they share real talk, expert insights, and practical ‘life hacks’ from patients to help you tackle your MS with confidence and strength. Don't miss the latest episode on fatigue –one of the most prevalent and misunderstood symptoms of MS. A customizable fatigue tracker (available for download) will help you identify and track triggers that will help you manage your own experience with fatigue! Stay tuned as future episodes cover relevant MS-related challenges, empowering you with the knowledge and tools to get tough on your MS! Check out Episode 1 >> https://lnkd.in/g6Wyjwy9 #MS #PatientPerspective #MSPhysician #DigitalHealth #MultipleSclerosis #podcast #healthcarepodcast

Kevin Schaefer is the Associate Director of Community Content at Bionews, Inc. He's also one of the founding members of our Patient Advisory Board, a group assembled of rare disease patients who we look to for their unique insights and lived experiences. This helps us maintain a clear focus on what truly matter to patients. Since 2024, Kevin and his fellow pateints on the board meet regularly to voice their opionions and thoughts on how we can all better serve rare communities. From the content on our 50+ rare disease sites to the accessibility and functionality, we owe a great deal to the Patient Advisory Board and their guidance. Listen to the video to hear more from Kevin and his passion for the Patient Advisory Board! #Bionews #RareDisease #Caregivers #DigitalHealth #SMA

Join us at the Informa Connect Rare Disease Summit, March 18th-20th, where our very own Ethan Ash will be moderating a panel alongside Chris Peetz, the CEO of Mirum Pharmaceuticals, Inc. The session will feature an intimate conversation to discover the challenges and rewards of leading a company focused on bringing innovative treatments to the rare market. From Peetz’s entrepreneurial journey to his experiences as an executive in the pharmaceutical industry, he will share his inspiring pursuit of innovation as well as his valuable perspective on the future of rare disease. Still need to grab your tickets? Enjoy a 10% VIP discount on us when you use the code ‘25BIONEWS10’ at checkout. Book your tickets today. >>https://bit.ly/4kliUP5

"There is a major therapeutic effect it has on yourself when you start to share your stories. It’s good for you and you have the ability to help other families." Richard Poulin III sat down with us to talk about his journey as a rare disease caregiver for his daughter who was diagnosed with AADC. Today, he is a caregiver advocate for AADC News and has been contributing for a few years now. Read the full article! >>https://bit.ly/4gYPxPW #Bionews #RareDisease #Caregivers #DigitalHealth #AADC