Bionews, Inc.

At Bionews, we believe the patient's voice is critical to every decision we make. That's why we're proud to introduce our incredible Patient Advisory Board! These amazing individuals, living with conditions like MS, Sarcoidosis, and SMA, bring their lived experiences and unique perspectives to the table. They ensure Bionews, Inc.'s content is relevant, impactful, and empowering. Meet our Patient Advisory Board: - Desiree Lama: columnist, and social media moderator, multiple sclerosis - Kerry Wong: columnist, Sarcoidosis - Brandi Lewis: columnist, Paroxysmal nocturnal hemoglobinuria - Young Lee: columnist, Charcot-Marie-Tooth disease - DeAnn Runge: vlogger, SMA - Brad Dell: director of community content, cystic fibrosis - Kevin Schaefer: associate director of community content, SMA We also have a rotating guest seat! Learn more about our board > https://lnkd.in/g5ZMEVCz #Bionews #TeamWork #RareDisease #PurposeDriven

??Bionews - where teamwork makes the dream work! We recently met to chart our course for 2025. But it was more than strategy and data. Between embarrassing the boss with a slightly off-tune (but heartfelt!) rendition of "Happy Birthday," and shared laughs after hours, our team realized yet again why we work so well together. Working at Bionews, Inc. is much more than just a job. We are here to make a meaningful difference in the lives of those with rare diseases. When your work is driven by purpose, it shows up in every plan, every meeting, and every laugh we share. Work with us! Check our job openings: https://lnkd.in/ggHPkBvh #Bionews #TeamWork #RareDisease #PurposeDriven

?? Join us for a Patient and Caregiver Webinar on Life with Friedreich's Ataxia! ?? Register here ?? https://lnkd.in/gNDMC6Tn Host, Sean Baumstark , leads a powerful discussion with a panel of five individuals living with or caring for someone with Friedreich's ataxia. Whether you’re directly affected by FA or passionate about rare disease advocacy, don't miss this meaningful dialogue on the human experience of living with a rare disease. When: Wednesday, November 6th at 6pm ET/3pm PT #FriedreichsAtaxia #RareDisease #PatientAdvocacy #Resilience #SupportNetwork #RareDiseaseCommunity

Happy Halloween from the Bionews team! I’m Jenn and I manage the LinkedIn account and wanted to have a bit of fun on this holiday! In the comments, join me by sharing? a photo of your pet this halloween! Dogs hold a special place in my heart, maybe even more than people sometimes. Skye has been a silent witness to my life with MS, offering nothing but love, loyalty, and a joyful wag when I need it most. Her companionship has been transformative and healing in a way few other things have. She is a constant in an ever changing life with a progressive disease. She even puts up with my antics—like dressing her up for Halloween—bringing smiles and moments of joy that make me forget about MS, even if only for a little while. ?? Here's to the comfort and strength we find in our furry friends! Happy Howloween!! ?????? #Bionews #HappyHalloween #RareDisease #Pets

ICYMI! Bionews and Friedrech’s Ataxia News are excited to present, "Stronger Together" – a Patient and Caregiver Collaboration . Register here: https://lnkd.in/gNDMC6Tn Join us Wednesday, November 6th at 6p.m ET/3 p.m. PT for an insightful conversation as our host, Sean Baumstark, engages with a panel of 5 who are living with or caring for someone with Friedreich's ataxia. Together, they will candidly share personal experiences and valuable perspectives on resilience, support, and the human experience in the face of life with a rare disease. #Bionews #FriedreichsAtaxia #FAAwareness #Webinar

At Bionews, we’re more than just colleagues—we’re friends who inspire and support each other, just as much as we do the rare disease communities we serve. ?? A perfect example? After working together for 5 years, Jen Cueva and Halsey Blocher recently met in person for the first time while Jen was attending the PHA Convention in Illinois! Developing relationships, building and maintaining mutual respect reflects the heart of our Bionews, Inc. culture. It’s these connections that fuel our dedication to making a meaningful impact for the rare disease community every day. When we care for each other, we’re better equipped to care for those we serve. ?? #Bionews #TeamCulture #RareCommunity #BuildingConnections

Check out our latest Q&A with Marcella Debidda, President of Bionews Clinical & Insights, where she shares how we leverage data to build genuine connections in the rare disease community. Dive into the full interview here?? https://lnkd.in/gGYURmm8 #Bionews #BionewsClinical #HumanizeData #PatientInsights #RareDisease

At a recent dinner, Mark Harrington, who’s been navigating life with Myasthenia Gravis since June 2020, sparked an important conversation about the challenges those with MG face. Read Mark’s column here https://lnkd.in/gi56ibdq Inspired by the current political climate, Mark asked what issues should be brought to the forefront. One quiet voice cut through, simply stating, 'We just want to be heard.' Bionews, Inc. ensures those with rare diseases always have a seat at the table, driving conversations that matter and pushing for meaningful difference and change. Myasthenia Gravis News is among 50+ rare disease sites providing trusted information, news, and connections that help to empower the rare disease community, fostering a space where hope thrives. #Bionews #MyastheniaGravisNews #RareSpotlight #RareDisease

As we approach the year's end, it's the perfect time to optimize your marketing budget. Bionews offers tailored solutions to help you reach patients with rare and chronic conditions effectively. Our proven track record includes campaigns that delivered exceptional results, such as: #MyastheniaGravis: A campaign targeting multiple audiences achieved a 105x return on investment, outperforming the top 5 publishers by 8x. #SpinalMuscularAtrophy (SMA): A campaign targeting multiple audiences achieved a 72x return on investment, outperforming the top 8 publishers by 19x. #ParkinsonsDisease: A campaign targeting multiple audiences achieved a 37x return on investment, outperforming the top 3 publishers by 8x. From content expansion to advocacy marketing, we've got you covered. Contact us today to learn how Bionews, Inc. can help you achieve your marketing goals. Contact us to explore tailored solutions for your brand. https://lnkd.in/gJN7jG2P #HealthCareMarketing #RareDisease #PharmaMarketing

Bionews and Friedrech’s Ataxia News are proud to present "Stronger Together" – a Patient and Caregiver Collaboration Webinar. Don’t miss this one-of-a-kind opportunity! Register today! ?? https://lnkd.in/gNDMC6Tn Join host and patient advocate, Sean Baumstark and panelists Kyle Bryant, Kiersten Riggs, Norm Simpson, and Victoria Arend Carbone as they evoke meaningful conversations and share their experience on living with FA. When: Wednesday November 6th 6 p.m. ET/3 p.m. PT #Bionews #FriedreichsAtaxia #FANews #Webinar #PatientVoice