Bionews, Inc.

Carlos Brece?’s wife posed a poignant question: “Do men ever talk about caregiving?” Her query sparked a realization for Carlos. Despite his years as a caregiver to his beloved wife, he had remained silent. Read more ??https://lnkd.in/gVjr3djj Like many men, Carlos Brice?o often felt the unspoken pressure to shoulder the burden alone. Yet, his story, and the stories of countless other caregivers, are a testament to the power of human resilience and the depth of love. Join Bionews, Inc. as we honor these stories and celebrate the profound impact of caregiving. #Bionews #Caregiving #CaregiverVoice #RareDisease

Navigating Pulmonary Hypertension is complex and unpredictable. Pulmonary Hypertension News strengthens the patient and caregiver journey with diverse and uniquely tailored information and resources. Jen Cueva, columnist for Pulmonary Hypertension News, exemplifies? resilience amid constant change. Her perspective offers invaluable insight into managing life with PH. Join Bionews, Inc. throughout November in recognizing individuals like Jen and the Pulmonary Hypertension community. #Bionews #PulmonaryHypertension #PHAwareness #RareDisease

Reach rare patients early: Build trust, drive results with Bionews The Challenge: Reaching rare disease patients at the crucial early diagnosis stage remains a hurdle for pharma marketers. They need trusted, condition-specific platforms to connect with patients and caregivers. Bionews, Inc. is the Solution: Our network of condition-specific platforms are more than just websites - they're trusted communities. Our 2024 Rare Patient Survey revealed: - 67% of patients turn to online resources during diagnosis. - Nearly half (45%) use health information sites. - 29% actively seek out online patient communities. - Only 9% use pharmaceutical/drug brand sites. We understand #rare because it's personal: Over 50% of Bionews employees have a personal connection to rare diseases, either through diagnosis or caring for a loved one. We bring a unique empathy and expertise to every interaction. Elevate Your 2025 Upfront Strategy: - Reach engaged audiences - Tap into established and engaged communities of patients and caregivers. - Build trust early - Become a trusted resource during the critical diagnosis phase. - Deliver impactful results - Drive awareness and engagement with your brand. - Ready to unlock the power of our rare patient insights? ** Contact us today!** ??https://lnkd.in/gj9x9zyC #Bionews #PatientVoice #PatientInsights #RareDisease

A Patient's Perspective: Go behind the scenes w/ Bionews' Patient Advisory Board Discover how our Patient Advisory Board is shaping the future of rare disease content, community, and care through personal experiences. Learn more: https://lnkd.in/gTkVpWnw #Bionews #PatientVoice #RareDisease

Yesterday’s Bionews town hall was electric! We reflected on 2024 wins, discussed our exciting future plans, and celebrated four incredible colleagues who embody our company's spirit. A huge shoutout to our Q4 Rare Impact Award winners: Paige Wyant Brad Dell Scott Chernin Andrew Z. Congratulations and thank you for your continued passion and commitment! Let's keep the momentum going! ?? #Bionews #RareImpact #EmployeeAppreciation #RareDisease

?? How do parents manage a shift in care for a child with a rare liver disease? For Liver Disease News columnist Jay Sandstrom, change in his son’s care team brings heightened anxiety and fear. Jay and his wife manage mixed emotions as they enter a new chapter in Finley's care. Read Jay’s full column here: https://lnkd.in/gHS5Rcfg Bionews, Inc. connects patients with columnists who share their lived experience. Our 50+ rare disease platforms offer unique resources and authentic voices, fostering hope and understanding. #LiverDiseaseNews #Bionews #ColumnistSpotlight #RareDisease #Caregiver

??Honoring caregivers during national family caregivers month This November, we celebrate the special individuals who provide unwavering care and support to their loved ones on complex health journeys. Bionews, Inc. is committed to empowering caregivers with the information, community and resources they need. Our caregiving columnists share real-life stories offering inspiration and practical advice. Juliet Taylor, columnist for ALS News Today and caregiver, emphasizes the importance of having open communication. “We are encouraging caregivers and their loved ones with ALS to have more honest conversations, released from the guilt that I and probably so many others felt, and feel." Join us as we recognize Juliet and our team of 36 family caregivers. Bionews remains dedicated to supporting and amplifying their voices within the rare disease community. #Bionews #FamilyCaregiver #RareDisease #CaregiverAwareness

At Bionews, we believe the patient's voice is critical to every decision we make. That's why we're proud to introduce our incredible Patient Advisory Board! These amazing individuals, living with conditions like MS, Sarcoidosis, and SMA, bring their lived experiences and unique perspectives to the table. They ensure Bionews, Inc.'s content is relevant, impactful, and empowering. Meet our Patient Advisory Board: - Desiree Lama: columnist, and social media moderator, multiple sclerosis - Kerry Wong: columnist, Sarcoidosis - Brandi Lewis: columnist, Paroxysmal nocturnal hemoglobinuria - Young Lee: columnist, Charcot-Marie-Tooth disease - DeAnn Runge: vlogger, SMA - Brad Dell: director of community content, cystic fibrosis - Kevin Schaefer: associate director of community content, SMA We also have a rotating guest seat! Learn more about our board > https://lnkd.in/g5ZMEVCz #Bionews #TeamWork #RareDisease #PurposeDriven

??Bionews - where teamwork makes the dream work! We recently met to chart our course for 2025. But it was more than strategy and data. Between embarrassing the boss with a slightly off-tune (but heartfelt!) rendition of "Happy Birthday," and shared laughs after hours, our team realized yet again why we work so well together. Working at Bionews, Inc. is much more than just a job. We are here to make a meaningful difference in the lives of those with rare diseases. When your work is driven by purpose, it shows up in every plan, every meeting, and every laugh we share. Work with us! Check our job openings: https://lnkd.in/ggHPkBvh #Bionews #TeamWork #RareDisease #PurposeDriven

?? Join us for a Patient and Caregiver Webinar on Life with Friedreich's Ataxia! ?? Register here ?? https://lnkd.in/gNDMC6Tn Host, Sean Baumstark , leads a powerful discussion with a panel of five individuals living with or caring for someone with Friedreich's ataxia. Whether you’re directly affected by FA or passionate about rare disease advocacy, don't miss this meaningful dialogue on the human experience of living with a rare disease. When: Wednesday, November 6th at 6pm ET/3pm PT #FriedreichsAtaxia #RareDisease #PatientAdvocacy #Resilience #SupportNetwork #RareDiseaseCommunity