Autoimmune Registry

The Autoimmune Registry hosts a monthly webinar to bring together patient advocacy groups related to autoimmune diseases. This month, we have invited Cara DeAngelis, the Director of Research at the?Global Lyme Alliance (GLA), who will discuss the latest research on Lyme disease and autoimmunity. While Lyme disease is an infectious disease, not an autoimmune one, some patients develop chronic symptoms that can resemble autoimmune disorders. Whether some of these symptoms are autoimmune or mimicking autoimmune diseases remains under investigation. Sign up and join! To learn more about the agenda and speakers, please visit our page: https://lnkd.in/eZFKPcN5. To join our webinar, sign up here: https://lnkd.in/ezk6Gxqm

The Autoimmune Registry hosts a monthly webinar to bring together patient advocacy groups related to autoimmune diseases. This month, we have invited Jenifer Ngo Waldrop, the Executive Director of?the?Rare Disease Diversity Coalition, who has?a proven track record of fostering organizational excellence and advancing initiatives that strengthen communities.?By promoting fairness, opportunity, and innovation, Jenifer creates meaningful solutions that improve access to care for underserved populations while supporting the success of organizations and fostering a culture of collaboration and shared purpose.?Sign up and join us on Thursday, February 20th from 1-2 pm Eastern! To learn more about the agenda and speakers, please visit our page: https://lnkd.in/gC95J34A. To join our webinar, sign up here: https://lnkd.in/gwnBGqaH

The Autoimmune Registry hosts a monthly webinar to bring together patient advocacy groups related to autoimmune diseases. On February 20th at 1pm ET, Jenifer Waldrop, the Executive Director of the Rare Disease Diversity Coalition will be a guest. Jenifer has a proven track record of fostering organizational excellence and advancing initiatives that strengthen communities. By promoting fairness, opportunity, and innovation, Jenifer creates meaningful solutions that improve access to care for underserved populations while supporting organizational success and fostering a culture of collaboration and shared purpose. Sign up and join! https://lnkd.in/gC95J34A #autoimmuneregistry #autoimmunedisease #webinar #rddc #rise4rare

The Autoimmune Registry hosts a monthly webinar to bring together patient advocacy groups related to autoimmune diseases. For January, we have invited Jenny Pagel-Guile, the Executive Director of The National Pancreas Foundation, to share how to leverage one’s medical professional partnerships for community education. To learn more about the agenda and speakers, please visit our page: https://lnkd.in/eSswMD-K. To join our webinar, sign up here: https://lnkd.in/exsjPXgm.

Grateful to explore cross-disease patient-powered shared research infrastructure this morning and learn from some great voices: Elizabeth Reynolds | Champ Foundation Aaron Abend | Autoimmune Registry Samuel Volchenboum | Data for the Common Good Thanks to Chan Zuckerberg Initiative for the opportunity to learn together

The Autoimmune Registry hosts a monthly webinar to bring together patient advocacy groups related to autoimmune diseases. For October, Shawn Ramagos and Christina Ramirez from Own MG will present to help attendees gain a better understanding of Myasthenia Gravis. To learn more about the agenda and speakers, please visit our page: https://lnkd.in/eY4n3GQK. To join our webinar next week, register here: https://lnkd.in/evQkx6uU

Did you miss the CAR-T presentation by Mazen Dimachkie, MD a few weeks ago? The Autoimmune Registry is providing another opportunity to hear Dr. Dimachkie and Mamatha Pasnoor, MD speak on this topic as well as clincial trials. To register please go here- registration link https://lnkd.in/e7gzygtW

The Autoimmune Registry is hosting our Clinical Trials Webinar Series next week on Monday, October 7th from 4-5 pm EST to educate those with autoimmune diseases about clinical trials and how to participate. For the month of October, we’re exploring new technologies used in autoimmune disease clinical trials. Specifically, we will focus on CAR-T therapy to better inform patients about the technology involved. We’ve invited Dr. Dimachkie and Dr. Pasnoor to present their research. To learn more about the agenda, please visit our page: https://lnkd.in/ebBHaKER. To join our webinar next week, register here: https://lnkd.in/e7gzygtW

The Autoimmune Registry hosts a monthly webinar to bring together patient advocacy groups related to autoimmune diseases. For September, Yan Valle, the Executive Director of Vitiligo Research Foundation, will present to inform attendees about the use of AI in patient education. To learn more about the agenda and speakers, please visit our page: https://lnkd.in/eMKjs4Cz. To join our webinar next week, register here: https://lnkd.in/gab7YV-K

The Autoimmune Registry is hosting our monthly webinar to bring together patient advocacy groups related to autoimmune diseases on Thursday, May 23rd from 12-1 pm ET via Zoom. To learn more about the agenda and speakers, please visit our page: https://lnkd.in/eMKjs4Cz.