American Parkinson Disease Association的封面图片
American Parkinson Disease Association

American Parkinson Disease Association

非盈利组织

Staten Island,New York 7,871 位关注者

Strength in Optimism. Hope in Progress.

关于我们

The American Parkinson Disease Association (APDA) is a nationwide grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to help the approximately one million with PD in the United States live life to the fullest in the face of this chronic, neurological disorder. Founded in 1961, APDA has raised and invested more than $252 million to provide outstanding patient services and educational programs, elevate public awareness about the disease, and support research designed to unlock the mysteries of PD and ultimately put an end to this disease. To join us in the fight against PD and to learn more about the support APDA provides nationally through our network of Chapters and Information & Referral (I&R) Centers, as well as our national Research Program and Centers for Advanced Research, please visit us at www.apdaparkinson.org.

网站
https://www.apdaparkinson.org
所属行业
非盈利组织
规模
51-200 人
总部
Staten Island,New York
类型
非营利机构
创立
1961

地点

American Parkinson Disease Association员工

动态

  • ?? ?? Today is World Social Work Day! A big heartfelt thank you goes out to all of the social workers in our Parkinson’s community for the compassion and care they bring to their work, and the difference they make in communities across the country and around the world. Hear from the host of a past episode of Unlocking Strength Within, Sheila Moore, LCSW, MSG, as she shares some wise words for care partners and caregivers. Moore is also APDA’s Information and Referral Specialist at the Pacific Neuroscience Institute at Providence St. John’s Medical Center in Santa Monica, CA. Watch Sheila’s episode and more by visiting the Unlocking Strength Within YouTube playlist at https://lnkd.in/e68QHJhX ? #WorldSocialWorkDay #NationalSocialWorkMonth #Parkinsons #SocialWork #StressManagement #SocialWorkMonth

  • Exercise and community are both incredibly important for Parkinson’s disease (PD) patients, and when you can combine the two, that’s even better! Recently, Dr. Gilbert sat down with Jeanie Veith, a person with PD, and Parkinson’s disease expert Dr. Jill Farmer, to discuss the unique social and medical challenges facing women with PD. Jeanie emphasized how important it was for her to establish strong social networks, especially of other Parkinson’s patients, and discussed how maintaining an exercise regimen has alleviated some symptoms and side effects of her medications. Watch the entire episode of Dr. Gilbert Hosts: Women & Parkinson’s for more information and helpful tips! ?? https://lnkd.in/ehk7EicV While we know that staying active is beneficial for people with PD, we recommend that you seek advice from a medical professional on what exercise regimen is right for you. #Parkinsons #PDResearch #PDAwareness #ParkinsonsDisease #PDOptimism #WomensHistoryMonth #WHM #DrGilbertHosts

  • This is your last chance to register for the next Dr. Gilbert Hosts and meet APDA researchers! Many researchers supported by APDA have leveraged our funding to gather essential pilot data, which frequently serves as a springboard to secure larger grants from esteemed institutions such as the National Institutes of Health and other funding partners. Register now to hear from three exceptional researchers and ask them your questions live during the program! ?? apda.link/DRGResearch #Parkinsons #PDResearch #DrGilbertHosts

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  • Parkinson’s can affect people with the disease and those who care about them: parents, siblings, partners, children, friends and co-workers. Recognizing that Parkinson’s disease can stress relationships in unexpected ways and being willing to discuss noticeable relationship changes with one another can allow relationships to become stronger and more supportive. ?? Read more and find resources at apda.link/Relationships #Parkinsons #PDSupport #PDResources

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  • Do you have a parent or parental figure living with Parkinson’s disease (PD)? We want to hear from you! We are looking for adult children of people with PD to take a quick survey to share the challenges you face, and to find out what resources you need most. In just a few short minutes, you can provide feedback that will help APDA create programs that truly support families like yours. ?? Thanks in advance for sharing your thoughts with us -- your insights will make a lasting impact! https://lnkd.in/eMbH8ZMy #Parkinsons #PDSupport #PDResearch #ParkinsonsDisease

  • Join us on March 20 at 2:00 PM (ET) / 11:00 AM (PT) for our next episode of Dr. Gilbert Hosts: Exciting Impact of APDA Research, and meet APDA researchers! APDA is dedicated to advancing the most promising scientific projects and supporting talented clinicians focused on uncovering the causes of Parkinson’s disease and finding a cure. We often provide critical seed funding that helps launch groundbreaking research, fostering innovation and encouraging early-career scientists to dedicate their lives to Parkinson’s research. Many researchers supported by APDA have leveraged our funding to gather essential pilot data, which frequently serves as a springboard to secure larger grants from esteemed institutions such as the National Institutes of Health and other funding partners. During this program, you’ll meet three exceptional PD researchers and learn how APDA’s investment has fueled their work, driven their discoveries, and shaped their careers: DR. CLEMENS SCHERZER Who was: an APDA George C Cotzias Memorial Fellow from 2004-2006 And now is: Stephen and Denise Adams Professor of Neurology & Director of the Stephen & Denise Adams Center for Parkinson's Disease Research at Yale University Will discuss: His research on precision neurology which uses massive data streams from genomes, transcriptomes, and longitudinal cohorts to predict and prevent the progression of Parkinson’s disease. DR. SUNIL KUMAR Who was: an APDA Research Grant Awardee in 2021 and 2022 And now is: Assistant Professor, Department of Neurology and Assistant Professor, Department of Chemistry and Biochemistry, Knoebel Institute of Healthy Aging at the University of Denver Will discuss: His research on identifying drug-like ligands that can specifically target and disrupt the aggregation of α-synuclein, a process that is directly associated with the development of PD DR. GIULIETTA RIBOLDI Who was: an APDA Post-Doctoral Fellow in 2018 And now is: Assistant Professor, Department of Neurology and Executive Director, The Marlene and Paolo Fresco Institute for Parkinsons and Movement Disorders at NYU Langone Medical Center Will discuss: Her research on the discovery of new genetic variants associated with Parkinson’s disease and other Movement Disorders to better understand how known and new genetic mutations contribute to disease mechanisms Join us for this informative discussion about PD research and the exciting trajectory they have experienced. Bring your questions, because our special guests will answer them LIVE during the program – so register today at apda.link/DRGResearch! Let's Stay Connected 1) SUBSCRIBE to our YouTube Channel to stay informed about other APDA videos. 2) Turn On YouTube Notifications to get alerts whenever we go live or upload new content. 3) Connect with APDA on Facebook, Instagram, Twitter, or LinkedIn at @APDAparkinsons.

    Dr. Gilbert Hosts: Exciting Impact of APDA Research

    Dr. Gilbert Hosts: Exciting Impact of APDA Research

    www.dhirubhai.net

  • Community support is incredibly important for anyone with Parkinson’s disease (PD), but sometimes women with PD lack sufficient support because they’re used to filling the caregiver role themselves. In a recent episode of Dr. Gilbert Hosts, Dr. Gilbert sat down with Dr. Jill Farmer and Jeanie Veith, an advocate and person with PD, to discuss how Parkinson’s disease presents in women and some of the unique social issues affecting women with PD. Jeanie Veith points out, “Women are often trained to be caregivers, and we have that role whether we are Parkinson’s patients or not…For those of us who are people with Parkinson’s and female, it’s sometimes difficult for our male family members to assume that role of caregiver because they haven’t learned how to do that.” Watch the full episode for answers to your questions about treatment options and solutions for women with PD, and don’t forget to tune into the next episode of Dr. Gilbert Hosts! ?? https://lnkd.in/ehk7EicV #Parkinsons #PDResearch #PDAwareness #ParkinsonsDisease #PDOptimism #WomensHistoryMonth #WHM #DrGilbertHosts

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  • Join us on March 12 at 2:00 PM ET / 11:00 AM PT for Thriving Through Occupational Therapy - Strategies for Memory & Thinking with PD. This episode of APDA’s Thriving Through Occupational Therapy series focuses on how Parkinson’s disease affects memory and thought processes and what you can do about it. Amanda Landsbaum, MS, OTR/L, will discuss the types of changes that can occur, how that may look in everyday life, and strategies that can help. Our host will also answer your questions LIVE during the program, so register today at apda.link/OTMemory! Let's Stay Connected 1) SUBSCRIBE to our YouTube Channel to stay informed about other APDA videos. 2) Turn On YouTube Notifications to get alerts whenever we go live or upload new content. 3) Connect with APDA on Facebook, Instagram, Twitter, or LinkedIn at @APDAparkinsons

    Thriving Through OT: Strategies for Memory & Thinking with PD

    Thriving Through OT: Strategies for Memory & Thinking with PD

    www.dhirubhai.net

  • It’s National Social Work Month, and at APDA, we are fortunate to work with many talented social workers. We are grateful to have their expertise – this month and every month! ?? Hear from social worker Nicole Reidy, DSW, LCSW, ICDVP, as she offers a tip to help manage stress. As always, you can find more resources and support on our website at apda.link/Home Reidy is the APDA I&R Coordinator at the University of Chicago Parkinson and Movement Disorder Clinic. #NationalSocialWorkMonth #Parkinsons #SocialWork #StressManagement #SocialWorkMonth

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