AORTIC HOPE

AORTIC HOPE

民间和社会团体

Herndon,Virginia 1,154 位关注者

Connecting Hearts, One Beat At A Time.

关于我们

Aortic Hope is a community of Aortic Disease patients, survivors, and caregivers. We Spread Hope, Create Awareness and Provide Support to patients, survivors, and caregivers during the recovery and management of aortic disease.

网站
https://aortichope.org
所属行业
民间和社会团体
规模
2-10 人
总部
Herndon,Virginia
类型
非营利机构
创立
2016

地点

AORTIC HOPE员工

动态

  • 查看AORTIC HOPE的公司主页,图片

    1,154 位关注者

    Join Aortic Hope on our Facebook Page on Tuesday, November 26th, beginning at 6:30 pm EST for Ask A Dr. with Dr. Siddharth Prakash.? Dr. Prakash will be available to answer your questions regarding anything you may have on your mind that is Aortic-related. THIS IS A LIVE EVENT, which means if you wish to ask anonymous questions, please submit them here:? https://lnkd.in/gyhZHe5b This event will simultaneously be taking place on AHTV, our YouTube Channel. We will share FB questions and answers there and vice-versa.? https://lnkd.in/eN6UAycV *As always, information shared during this live event is to be used for information purposes only. Please discuss any questions you have with your personal physician.? Dr. Prakash obtained his Ph.D. in molecular and human genetics and received subspecialty training in cardiovascular disease at Baylor College of Medicine. His research focuses on genetic causes of bicuspid aortic valves and related congenital abnormalities involving the left ventricular outflow tract and aorta. This work is partly supported by a KL2 award from the Center of Clinical and Translational Sciences. His clinical specialty is cardiovascular medicine and aortic imaging. He co-directs the Multidisciplinary Aortic and Vascular Disease Clinic in the UT Professional Building with Dr. Milewicz. #aortaed #aortichope

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    1,154 位关注者

    We are so proud to share with you the sixth in a series that was recorded and hosted by 4th-year Medical Student and Aortic Hope Ambassador Adham Ahmed. Please enjoy listening to Episode 6 from the 2024 TSMA Aorta Chat featuring Aortic Hope board member and Survivor, Terri Cook. https://lnkd.in/eE8iqXDh... #aortaed #aortichope

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    1,154 位关注者

    Medical Trauma experienced as a result of medical procedures, illnesses, and hospital stays can have lasting effects. According to PAINSCALE, in an article titled: What to Do When Medical Trauma Interferes With Current Medical Care, the author shares the following: "Medical trauma is an emotional response to a serious event involving medical care. For example, medical trauma can develop after an unpleasant treatment, painful procedure, or hospitalization in the intensive care unit. Medical trauma can also occur when an error is made, such as when the wrong medication is prescribed or when a surgical mistake leads to a complication." Sometimes, experiencing Medical Trauma or PTSD from a medically related event can be especially problematic because it can make us not want to go back for a follow-up, not trust taking medications, or even not agree to a procedure. Here is an overview of 6 steps to take when trauma interferes with your care: 1. Consider appointment times 2. Involve a family member/friend 3. Be honest with your medical team 4. Try breathing or relaxation techniques 5. Be willing to ask for help (there are a variety of therapeutic methods to help) 6. Seek a new doctor if necessary. For details about the six steps, check out the article here: https://lnkd.in/ebNkVyq3 #aortichope

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    1,154 位关注者

    Worth a read!

    查看Benjamin Youdelman的档案,图片

    Director of Thoracic Aortic Surgery, Co-Director Maimonides Aortic Center, Brooklyn, New York

    Aortic dissection has remained one of the greatest challenges in surgery. Significant technological advancements in cardiopulmonary bypass, myocardial protection, and endovascular aortic repair have moved the needle some, but outcomes remain disappointing. We as aortic surgeons in multidisciplinary aortic centers around the United States and the world have isolated ourselves from each other at "completing" institutions, and sometimes within the same institution! All of us lose when we don't work together to find out answers. How can we improve outcomes from aortic dissection? I commend the IMPROVE-AD trial principal investigators for their stalwart dedication to find more answers for type B dissections. But what about answers for type A dissections? We think the outcome for type A dissections are 60% survival at 10 years, but we really don’t know. Misdiagnosis, late diagnosis, and no mandatory reporting leaves us in the dark about the real outcomes. I think we should consider a Type A dissection national registry. Even with all the shortcomings we need this, but we need buy in. What's in it for me? What makes this worth my time? How do I explain using my nurse practitioners, nurses, physician associates, administrative support team for this effort? Maybe, just maybe, it’s time we stopped the blockade on progress in these complicated areas of aortic surgery and worked together to get some answers. The questions I get asked by medical students and residents about outcomes from Type A dissections now, are the same questions I asked 25 years ago in Medical School, and we still do not have sufficient answers.....although we have some....THINK AORTA, because the faster you identify the aortic dissection, the better the outcome. Resolve malperfusion before taking the patients for a Type A repair or you will have a terrible outcome and malperfusion to the brain results in a terrible outcome. Let's figure out how to share all the national data for type A dissections and work together.....crazy idea I know, but I think we can. Many of us have come up together as colleagues and friends and are now in positions of significance in programs around the country. Many of us want to know the answers, and many of us are sad that we know so little about this disease and how to make things better for these patients and families. I am proud to be part of the THINK AORTA international campaign. Raising awareness about aortic disease, early identification of aortic dissection, and the THINK AORTA THINK FAMILY campaign has helped save lives. Teaching healthcare practitioners and the families with aortic disease that the family is now at risk and needs to be checked out is progress, but there is larger project. We need to establish a US Aortic Dissection Registry now. I want to make sure we don't have this same conversation in 25 years from now. --Benjamin A Youdelman, Brooklyn, New York

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    1,154 位关注者

    Aortic Dissection Pearls In this article you will learn everything and more about Aortic Dissections. Identify the clinical signs and symptoms of aortic dissection to ensure timely recognition in patients presenting with chest pain. Differentiate between aortic dissection and other potential causes of acute chest pain, such as myocardial infarction or pulmonary embolism. Select the most effective pharmacologic interventions to manage blood pressure and heart rate in patients with aortic dissection. Collaborate with surgical and medical teams to develop a comprehensive management plan for patients diagnosed with aortic dissection. To read more of this amazing article, just click on the link below: https://lnkd.in/gb3jZnFS #aortaed #aortichope

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    1,154 位关注者

    If you are preparing for open heart surgery, this is worth a listen. #aortichope #HVV

  • 查看AORTIC HOPE的公司主页,图片

    1,154 位关注者

    If you would like to listen to or watch a video version of ???????????? ????????????????????: ?????? ?????????????? ??????????, you can now do so by clicking the following link: https://lnkd.in/euD2YT7A Every section from Parts A, B, and C has been broken down into easy-to-understand recordings and videos. Now, you have many different ways of learning about Aortic Dissection. You can always download the guide or have your clinician order a box of 25 to distribute to patients and caregivers, and finally, visual/auditory. These can all be accessed on our website: https://lnkd.in/g2WgrTrt #aortaed #aortichope #thinkaorta

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  • 查看AORTIC HOPE的公司主页,图片

    1,154 位关注者

    We are so proud to share with you the fifth in a series that was recorded and hosted by 4th-year Medical Student and Aortic Hope Ambassador Adham Ahmed. Please enjoy listening to Episode 5 from the 2024 TSMA Aorta Chat featuring Think Aorta US board member and Aortic Hope Ambassador Tim O'Reilly https://lnkd.in/eKHgUZuW... #aortichope #aortaed

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