Join us in honoring the 10th Anniversary of the Ice Bucket Challenge with a chance to win tickets to the Game Changer Gala, Super Bowl week in New Orleans! In 2014, Pete Frates and Pat Quinn sparked a viral ALS fundraising campaign by encouraging people to pour ice on themselves, donate, and then challenge others to do the same. 10 years later, instead of asking people to cover themselves in ice, we are challenging people to give $50 "ice cubes" for an opportunity to WIN: Two tickets and a hotel stay for the 2025 Game Changer Gala, February 4-5, 2025. For Gala details: www.GameChangerGala.com We are extending the campaign for 30 days, so grab your chance to win at the link below until September 28th! https://lnkd.in/ggegzB4T
ANSWER ALS
研究服务
New Orleans，Louisiana 483 位关注者
We are building and sharing the most comprehensive clinical, genetic, molecular & biochemical assessment of ALS.
关于我们
We are building and sharing the most comprehensive clinical, genetic, molecular & biochemical assessment of ALS, while openly sharing the results with the global research community.
- 网站
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https://answerals.org
ANSWER ALS的外部链接
- 所属行业
- 研究服务
- 规模
- 2-10 人
- 总部
- New Orleans，Louisiana
- 类型
- 非营利机构
- 创立
- 2015
地点
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主要
获取路线
2021 Lakeshore Drive
304
US，Louisiana，New Orleans，70122
ANSWER ALS员工
动态
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Although we know there are many options for Voice Banking, Answer ALS and the Voice Keeper teamed up to repurpose our existing iPhone voice collection app for research into a voice banking app for people with ALS at no cost. Additional functionality is being added for those who utilize the app to participate in more in-home research, including the use of their voice samples. Meanwhile, the once-dormant app can now provide ai generated voices for those with ALS and who use a variety of communication devices. https://lnkd.in/gu56BjFu
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ANSWER ALS转发了
Jenny Lay-Flurrie says it so well! For over a decade we have been on an “impossible” mission led by Steve Gleason. So proud to be a part of the team! ANSWER ALS Team Gleason Foundation #courage #nowhiteflags ??
Chief Accessibility Officer @ Microsoft | Product Inclusion, Equity and Accessibility | Board Member | Speaker
Tonight, Steve Gleason was awarded an ESPY, the Arthur Ashe Award for Courage. Beautiful recognition of his work as an NFL player, father, husband and leader, working to provide technology to people with ALS and find a cure to the disease. Congratulations Steve. We are so proud to work with you, Team Gleason Foundation and ANSWER ALS. Thank you for inspiring Microsoft, pushing us to advance #accessibility to empower people with ALS (pALS). And for teaching us all such important life lessons along the way. Enjoy this well-deserved recognition my friend. Onwards ?? ?? Award speech: https://lnkd.in/gtvMRk2q ?? How Steve Gleason continues to persevere and inspire others: https://lnkd.in/gepc83t8 ?? Steve. "It is its vital that we all, individually and collectively discover ways to be courageous, and love the life we have."
Steve Gleason honored to win the Arthur Ashe Award for Courage | 2024 ESPYS
https://www.youtube.com/
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We are so grateful for this community of researchers, advocates, and people living with ALS who choose to come together to help find solutions to the disease, as well as other diseases like Alzheimer's and Parkinson's, to name a few. #Together to #AnswerALS #NotImpossible
We want to thank everyone who attended and spoke at the inaugural IgNight event in Washington, DC, one week ago today. It was exciting to have Steve Gleason there for a book signing of A Life Impossible and his reading using his new AI voice. Steve was introduced by the always entertaining, James Carville. A huge thanks to speakers Fred Humphries, Farhad Imam, Jeffrey Rothstein, Emily Baxi, Klaus Romero, and moderator extraordinaire Milan Karol. Thanks also to Stefan Beese for your incredible design and patience and Kissy Black for her help in coordinating. The theme of the event was "the spark when science, creativity, and technology converge." Poet, Ephraim Nehemiah, said it best when he performed and ended with these words: "...They say if you rub your hands together fast enough, you can conduct your own heat The spark we need Is in the palm of our hands Bridging the gap between impossible and possible Is right here if we would just be willing To reach for it." A big thanks to sponsors: Jones Walker LLP, Mitsubishi Tanabe Pharma America, Critical Path Institute (C-Path), Robert Packard Center for ALS Research at Johns Hopkins, AcuraStem, and Scientific American #ImpossibleIsJustAWord #Together
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ANSWER ALS转发了
The momentum is continuing with samples and data out of ANSWER ALS and its consortium of partners. The results suggest that iPSC-derived motor neurons recapitulate important disease-relevant epigenomic changes. Read more below.
Another paper in a series where we are looking at the largest set of iPSC derived motor neurons from patients with ALS - this time using ATAC seq... https://lnkd.in/g-sTkf4F
Disease related changes in ATAC-seq of iPSC-derived motor neuron lines from ALS patients and controls - Nature Communications
nature.com
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More news as a result of using the cells of nearly 400 Answer ALS participants. "Working with the Answer ALS consortium, a team of MIT researchers has analyzed epigenetic modifications — tags that determine which genes are turned on in a cell — in motor neurons derived from induced pluripotent stem (IPS) cells from 380 ALS patients. This analysis revealed a strong differential signal associated with a known subtype of ALS, and about 30 locations with modifications that appear to be linked to rates of disease progression in ALS patients. The findings may help scientists develop new treatments that are targeted to patients with certain genetic risk factors." Read more here: https://lnkd.in/g3GhCDFT #Together to #AnswerALS
Epigenomic analysis sheds light on risk factors for ALS
news.mit.edu
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For every son, every daughter, every mother, and father. Let's continue to ignite the flame of innovation and incinerate ALS. #Together
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Huge congrats to Answer ALS Investigator, Jennifer Van Eyk, PhD, for receiving the Catherine E. Costello Award for Exemplary Achievements in Proteomics from US HUPO. The Catherine E. Costello Award for Exemplary Achievements in Proteomics recognizes an individual who has made significant discoveries and accomplished scientific achievements in the field of proteomics. We are so proud of not only Jenny's recognition, but mostly for her work to help us advance answers to ALS. Well done, Jenny! https://lnkd.in/g_gecP_w
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ANSWER ALS转发了
With new products and partnerships, we're helping people and organizations apply this next generation of AI to advance accessibility with more universally inclusive design.
Chief Accessibility Officer @ Microsoft | Product Inclusion, Equity and Accessibility | Board Member | Speaker
Its finally here. Ability Summit 2024. Advancing a culture of #accessibility, together. 70 speakers, sharing latest in accessible technology, and approach to responsible accessible AI. And launching a few things along the way. Check out some of the goodness below. Starting 8am PST, join live and on demand: www.aka.ms/AbilitySummit #AbilitySummit https://lnkd.in/gkuFSmBE
Ability Summit 2024: Advancing accessibility with AI technology and innovation - The Official Microsoft Blog
blogs.microsoft.com
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The data of over 1000 people living with ALS at work. #Together to #AnswerALS
OK, here is pretty breakthrough news that we will not put much efforts to pitch to media yet. In March 2022, I met the wonderful Jeffrey Rothstein and merit cudkowicz during the ANSWER ALS consortium meeting where they invited me to present. And I also met Bai Lu, founder of 4B Technologies, Ltd. We did the analysis of AnswerALS data using PandaOmics, validated in a fly model and published (https://lnkd.in/geSgx2Fb). In early 2023, 4B Technologies started a Phase II study based on this research and started enrolling patients with a repurposed drug. ?? Now, a year later, this Phase II study is fully-enrolled!???? While we are yet to see the results, the sheer speed of this work is spectacular. And deep bow to 4B Technologies and professor Bai Lu for taking a shot at this terrible disease with a target out of AI. Links in the comments
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