Angelman Biomarkers & Outcome Measures Alliance (A-BOM)

The Angelman Biomarkers and Outcome Measures Alliance (the A-BOM) is a new group formed by both FAST and ASF, together with researchers and pharmaceutical corporations to help move new treatments to the clinical trial phase. There are many new medications and treatments for Angelman syndrome that are coming close to being ready for clinical trials. We need rigorous ways to measure if these treatments improve the quality of life for patients and families. Our alliance includes scientists, foundations, and corporations, all working together to share in research, studies, trials, and stories to help people with Angelman syndrome.

网站

https://angelmanbiomarkers.org

Angelman Biomarkers & Outcome Measures Alliance (A-BOM)的外部链接

所属行业

生物技术研究

规模

11-50 人

总部

Nashville ，TN

类型

非营利机构

创立

2016

领域

research、scientific findings、community collaboration、scientific reviews、angelman syndrome、clinical trials、clinical studies、community outreach、rare disease和rare action