ALS United Mid-Atlantic

March is National Social Work Month! In this week's ALS United Mid-Atlantic GOALS Podcast, social workers Melissa Coll and Anne Cooney discuss their work assisting ALS patients and families, the value of a multidisciplinary treatment center, navigating insurance, and advocating for the ALS cause. Click the link to watch and share on YouTube or listen on Spotify or iTunes. https://lnkd.in/eDnkK8Si #ALS #alsunited #socialwork #socialworker #socialworkers #advocacy

ALS United Mid-Atlantic is excited to welcome many esteemed ALS clinicians and researchers to our Help & Hope Symposium on Thursday, April 10th. This year's symposium will feature topics ranging from home accessibility to updates on local research projects. We are thrilled to have the Lehigh Valley Health Network as one of our sponsors! As one of our sponsors, the Lehigh Valley Fleming Neuroscience Institute will have a table in our exhibitor hall, where attendees can learn more about the clinic and the wide array of neurology and neurosurgical services they offer.

BONUS Episode - Jackie Cox joins the ALS United Mid-Atlantic GOALS Podcast to discuss her upcoming event at Haverford College to raise money and awareness for the ALS cause in memory of her mother. The 10th Annual Susan Aronchick Concert takes place on April 4th at 7:00 PM. See details in the comments to learn how you can join this great event to benefit ALS programs. #ALS #ALSUnited #Haverford #Podcast https://lnkd.in/e4Kj5D_K

ALS United Mid-Atlantic is proud to join with 29 other ALS and neurodegenerative disease organizations to submit FY 2026 funding requests to US House and Senate Appropriations committee members. These requests include: Increase CDMRP funding for ALS to $80 million Fully fund ACT for ALS at $100 million Increase NIH research for ALS to $180 million Expand CDC ALS research spending to $15 million To join our ALS advocacy efforts, visit www.alsmidatlantic.org or email [email protected] #ALS #ALSUnited #advocacy

Congress passed a Continuing Resolution that significantly cuts funding for the Congressionally Directed Research Project at the Department of Defense. ALS United Mid-Atlantic is working with our ALS United partners and ALS organizations from across the country to preserve ALS research funding and increase it for the future FY 2026 budget. Learn more about how to become an advocate at www.alsmidatlantic.org #ALS #Advocacy #Government

Episode 5 of the ALS United Mid-Atlantic GOALS Podcast is now live, featuring a discussion with Alisa Brownlee about ALS and Accessibility. Listen on iTunes or Spotify or watch and share on YouTube now: https://lnkd.in/e_KjF9ZK #ALS #ALSUnited #Podcast #accessibility

Alisa Brownlee talks on the ALS United Mid-Atlantic GOALS Podcast to talk about the personal connection of ALS care. Join our mission at www.alsmidatlantic.org #ALS #ALSUnited #podcast #caregiving #healthcare

Join us at our Help and Hope Symposium on Thursday, April 10th, with keynote speaker Zachary Simmons, MD.

ALS United Mid-Atlantic is deeply concerned regarding the proposed 57% cut to FY25 funding for the Congressionally Directed Medical Research Programs - CDMRP reducing the program's budget from $1.5 billion to $650 million. This cut directly affects critical ALS research, reducing efforts for vital treatments and cures. We urge Congress to retain essential funding and support #ourALScommunity. Join us in protecting ALS research: Take Action: https://lnkd.in/eG8VdHE4 To learn more about how to directly contact your elected leaders and be part of ALS advocacy, email [email protected] #ALSResearch #ALS #ALSUnited"

March 10th to 16th is Brain Awareness Week. As part of Brain Awareness Week, the ALS United Mid-Atlantic GOALS Podcast features a discussion with members of I AM ALS to discuss the Tim Lowery Series. Watch, Listen, and Share as we focus on topics of building a community, advocacy, and empathy. Find the audio version on Spotify, iTunes, and Podbean. #ALS #ALSUnited #ALSawareness #BrainAwarenessWeek https://lnkd.in/e5dTTHgS