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You want to be a better patient advocate. What do you need to know?

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Being a patient advocate means supporting and empowering people who are facing health challenges, navigating complex systems, and making difficult decisions. It's a rewarding but demanding role that requires a range of skills and knowledge. If you want to be a better patient advocate, here are some things you need to know.

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1 What is patient advocacy?

Patient advocacy is the act of speaking up for, representing, or assisting patients in various settings, such as hospitals, clinics, insurance companies, or legal matters. Patient advocates can be professionals, volunteers, family members, or friends of the patients. They can help with tasks like finding information, communicating with providers, coordinating care, managing bills, resolving complaints, and ensuring patients' rights and preferences are respected.

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Joy Rosentel

RN, BC-AMB, CCM, CPHQ, Health Plan Clinical Operations Consultant.
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Fighting for the right. The patients 'job' is to get well. Engery spent fighting for services is not part of the treatment plan. Patient Advocates shoulder that burden. Care navigation is difficult, even for those of us who have spent our careers in the system. How much more difficult is it when you are at your worst physically and emotionally. Champions go into battle to defeat the red tape dragons, slay the medical jargon, and bring peace and security back as the victory prize. At least thats how the patients and their loved ones see their advocates.

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Katell Maguet

Researcher I Cancer Patient advocate I Speaker > EUPATI fellow <
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Etre la voix des patients aux différentes étapes du parcours de soins mais aussi dans le process de recherche, de la recherche fondamentale, en passant par l'industrie pharmaceutique ou encore les différents acteurs de la filière médicale. Il y a énormément de choses à faire, c'est un métier récent, qui prend de l'ampleur et qui se professionalise. Il est important d'être aligné avec ses objectifs et si on est patient soi-même, d'avoir le recul nécessaire pour mener à bien les différentes missions. C'est un r?le qui peut être psychologiquement difficile. Il est important de se faire accompagné et de prendre du recul.

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Darlene Farmbry-Christy, BCPA

Founder, My Healthcare Champion/Board Certified Patient Advocate/Community Educator/Public Speaker, Content Creator
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Knowing how to communicate better with patients and families, in a way that make them feel HEARD and understood is crucial. This means not just listening, but ACTIVE listening, which includes acknowledging and reflecting back the patient's concerns, so they know you are right there with them. This also means eliminating medical jargon and speaking in plain language, that anyone (with or without a medical degree) can understand what is being communicated. We encourage patients to ask questions at their doctor's visits, so as advocates we must ask questions and clarify too, not assuming anything. When we get off to a good start with ease in communication, that sets a great pace to move forward and tackle challenges that need to be addressed.

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Lorraine H Gatsi

RGN/ Medical surgical/Stroke Unit /HDU/Elderly care
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Advocating for patients is the best act a health practitioner can do.This comes with empathy, and this will drive you to stand for your patient.

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2 Why is patient advocacy important?

Patient advocacy is important because it can improve the quality, safety, and outcomes of health care for patients and their families. Patients who have advocates are more likely to feel satisfied, informed, and empowered in their health journey. Advocates can also reduce the stress, confusion, and frustration that patients often experience when dealing with complex and fragmented systems. Additionally, patient advocacy can promote social justice and health equity by addressing the barriers and disparities that affect vulnerable and marginalized populations.

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3 What skills do you need as a patient advocate?

As a patient advocate, you need a variety of skills to effectively support and empower your clients. Communication is essential; you need to be able to listen actively, speak clearly, ask questions, and convey information in a respectful and empathetic way. You must also be able to communicate with different audiences, such as patients, providers, insurers, and lawyers, adapting your style and tone accordingly. Research is important too; you must be able to find, evaluate, and synthesize relevant and reliable information from various sources. Additionally, you need to be able to present and explain the information to your clients in a way that they can understand and use. Problem-solving is another skill required of patient advocates; you must be able to identify, analyze, and resolve the issues and challenges that your clients face. You also need to be able to think creatively, strategically, and collaboratively to find the best solutions for your clients. Lastly, advocacy is necessary; you must be able to advocate for your clients' rights, interests, and preferences in different situations. You must also empower your clients to advocate for themselves and participate in their own care decisions.

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4 What knowledge do you need as a patient advocate?

As a patient advocate, you need to be well-versed in various topics related to health care and patient rights. This includes having an understanding of health literacy and how to help clients improve their own health literacy skills, as well as knowledge of the health care systems in your area, including the types, levels, and standards of care, the roles and responsibilities of providers, the payment and reimbursement models, and the regulations and policies that govern them. You should also be familiar with patient rights and ethics such as informed consent, confidentiality, privacy, autonomy, beneficence, and justice. It is important to know how to help clients navigate and access the health care systems they need and are eligible for, as well as how to help them exercise and enforce their rights and responsibilities.

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Katell Maguet

Researcher I Cancer Patient advocate I Speaker > EUPATI fellow <
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C'est important de continuer de se former et de se tenir au courant des dernières recherches, des changements législatifs, et aussi dans la prise en charge. Le métier de patient advocate est récent et est en constante évolution. De nouvelles formations voient le jour, que ce soit en présentiel ou en ligne, en fran?ais ou en anglais. Faire partie d'une association de patients permet d'échanger et de rester en contact. Se créer un réseau international permet de voir ce qui se fait ailleurs, ce qui est très enrichissant.

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5 How can you learn and improve as a patient advocate?

As a patient advocate, it is essential to be committed to lifelong learning and improvement due to the ever-changing health care field. You can gain knowledge and skills by pursuing formal education or training programs, such as health education, social work, or nursing. You can also gain hands-on experience by working or volunteering as a patient advocate in different settings. Additionally, networking with other patient advocates and health care professionals can help you exchange information and find support for your career development. You can also access various resources that can help you stay informed about the latest trends, research, and best practices in patient advocacy and health care.

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6 Here’s what else to consider

This is a space to share examples, stories, or insights that don’t fit into any of the previous sections. What else would you like to add?

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Sharon S-Samuel

Healthcare Business Intelligence Analyst and Product Manager | International student career coach | UI/UX Designer| Helping healthcare organizations make data-driven decisions| Author & Speaker
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As a patient advocate your understanding of the healthcare system in your area, including insurance coverage and billing practices, can help you navigate administrative processes and advocate for fair treatment. Also being a great communicator is important part of patient advocacy

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You want to be a better patient advocate. What do you need to know?

1

2

3

4

5

6

1 What is patient advocacy?

2 Why is patient advocacy important?

3 What skills do you need as a patient advocate?

4 What knowledge do you need as a patient advocate?

5 How can you learn and improve as a patient advocate?

6 Here’s what else to consider

Patient Advocacy

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You want to be a better patient advocate. What do you need to know?

1

2

3

4

5

6

1 What is patient advocacy?

2 Why is patient advocacy important?

3 What skills do you need as a patient advocate?

4 What knowledge do you need as a patient advocate?

5 How can you learn and improve as a patient advocate?

6 Here’s what else to consider

Patient Advocacy

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