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What are the most effective ways to collect patient feedback for advocacy programs?

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Patient feedback is essential for evaluating and improving advocacy programs in healthcare settings. Advocacy programs aim to empower patients to voice their needs, preferences, and concerns, and to support them in navigating the healthcare system. However, collecting patient feedback can be challenging, especially when dealing with sensitive or complex issues, diverse populations, and limited resources. In this article, we will discuss some of the most effective ways to collect patient feedback for advocacy programs, and how to use it to enhance your services and outcomes.

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1 Identify your goals and indicators

Before you start collecting patient feedback, you need to have a clear idea of what you want to measure and why. What are the goals and objectives of your advocacy program? What are the expected outcomes and impacts for the patients and the organization? How will you know if you are achieving them? You need to identify specific and measurable indicators that reflect your goals and outcomes, and that can be tracked over time. For example, you may want to measure patient satisfaction, engagement, empowerment, knowledge, or quality of life.

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Sophia Zilber ??

Associate Director, Statistical Programming at Alexion | Vice President and patient registry director at Cure Mito Foundation | Rare Disease patient advocate
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Patients feedback can be collected through surveys, interviews or other methods - consider what's convenient and most optimal for the patients you are looking to collect feedback from, how you plan to work with collected data and report results. Be sure to publish or report back what was found, let patients know about any findings that came out, and acknowledge patients who participated in any publication or report that comes out!

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2 Choose your methods and tools

Once you have your goals and indicators, you need to decide how you will collect patient feedback. There are many methods and tools available, such as surveys, interviews, focus groups, observation, feedback forms, or online platforms. Each method has its advantages and disadvantages, depending on your context, resources, and target population. You need to consider factors such as the reliability, validity, feasibility, and ethics of your chosen methods and tools. You also need to ensure that they are accessible, inclusive, and respectful of the patients' diversity, privacy, and preferences.

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Dr. Shane Ryan Apperley ???????? DMS, MSc, PGCert, MAcadMEd CHEP, FRSPH, MPLC, PA-R

Associate Professor, Franklin Pierce University (FPU) ? Visiting Professor, University of the West of England (UWE) ? Medical Professional Legal Consultant ? Doctor of Medical Science ? Physician Associate (PA) ? Veteran
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In my experience, inclusivity, reliability and validity of the sampling method are all important things to consider when choosing an effective tool. Be mindful as to your fixed resources (money, time, man-power etc.) and the limitations of each methodology - I still see a lot of surveys be issued but typically these come with low response rates. The last survey I sent out only had 14% of the sample reply.

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3 Engage your stakeholders

Collecting patient feedback is not a one-way process. You need to engage your stakeholders, such as the patients themselves, their families, caregivers, advocates, and healthcare providers, in the design, implementation, and analysis of your feedback collection. Stakeholder engagement can help you to understand the patients' perspectives, needs, and expectations, and to tailor your methods and tools accordingly. It can also help you to build trust, rapport, and collaboration with the patients and other stakeholders, and to increase their participation and response rates.

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4 Analyze and report your findings

After you collect patient feedback, you need to analyze and report your findings in a meaningful and actionable way. You need to use appropriate statistical or qualitative techniques to summarize, compare, and interpret your data. You also need to present your findings in a clear, concise, and engaging way, using visual aids, charts, graphs, or stories. You need to highlight the key insights, trends, and recommendations that emerge from your feedback collection, and how they relate to your goals and indicators.

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Mary Beth Schoening

Digital Health Strategist | Business,Product, Market Strategy; Patient Engagement; Data Insights
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Stories and/or patient quotes to show the human side of data can make the data more meaningful. Often insights are synthesized and narrowed down to major themes, or sub heads. Supporting each theme with a quote is a powerful way to connect the human element to raw data.

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5 Use your feedback to improve your program

Collecting patient feedback is not an end in itself. You need to use your feedback to improve your advocacy program and its outcomes. You need to communicate your findings and recommendations to your stakeholders, and to solicit their feedback and input. You need to identify the strengths and weaknesses of your program, and the opportunities and challenges for improvement. You need to plan and implement actions based on your feedback, and to monitor and evaluate their effects. You need to create a feedback loop that allows you to continuously learn from and adapt to your patients' feedback.

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6 Here’s what else to consider

This is a space to share examples, stories, or insights that don’t fit into any of the previous sections. What else would you like to add?

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What are the most effective ways to collect patient feedback for advocacy programs?

1

2

3

4

5

6

1 Identify your goals and indicators

2 Choose your methods and tools

3 Engage your stakeholders

4 Analyze and report your findings

5 Use your feedback to improve your program

6 Here’s what else to consider

Healthcare

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What are the most effective ways to collect patient feedback for advocacy programs?

1

2

3

4

5

6

1 Identify your goals and indicators

2 Choose your methods and tools

3 Engage your stakeholders

4 Analyze and report your findings

5 Use your feedback to improve your program

6 Here’s what else to consider

Healthcare

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