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How can you ensure your advocacy efforts include all patient populations?

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Patient advocacy is the act of supporting, empowering, and representing the interests and needs of patients, especially those who face barriers or challenges in accessing quality health care. As a patient advocate, you may work with individuals, groups, or communities to help them navigate the health system, communicate with providers, access resources, and participate in decision-making. However, not all patient populations are the same, and you may need to adapt your advocacy strategies to different contexts and cultures. How can you ensure your advocacy efforts include all patient populations? Here are some tips to guide you.

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1 Understand the diversity of patient populations

Patient populations are not homogeneous groups that share the same characteristics, experiences, and preferences. They may differ in terms of age, gender, race, ethnicity, religion, language, disability, socioeconomic status, sexual orientation, health literacy, and health conditions. These factors may influence how patients perceive, access, and use health care, as well as how they cope with illness and treatment. As a patient advocate, you need to understand the diversity of patient populations and how it affects their health outcomes and needs.

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Brandan Torka

Veteran U.S. Army Healthcare Manager, with flexible skills to work in myriad industries
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Don't worry too much about not being able to help "all" populations with your advocacy efforts. Superlatives often miss the dynamics of your patient populations. Dynamic and diverse - that's what your patient populations are going to be. Trying to create programs that attempt to include all your patients can make you lose the specificity needed to provide care for certain populations. For example, the needs of a young adult are different from the needs of a geriatric patient. But that doesn't mean that you should be too specific in your efforts. Too broad in your approach can cause you to miss the details. Too narrow in your approach can cause you to miss the big picture. Continuously reassess the needs of your patient populations.

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2 Respect the culture and values of patients

Culture and values are important aspects of patient identity and influence how patients interact with the health system and their providers. Culture and values may affect patients' beliefs, attitudes, expectations, and behaviors regarding health, illness, and treatment. As a patient advocate, you need to respect the culture and values of patients and avoid imposing your own assumptions or judgments. You can do this by learning about the cultural background and values of the patients you work with, asking open-ended questions, listening actively, and acknowledging and addressing any potential conflicts or misunderstandings.

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3 Communicate effectively with patients

Communication is essential for building trust, rapport, and collaboration between patients and their advocates. Effective communication involves not only conveying information, but also understanding the emotions, concerns, and perspectives of patients. As a patient advocate, you need to communicate effectively with patients and use appropriate methods and tools. You can do this by using clear, simple, and respectful language, avoiding jargon and acronyms, providing interpreters or translators when needed, using visual aids or other formats to enhance comprehension, confirming understanding and feedback, and expressing empathy and support.

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4 Empower patients to participate in their care

Patient participation is the degree to which patients are involved in their own health care and decision-making. Patient participation can improve patient satisfaction, adherence, self-management, and outcomes. As a patient advocate, you need to empower patients to participate in their care and respect their autonomy and preferences. You can do this by providing patients with relevant and accurate information, educating them about their rights and options, encouraging them to ask questions and express their opinions, facilitating shared decision-making with providers, and supporting them to take action and advocate for themselves.

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Brandan Torka

Veteran U.S. Army Healthcare Manager, with flexible skills to work in myriad industries
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A lot of patient advocacy issues do stem from not understanding the perspective nor the justification of decisions made by medical staff. Take the time to educate and inform patients about what you are doing and why you are doing this. Help them get the insight they need in order for them to make informed decisions about their care.

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5 Collaborate with other stakeholders

Patient advocacy is not a solo activity, but a collaborative one that involves working with other stakeholders in the health system, such as providers, administrators, policy makers, researchers, and other advocates. These stakeholders may have different roles, perspectives, and interests, but they also share a common goal of improving patient care and outcomes. As a patient advocate, you need to collaborate with other stakeholders and build positive and productive relationships. You can do this by identifying common ground and mutual benefits, communicating clearly and respectfully, sharing information and resources, resolving conflicts and challenges, and recognizing and appreciating contributions.

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Joann Wortham

RN, DNP, JD
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Working with others is an essential part of improving patient advocacy. Whether you want to improve access to care or general patient experience, partnering with the right stakeholders can make it happen. I use the "calling on" and "call up" connection strategies. I call on all those who will come in contact with the patient during their hospital stay to advocate for the patient and their family during their part of the encounter. This really brings the entire team to the proverbial table to take responsibility for their portion of the visit. I am also always bringing more team members to the table. The more we can broaden our collective perspective, the more likely we are to spot opportunities to advocate.

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6 Evaluate and improve your advocacy efforts

Patient advocacy is a dynamic and ongoing process that requires constant monitoring, evaluation, and improvement. As a patient advocate, you need to evaluate and improve your advocacy efforts and ensure they are effective, efficient, and ethical. You can do this by setting clear and realistic goals and objectives, collecting and analyzing data and feedback, measuring and reporting outcomes and impacts, identifying and addressing gaps and challenges, and seeking and applying learning and best practices.

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7 Here’s what else to consider

This is a space to share examples, stories, or insights that don’t fit into any of the previous sections. What else would you like to add?

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Anoop Rajan MHA,RN,NEA-BC

Digital Transformation & Innovation (DT & I) | Transformation Operations | UCF Lake Nona Innovation Hub | AI in Healthcare | Doctoral Student.
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Seeking feedback directly from patients while they are in the hospital facility have great impact in my experience.Real-time feedback is crucial as that will help us to take actions to correct any issues or help them with any needs they have. Leaders need to set time in their day to visit their customers or delegate an expert in doing that which will help to obtain this data. We can have scripting around what questions are being asked to ensure equity, but interaction should not be just limited to those questions, rather connect as human beings, and use your observation skills also to identify any opportunities. Leaders must take this information back to the team to discuss as a group to customize what is best for individual patients

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How can you ensure your advocacy efforts include all patient populations?

1

2

3

4

5

6

7

1 Understand the diversity of patient populations

2 Respect the culture and values of patients

3 Communicate effectively with patients

4 Empower patients to participate in their care

5 Collaborate with other stakeholders

6 Evaluate and improve your advocacy efforts

7 Here’s what else to consider

Patient Advocacy

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How can you ensure your advocacy efforts include all patient populations?

1

2

3

4

5

6

7

1 Understand the diversity of patient populations

2 Respect the culture and values of patients

3 Communicate effectively with patients

4 Empower patients to participate in their care

5 Collaborate with other stakeholders

6 Evaluate and improve your advocacy efforts

7 Here’s what else to consider

Patient Advocacy

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