What are some strategies for respecting patient values and beliefs in palliative care?

Para respeitar os valores e cren?as dos pacientes em cuidados paliativos, é crucial estabelecer uma comunica??o aberta e empática, entender as influências culturais e religiosas, respeitar a autonomia do paciente, e desenvolver planos de cuidado personalizados. Oferecer suporte espiritual e emocional, promover a sensibilidade cultural entre a equipe de cuidados, e incluir a família e a comunidade no processo de cuidado s?o também fundamentais. A documenta??o clara das preferências do paciente e a revis?o contínua dos planos de cuidado asseguram que os cuidados se alinhem com os valores e desejos do paciente, garantindo um atendimento compassivo e individualizado até o fim da vida.

Respecting patient values and beliefs in palliative care, especially in the context of cancer care, is essential for providing patient-centered support. Work with patients and their families to develop individualized care plans that align with their values, preferences, and goals. This may involve discussions about treatment options, symptom management, and advance care planning. Collaborate with other members of the healthcare team, including social workers, and palliative care specialists, to address the diverse needs of patients and their families. By integrating these strategies into our practice, we can effectively respect patients' values and beliefs in palliative care, promoting dignity, autonomy, and quality of life for our patients

Na minha experiência profissional, pude perceber a importancia da escuta ativa, presen?a e respeito pelo paciente. Saber que dentro das limita??es do caso, estamos ali para servir e tornar o processo o melhor possível para o paciente e também sua família. Saber acolher e esclarecer todas as dúvidas logo no primeiro contato, procurar conhecer o paciente e os seus familiares, seu histórico, anseios e medos - assim como possuir empatia- é essencial para a efetividade de todo o cuidado e tratamento.

To respect patient values in palliative care, I ask questions like, "What matters most to you now?" and "What concerns you about your health?" I also inquire, "How do you envision your care?" and "Are there cultural or spiritual practices important to you?" Lastly, I ask, "What are your hopes for your care?" These questions aim to deeply understand their perspective, ensuring care aligns with their desires and respects their individual values, fostering a supportive and empathetic care environment.

In palliative care, respecting patient values and beliefs is crucial. One strategy is active listening to understand their preferences. For example, if a patient wishes to spend their final days at home, healthcare providers should strive to accommodate this preference. Additionally, involving patients in decision-making ensures care aligns with their beliefs. By honoring patient autonomy, healthcare providers can respect the values and beliefs of those receiving palliative care.

Trabalhando na área assistencial, fui capaz de compreender a real importancia da valoriza??o das redes de apoio e sustenta??o, levando-se em considera??o as a??es de melhorias do ambiente de cuidado ao paciente e cuidador, e o quanto podem propiciar um cuidado compartilhado em rede como um todo. Para que o paciente possa possuir clareza com rela??o aos recursos e servi?os oferecidos, assim como seus direitos, é importante que haja uma boa comunica??o entre a equipe multidisciplinar, o paciente e sua rede de apoio - especialmente em casos de cuidados domiciliares, onde normalmente o papel de cuidador é assumido por um familiar ou amigo próximo do paciente.

One thing I think we all have experienced that involving the patient's family in the decision-making serves as a good engine to the whole train of patient care running in a terrain. Nobody is an island. We are social. The healthcare ecosystem blending with the personal space requires polishing the frictions arising from the stakeholders of the patient.

To answer the question regarding stragities for respecting patient values and beliefs during palliative care, Number one Communication, we can't respect values and beliefs that we are unaware of. Two implantation, get them what they are asking for to the very best of your ability. Ask yourself what if your patient was your mother or father. How would you want them to be treated?Take the time to make phone calls if the family needs you too, get hospice on board for help if they aren't already. And above all provide your patient with the dignity they deserve. In a long term care setting, I like to remind my staff that we are a guests in our patients homes so we need to behave as such.

Unfortunately, in too many instances palliative and hospice care is given in nursing homes, where patient's rights are not respected or adhered to. It is challenging for patient advocates who must ensure that diversity and dignity rights are respected. There is also the problem that many facilities don't follow the wishes that residents have laid out clearly in their POA, Health Care Proxy, and even DNRs.

Todos os pacientes em cuidados paliativos devem ser tratados com compaix?o e respeito. Isso envolve a preserva??o da sua privacidade, o reconhecimento de suas culturas religiosas e pessoais, além da promo??o de um ambiente e cuidado humanizados. Para isso, é necessário que os desejos e emo??es do paciente em rela??o à morte sejam celebrados. Os profissionais de saúde devem trabalhar em colabora??o com o paciente e seus familiares para criar um plano de cuidados no final da vida que atenda a todas às suas necessidades, o que pode incluir a escolha de um local de morte, o envolvimento de entes queridos e a implementa??o de medidas para garantir que o paciente seja tratado com seguran?a e respeito até o final.

espeite as escolhas e decis?es do paciente em rela??o ao seu tratamento e cuidados paliativos. Isso inclui respeitar sua decis?o de recusar ou interromper tratamentos, bem como suas preferências sobre onde querem receber cuidados e passar seus últimos dias.

Um caso em particular quando iniciei como Enfa Paliativista, uma paciente jovem, acometida por um tumor estágio IV localmente avan?ado, recusou todo e qualquer procedimento terapêutico. Elaboramos um plano terapeutico individualizado, de acordo com suas possibilidades e vontades, a expectativa de vida que seria de 6 meses evoluiu para 12 meses! Diretivas Antecipadas de Vontade! Respeitar o que o paciente quer e lhe proporcionar qualidade de vida! Sim é possível e faz TODA DIFEREN?A!

Use easy-to-understand language when discussing complicated medical terminology. Make sure all medical personnel understand situational circumstances, personal beliefs, and cultural practices beyond medical needs. Ensure that all patients have the right to make decisions about their own health. Uphold their dignity by considering their preferences, privacy, and emotional well-being. Be a voice for patients when discussing treatment options or care plans. Encourage patients to express their concerns, fears, and preferences. Advocate for treatment modifications as needed. Simplify complex medical information. If you believe a patient's well-being is at risk, don't hesitate to challenge decisions. Liaise with Family Members.

One of the most profound challenges in palliative care is honoring the wishes of patients whose views sharply contrast with my own. To navigate this, I ask questions like, "How did you come to that decision?" and "Why is that important to you?" to understand their perspective better. Even when their choices seem baffling, I prompt with "Tell me more." It's a crucial reminder that it's their life, their choice, especially in their final moments. Respecting these wishes as you would want yours respected is fundamental, requiring an open heart and mind to truly honor their diversity and unique needs, ensuring they receive care that aligns with their values and beliefs.

Being raised in an underserved community, being a woman of color and having been on the receiving end of encounters in healthcare where I did not feel respected, I know all too well of the aspects of inequities and lack of respect that can be present in healthcare. Patients who have chronic diseases and need a vital service like palliative care should be able to have care that “feels right” no matter their culture, race, religious/spiritual beliefs or sexual identity. I truly believe that respect is paramount in whatever industry that services people within a community and as a healthcare provider, I strive to ensure that any patient that I get the privilege to serve feels that sentiment.

Abordagem empática e escuta afetiva fazem toda diferen?a. O cuidado é individualizado e único para cada paciente. Em Cuidados Paliativos, as cren?as, costumes e hábitos devem ser respeitados.

People usually say respect is reciprocal but I beg to differ. I would say, respect no matter what, whether it is being reciprocated or not show respect, it makes you unbiased in your professional practice. We would always have cultural diversity in our existence even amongst the same clan people have different preferences. Therefore, respect the persons no matter their caliber, race , complexion and differences. Be open to accept people for who they are no matter their background for an unbiased delivery of care.

A key lesson I've learned is the power of simply being present. Beyond the structured approaches of understanding perspectives, advocating for rights, and respecting diversity, sometimes the most profound support we can offer is our silent presence. Being there, physically or emotionally, for patients and their families during their most vulnerable moments can speak volumes. This presence allows for an unspoken understanding and connection that transcends words, offering comfort and reassurance that they are not alone in their journey. It's in these moments of quiet companionship that the true essence of patient advocacy shines.

trained from health career in nursing, its important to be entirely neutral on religion, or politics in dealing with patients.listening without volunteering a position of your own is always a best policy.pushing or advocating during medical visits or health times is not recomended policy at any time.its not what you are there for and get into very complicated predicaments leading to posible lawsuits or arguements.better that you keep your personal opinions and positions to yourself,and stick to medical advice that you are trained for.in other words stay in your lane of expertise.

My mother passed away in 2020 in hospice at home. She was taken to the hospital for double pneumonia with advanced lung cancer. The hospital told me she needed to go to rehab, and I had to heavily advocate for her to go home. Thry suggested she stay in the hospital for palliative or hospice and I again had to advocate for her. She wanted to go home with her grandkids nearby in her own home in her own bed because she knew she was dying. Listen to your patients and their families. Done impose your 'Years of Experience" to influence a situation that the patient has already decided on. It only leads the families to second guess what they're gut is telling them is right for their loved ones. Palliative care is SO important as an option.

Respecting patient values and beliefs in palliative care necessitates active listening, open communication, and cultural competence to understand and address their individual needs. Engage in collaborative decision-making, allowing patients and families to participate in care planning while remaining flexible to adapt interventions to align with their values. Provide spiritual support and respect privacy and dignity throughout the care process, collaborating with interdisciplinary teams to meet holistic needs. Approach care with empathy and compassion, continuously assessing and adjusting to evolving preferences.

He comprobado a lo largo de mi carrera, que la escucha activa, la empatía y la compresión son las herramientas más beneficiosas en los cuidados paliativos. Fomentar el binomio paciente-familia es la clave en el cuidado integral del paciente. Sin descuidar también el bienestar del cuidador. Actuar en base al día a día: como se sienten hoy, cómo lo vemos, hay algo que podamos hacer u ofrecer. Ningún día es igual al anterior en el cuidado del paciente paliativo, y en un mundo de atención sanitaria que cada día fomenta procesos y delimita métodos de trabajo para la excelencia, es importante saberlo. Solo de ese modo podremos ofrecer justo lo que el binomio necesita.