As a mother who’s been on the other side , here’s what would have helped me: Avoid saying, “I can imagine how you feel” unless you’ve truly been there, & even then, diagnosis isn’t the time. Instead of “it’ll be ok,” offer, “I know this is confusing & scary, but we’re here to help.” Instead of “I’ll pray for you,” say “do you have spiritual beliefs or support systems you can lean on?” Offer practical support like calling someone for them, sitting with them, providing clear, written instructions. Provide a focal point, in difficult times, the goal isn’t always the finish line, it’s one day or moment at a time. Write things down for them: This is what happens next, this is the next decision you need to make, this is who you call & when.

When working with patients who face complex diagnoses, it’s essential to combine empathy with clear, accessible communication. A complex diagnosis can bring overwhelming emotions and they rely on us for treatment options but also for reassurance and understanding. -Clear Communication: Effective communication is the key to supporting patients with complex conditions. They may need to hear things multiple times to fully process the information. - Provide Resources: Offering them easy to understand educational materials that give them further context on their condition and treatments. - Establish Ongoing Support: Complex diagnoses often require continuous adjustments, and patients benefit from feeling they’re not navigating it alone.

Offer comprehensive support by breaking down the diagnosis and treatment options in clear, understandable terms. Provide resources, such as educational materials or support group information, and encourage questions to ensure they feel informed and empowered. Coordinate with their healthcare team to clarify any aspects of care and advocate for patient-centered solutions that address both medical and emotional needs. Regular check-ins to assess their understanding and comfort level can also help ease anxiety and foster trust.

After caring for patients for years, it's most important to listen and clarify what they understand about their condition. Ask and listen to their concerns and fears. Explain where you can offer help and ask them if any of those areas they want your help. Check on them regularly and connect them with other resources. Remember they may not know what they do not know.