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What are some ways to advocate for patients who are unable to communicate their needs?

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Advocating for patients who are unable to communicate their needs is a vital skill for any patient advocate. Whether due to illness, injury, disability, language barrier, or cognitive impairment, some patients may not be able to express their preferences, concerns, or questions about their care. As a patient advocate, you can help ensure that these patients receive respectful, compassionate, and appropriate care that aligns with their values and goals. Here are some ways to advocate for patients who are unable to communicate their needs.

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Anas Albashaish BSN, US-RN, AEMT, CPHQ, CIC?

MBA Student| CPHQ| CIC?| AdvancedEMT| McKinsey Forward Alumni| GBD Collaborator
Clemence Abex

Monitoring, Evaluation, Accountability & Learning (MEAL) Practitioner

1 Know the patient's rights

Every patient has the right to be informed, involved, and respected in their health care decisions. This includes the right to have a surrogate decision-maker, such as a family member, friend, or legal guardian, who can speak on their behalf if they are unable to do so. As a patient advocate, you can help the patient and their surrogate understand their rights and responsibilities, and support them in communicating with the health care team. You can also help them access any resources or services that can assist them in their care, such as interpreters, social workers, or palliative care.

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Anas Albashaish BSN, US-RN, AEMT, CPHQ, CIC?

MBA Student| CPHQ| CIC?| AdvancedEMT| McKinsey Forward Alumni| GBD Collaborator
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Understanding and advocating for patients' rights is foundational in healthcare. Every patient possesses the right to be well-informed, actively involved, and treated with respect in their healthcare decisions. This extends to the provision of a surrogate decision-maker, be it a family member, friend, or legal guardian, who can articulate their wishes if they are unable to do so. As a patient advocate, your role becomes pivotal in not only elucidating these rights but also supporting both the patient and their surrogate in comprehending their responsibilities. Facilitating effective communication with the healthcare team, you bridge the gap, ensuring that patient preferences are both understood and honored.

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2 Use effective communication tools

Communication is not only verbal, but also non-verbal, such as gestures, facial expressions, eye contact, and body language. As a patient advocate, you can use various communication tools to help the patient and their surrogate convey their needs and preferences to the health care team. For example, you can use pictures, symbols, charts, or devices that can help the patient indicate their pain level, comfort, or choices. You can also use open-ended questions, active listening, and empathy to elicit and validate the patient's feelings and concerns.

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3 Collaborate with the health care team

As a patient advocate, you are part of the health care team that works together to provide the best possible care for the patient. You can collaborate with the health care team by sharing relevant information about the patient's medical history, preferences, values, and goals. You can also ask questions, seek clarification, and provide feedback to the health care team about the patient's condition, treatment options, and outcomes. You can also advocate for the patient's rights and wishes, and help resolve any conflicts or issues that may arise.

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Clemence Abex

Monitoring, Evaluation, Accountability & Learning (MEAL) Practitioner
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Advocating for non-communicative patients involves actively engaging with the healthcare team and ensuring that the patient's history, preferences, and medical information are well-documented and shared. It's essential to establish open lines of communication with healthcare professionals and, if possible, designate a medical proxy or power of attorney to make decisions on the patient's behalf. By staying informed, asking questions, and prioritizing the patient's comfort and dignity, you can play a vital role in advocating for their well-being and ensuring that their best interests are upheld.

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4 Respect the patient's dignity and autonomy

As a patient advocate, you should always respect the patient's dignity and autonomy, even if they are unable to communicate their needs. This means honoring the patient's wishes, preferences, and values, as well as their cultural, religious, and personal beliefs. It also means protecting the patient's privacy and confidentiality, and ensuring that they are treated with kindness and compassion. You should also support the patient's surrogate decision-maker, and help them make decisions that are consistent with the patient's best interests and values.

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5 Educate and empower the patient and their surrogate

As a patient advocate, you can educate and empower the patient and their surrogate by providing them with accurate, relevant, and understandable information about the patient's condition, diagnosis, prognosis, and treatment options. You can also help them navigate the health care system, access resources and support, and understand their rights and responsibilities. You can also encourage and support the patient and their surrogate to participate in their care, ask questions, express their concerns, and seek a second opinion if needed.

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Anas Albashaish BSN, US-RN, AEMT, CPHQ, CIC?

MBA Student| CPHQ| CIC?| AdvancedEMT| McKinsey Forward Alumni| GBD Collaborator
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Your advocacy extends beyond information dissemination. Navigating the complexities of the healthcare system can be daunting, and here your role becomes that of a guide, helping them access resources, support, and comprehend their rights and responsibilities. Empowering patients involves encouraging and supporting them to be active participants in their care—asking questions, expressing concerns, and, when necessary, seeking a second opinion. In this perspective, patient education isn't a one-way street; it's a collaborative effort that elevates the patient and their surrogate from passive recipients of care to informed and engaged partners in the healthcare journey.

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6 Follow up and follow through

As a patient advocate, you should follow up and follow through with the patient and their surrogate, as well as the health care team, to ensure that the patient's needs are met and their care is coordinated. You can follow up by checking on the patient's progress, satisfaction, and feedback, and by providing them with any additional information or assistance they may need. You can follow through by monitoring the patient's outcomes, ensuring that their care plan is implemented and evaluated, and by advocating for any changes or improvements that may be needed.

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Anas Albashaish BSN, US-RN, AEMT, CPHQ, CIC?

MBA Student| CPHQ| CIC?| AdvancedEMT| McKinsey Forward Alumni| GBD Collaborator
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Following up and following through as a patient advocate is not just a task; it's a commitment to ensuring that the patient's journey is seamless and their needs are consistently met. Your role extends beyond the initial advocacy, necessitating ongoing engagement with both the patient and their surrogate, as well as the healthcare team.

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7 Here’s what else to consider

This is a space to share examples, stories, or insights that don’t fit into any of the previous sections. What else would you like to add?

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What are some ways to advocate for patients who are unable to communicate their needs?

1

2

3

4

5

6

7

1 Know the patient's rights

2 Use effective communication tools

3 Collaborate with the health care team

4 Respect the patient's dignity and autonomy

5 Educate and empower the patient and their surrogate

6 Follow up and follow through

7 Here’s what else to consider

Patient Advocacy

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What are some ways to advocate for patients who are unable to communicate their needs?

1

2

3

4

5

6

7

1 Know the patient's rights

2 Use effective communication tools

3 Collaborate with the health care team

4 Respect the patient's dignity and autonomy

5 Educate and empower the patient and their surrogate

6 Follow up and follow through

7 Here’s what else to consider

Patient Advocacy

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